Defeat Duchenne Canada

Defeat Duchenne Canada is the country’s only national charity
dedicated to ending Duchenne muscular dystrophy.

[Defeat Duchenne Canada @defeatduchenne]

Registration is now open 💡 Join us October 3-4, 2026 in Halifax, Nova Scotia (or online from anywhere in Canada) for the 10th Family Forum.
Register now: https://t.co/ceqh1PtiYq

Registration is always free for families, people living with Duchenne, and their support persons.

[Defeat Duchenne Canada @defeatduchenne]

New paper: Expanding Vamorolone Treatment Access for Canadians with Duchenne is now published in the Canadian Journal of Neurological Sciences.

📖 https://t.co/8AVvj77BTj

Health Canada approval was an important milestone. Now, eligible Canadians need timely, equitable access.

[Defeat Duchenne Canada @defeatduchenne]

Join the Prendergasts on September 19: Whether you're riding 120km with them in Pembroke, cheering them on with a donation, or putting together your own team across Canada, there's a place for you in this ride.

Push us closer to a future without Duchenne: https://t.co/0xeIKO5J5h

[Defeat Duchenne Canada @defeatduchenne]

Planning your trip to Halifax? 🧳 Now is the time to secure your stay.

Book your hotel before the September 2 deadline to secure the Defeat Duchenne Canada group rate and be part of a truly special weekend.

Register & book your stay: https://t.co/ceqh1PtiYq

[Defeat Duchenne Canada @defeatduchenne]

Recent updates on Entrada Therapeutic’s exon-skipping trials happening outside of Canada and what this means for individuals living with Duchenne muscular dystrophy: https://t.co/wtjm2iNBY4

[Defeat Duchenne Canada @defeatduchenne]

And they’re off! 🏊‍♂️ Brian & George have kicked off their 5km swim this year in London marking the start of the 18th annual Rice Lake Challenge.

🔗 https://t.co/z6dXqHMg2S

For safety reasons, the swim moved indoors this year, but nothing has slowed these two down. 💪

[Defeat Duchenne Canada @defeatduchenne]

New research has shed light on a fascinating link between our digestive system and muscle health, offering fresh insights into Duchenne muscular dystrophy: https://t.co/NVbsRfKmio

[Defeat Duchenne Canada @defeatduchenne]

We’re just weeks away from Brian Connor’s 18th Annual Rice Lake Challenge: https://t.co/mrXJSNklYy

It’s almost here! And the Rice Lake gang are closing in on an incredible milestone: $500,000 raised!

💙 Register or donate today!

[Defeat Duchenne Canada @defeatduchenne]

There are four weeks left to nominate someone who has gone above and beyond! 💙 Help us celebrate the volunteers powering the Canadian Duchenne community at the October 3 Awards Ceremony.
🔗 Submit your nomination by September 1: https://t.co/yeDfPduYXI

[Defeat Duchenne Canada @defeatduchenne]

Incredible moments happen when we come together. Meet us at the Family Forum: https://t.co/QVMbxGi2el

At the Family Forum, families, clinicians, and researchers share knowledge, experiences, and perspectives — all learning from one another.

[Defeat Duchenne Canada @defeatduchenne]

We are grateful for our educational partners for making the 2026 Family Forum possible: https://t.co/ceqh1PtiYq

Their commitment brings together families, clinicians, and researchers, empowering the Canadian #Duchenne community through connection, knowledge, and support.

[Defeat Duchenne Canada @defeatduchenne]

New for 2026: Even more ways for families to connect!
There’s something here for every member of your family. Register free: https://t.co/QVMbxGi2el

[Defeat Duchenne Canada @defeatduchenne]

Stephen and Rachael Prendergast launched Caden & Cullen's Cause in 2020 in support of their boys, Caden and Cullen, who have both been diagnosed with Duchenne muscular dystrophy.

Join them in the fight towards a future without this rare and fatal disease: https://t.co/0xeIKO5J5h

[Defeat Duchenne Canada @defeatduchenne]

Think of someone in the Canadian Duchenne community who is always there giving back and making a difference. Nominate them for our Volunteer Appreciation Awards before September 1: https://t.co/8BcsOO5AVz

[Defeat Duchenne Canada @defeatduchenne]

🎉 Please join us in welcoming Leandra Wells, PhD, to our Board of Directors!

With more than 20 years of leadership in healthcare and the pharmaceutical industry, Leandra brings expertise in innovation, governance, and advancing new therapies:
https://t.co/JFV0WUDPlU

[Defeat Duchenne Canada @defeatduchenne]

Thinking about your fall plans? Make room for Halifax!
🔗 https://t.co/ceqh1PtiYq

Registration is free for families, people living with Duchenne, and their support persons. Join us October 3 & 4 in person or online.

[Defeat Duchenne Canada @defeatduchenne]

🎉 Please join us in welcoming Perry Esler to our Board of Directors!

From being a volunteer in 1995 to CEO, Perry has a long history with our organization💙 We're excited to welcome his passion for our community and philanthropy expertise to the Board: https://t.co/JFV0WUDPlU

[Defeat Duchenne Canada @defeatduchenne]

Different mouse models produce different levels of dystrophin, and like in humans, those with no dystrophin had more severe symptoms and responded less favourably to treatment. Learn more from Dr. Toshi Yokota and his research team: https://t.co/HTQukkAFXo

[Defeat Duchenne Canada @defeatduchenne]

This video highlights the heart of Brian Connor’s 18th Annual Rice Lake Challenge
People coming together. Supporting one another. Lifting each other up.
Be part of it this August: https://t.co/mrXJSNklYy

[Defeat Duchenne Canada @defeatduchenne]

🎉 Please join us in welcoming Dr. Laura McAdam to our Board of Directors!

Dr. McAdam is dedicated to improving the health and quality of life of individuals living with #Duchenne through clinical care, research, and family-centred advocacy: https://t.co/JFV0WUDPlU.

[Defeat Duchenne Canada @defeatduchenne]

Planning your trip? We’ve secured a group rate at the Delta Hotels Halifax Downtown. Book by September 2 to lock in the rate.

Need an accessible room? Contact us and we’ll help arrange it.

🔗 Book your stay: https://t.co/QVMbxGi2el