Today is #RareDiseaseDay
Rowan lives with Epidermolysis Bullosa (EB), a rare genetic disease that makes skin as fragile as a butterfly’s wings, but her courage isn’t rare, and neither is the global community of 400+ million people living with rare diseases.
Through @EBResearch, families, scientists, and supporters are pushing research forward, pioneering progress in EB and helping reshape what’s possible for rare diseases.
It’s not a matter of if.
It’s a matter of time.
🦋 Learn about EB and how you can help at https://t.co/vGEN2ZLU4K
On the shores of Lake Superior lies Sonju Arena, home to @THYouthHockey. With the help of local businesses, the organization is able to provide families and their children first-year-free access to hockey, getting as many on the ice as they can. 🏒
This year, they added a new supporter to their roster - the “Jamboni.”
Go for a 3-pointer with the Pearl Jam Basketball Lot - now available for auction.
All proceeds benefit the Vitalogy Foundation: https://t.co/bytor91VQO
Eddie is giving one lucky winner & their guest a trip to see him live in Kyoto! The prize includes flights, lodging, 2 tickets to his Rohm Theater show, & more.
Turn music into real-world impact & support the Vitalogy Foundation. Donate now: https://t.co/ML2Nf3eP9N
Our friend Rowan Holler, at a sold-out @HotDocsCinema in Toronto, shared big news for families waiting to be seen: Matter of Time is going global.The film follows @EBResearch toward a cure for Epidermolysis Bullosa, streaming on @netflix Feb 9.
Search it & hit “Remind Me.”
In memory of Mike Sardina - one half of the Neil Diamond tribute act "Lightning and Thunder" - Claire Sardina receives a Gibson Everly Brothers Guitar from Eddie, an instrument Mike always dreamed of.
Congratulations to Kate Hudson on her Academy Award nomination for her incredible performance as Claire in Song Sung Blue!
🎥: Greg Kohs, Song Sung Blue, 2008
These December days are short on Pearl Jam history, so they are perfect to sample the annual 10 Club singles. How fortunate we were to have these for nearly 30 years! Let's start with the inaugural edition and its @bridgeconcert debut. #tfh
"Let Me Sleep" (debut), Oct. 1, 1994:
For Day 2 of the Ten Days of Pearl Jam, it's time to look back on Dark Matter! From the recording sessions to the listening parties, interviews, and tour, it was truly Something Special. Watch the highlight reel recapping everything from the album and tour, featuring never-before-seen photos and footage. 💫
#TenDaysOfPJ
Excited to share the stage with Indigenous punk/post punk art band Dead Pioneers and Australian rock band @TeenTeasers this spring!
Join us in Hollywood, FL and Atlanta to catch the Dead Pioneers, or come out to the shows in Nashville, Raleigh and Pittsburgh for @TeenTeasers.
For all presale and on sale registration info, head to https://t.co/XYztZD8J6S.
Eddie and Jeff welcome @DouglasEmhoff to @SiriusXM’s @PJRadio. Tune in to hear about the trio’s shared passion for local record shops, Doug’s experience attending the Dark Matter World Tour, and getting the vote out for Kamala.
Listen now on Channel 22 or the SiriusXM app: https://t.co/pxQdgw3kKj
Listen to “Save It For Later” featured in season 3 of The Bear: https://t.co/YuLD6kClD9
All episodes of @TheBearFX are streaming now. #TheBearFX@FXNetworks
Two Nights with Pearl Jam in LA: Holding On to the Threads of Music, Family and Loss (#DarkMatter Tour Review/Photos) https://t.co/Ee4AIT4OrL
Words: @adriangarro
Photos: @forthehordeprod