Sue Pears

Trying out retirement. Former information scientist and digital practice adviser. Views are my own.

[Sjögren's UK @SjogrensUK]

Raising awareness

•Fatigue
•Muscle pain or weakness
•Brain fog
•Headaches
•Dry or itchy skin
•Frequent dental problems
•Persistent cough or hoarseness
•Vaginal dryness
•Numbness or tingling in the hands or feet
•Digestive problems
•Sleep problems

#foryou

[Lupus Europe @LupusEurope]

Despite significant improvements in diagnosis delay & treatment strategies,the burden of #SLE remains⬆️.
Association between diagnosis delay, disease activity & burden on daily life in patients with #lupus by @Lupusreference et al: https://t.co/14eHH3Pm3I
#WorldLupusDay
#Lupus100

[Lupus Europe @LupusEurope]

🦋 𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 #𝐖𝐨𝐫𝐥𝐝𝐋𝐮𝐩𝐮𝐬𝐃𝐚𝐲❗

And now it is easier than ever to raise #LupusAwareness thanks to #Lupus100 and #LupusGPT!

Check https://t.co/TzypOdUztQ & https://t.co/CVWJbrfaaj & find reliable information about #lupus in many languages!

#MakeLupusVisible

[RECORDER Project @RecorderUK]

📢 This #RareDiseaseDay, we’re launching a UK-wide survey on employment experiences while living with a rare disease.
Co-developed with people living with rare autoimmune rheumatic diseases, your voice will help spotlight the realities of work, barriers, and what needs to change.

[Lupus Europe @LupusEurope]

Today is #RareDiseaseDay!

And we have joined @rarediseaseday campaign.

Everyone deserves equal opportunities, access to healthcare ➕ early diagnosis, which is key to setting a treatment plan &, hence, achieving a good quality of life.
#ShareYourColours

https://t.co/ORMR9kuaP8

[RAIRDA @RAIRDA_org]

The 23rd July is World Sjögren's Day and focuses entirely on you! 📢Use #ProudWithSjögrens to join the conversation and learn more about @SjogrensUK and ways you can support on their website ➡️https://t.co/eiAmS2r7nh

[Gillian Smith @GillianSmith16]

As Cathy explains there is a serious mismatch between the guidance for clinically extremely vulnerable people and poor IPC measures in healthcare. We only have a few hours left. Please sign the petition https://t.co/9PHPffkqAU

[Lupus Europe @LupusEurope]

@Lupusreference Learn more about how to live with #lupus thanks to #Lupus100! A website written by doctors and patients to make it possible for people with lupus to have easy-to-understand and high-quality information about lupus!

https://t.co/ksuAJGfMae
https://t.co/AolALvG1LC

#WorldLupusDay

[Lupus Europe @LupusEurope]

#Lupus is an autoimmune disease that affects nearly 500,000 people in Europe and over 5 million people in the world.

It affects not only patients but also their loved ones.

Let's raise awareness of the importance of an early diagnosis
#WorldLupusDay
#MakeLupusVisible
#Lupus100

[PReS Lupus Working Party @PReSLupusWP]

🦋 Today on #WorldLupusDay, we shine a light on childhood-onset SLE #cSLE Early diagnosis, better treatments, and global awareness can transform young lives 🌟

🤝Let’s stand together to support children living with lupus 💜 #Lupus #LupusAwareness #PediatricRheumatology

[APS Support UK @APSsupportUK]

🌍💜 Today is #WorldLupusDay. Did you know around 30-40% of people with lupus have antiphospholipid antibodies (aPL), and 15% of them develop #APS, increasing their risk of blood clots?

Learn more: https://t.co/QyOBSzcNR6 #MakeLupusVisible #LupusAwareness @worldlupusday

[Laurent ARNAUD @Lupusreference]

✅ Today is the world #LUPUS #DAY 🌍🌎🌏 Let's raise AWARENESS about this rare #autoimmune disease impacting ~3.4 million persons worldwide. Lupus is a multifaceted disease, it can be very VISIBLE👀 life-threatening 🔥or on the contrary INVISIBLE with #fatigue or even minimal🦋

[Sue Pears @DigitalSueP]

@RecorderUK

[Ricky Chotai (he/him) @ricky_chotai]

UK healthcare professionals & lupus researchers: Your input is crucial! 🏥🔬

Help @LupusUK shape support for lupus patients. Quick, anonymous survey closing May 1st, 4PM BST.

Your expertise can make a difference!

Survey link: https://t.co/2r1A886HaC

#Lupus #UKHealthcare

[Sjögren's UK @SjogrensUK]

March is Autoimmune Awareness Month, a time to recognize and support the millions affected by autoimmune diseases.

Join us in spreading awareness, supporting those affected, and advocating for research and better treatments.

#autoimmuneawareness #sjogrens #sjogrensuk

[World Kidney Day @worldkidneyday]

March is Kidney Month! 🏥💙 Let’s raise awareness about how vital our kidneys are to overall health. Organize an activity, spread the word on social media, and use our campaign materials to make an impact.

📢 Access our resources: https://t.co/M1kylBqY5k

#WorldKidneyDay

[Lupus Europe @LupusEurope]

🦋 #Lupus is a #RareDisease that affects nearly 500,000 people in Europe and over 5 million people in the world.

‼️However, lupus affects not only patients but also their loved ones. Let's raise awareness of the importance of an early diagnosis

#RareDiseaseDay #ShareYourColours

[RAIRDA @RAIRDA_org]

Today it's #RareDiseaseDay, a global day to raise awareness for rare diseases, including rare autoimmune rheumatic diseases.

[Sjögren Europe @SjogrenEurope]

LET’S CELEBRATE WORLD SJÖGREN’S DAY ! ⭐️

23th of July is dedicated to the World Sjögren’s Day. Every story is unique, every journey is different, but together, We Are Stronger.

#SjögrenDisease #Sjögrens #Unmetneeds #Raredisease #WorldSjögrensday

[Lupus Europe @LupusEurope]

#Lupus is a complex and heterogeneous systemic autoimmune disease in which the body's immune system attacks your own tissues and organs, causing inflammation and damage in any part of the body

Visit https://t.co/yuWoAS7CLh for more!

#WorldLupusDay
#MakeLupusVisible
#Lupus100

[Lupus UK @LUPUSUK]

Today is #WorldLupusDay! 💜

Lupus is a chronic autoimmune disorder where the immune system of the body attacks itself, affecting around 1 in 1,000 people living in the UK.

Learn more about #lupus at https://t.co/XhLZbUmlmx
#MakeLupusVisible #LupusAwareness #LUPUSUK