Sue Pears

Trying out retirement. Former information scientist and digital practice adviser. Views are my own.

[Lupus Europe @LupusEurope]

Despite significant improvements in diagnosis delay & treatment strategies,the burden of #SLE remains⬆️.
Association between diagnosis delay, disease activity & burden on daily life in patients with #lupus by @Lupusreference et al: https://t.co/14eHH3Pm3I
#WorldLupusDay
#Lupus100

[Lupus Europe @LupusEurope]

🦋 𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 #𝐖𝐨𝐫𝐥𝐝𝐋𝐮𝐩𝐮𝐬𝐃𝐚𝐲❗

And now it is easier than ever to raise #LupusAwareness thanks to #Lupus100 and #LupusGPT!

Check https://t.co/TzypOdUztQ & https://t.co/CVWJbrfaaj & find reliable information about #lupus in many languages!

#MakeLupusVisible

[RECORDER Project @RecorderUK]

📢 This #RareDiseaseDay, we’re launching a UK-wide survey on employment experiences while living with a rare disease.
Co-developed with people living with rare autoimmune rheumatic diseases, your voice will help spotlight the realities of work, barriers, and what needs to change.

[Lupus Europe @LupusEurope]

Today is #RareDiseaseDay!

And we have joined @rarediseaseday campaign.

Everyone deserves equal opportunities, access to healthcare ➕ early diagnosis, which is key to setting a treatment plan &, hence, achieving a good quality of life.
#ShareYourColours

https://t.co/ORMR9kuaP8

[RAIRDA @RAIRDA_org]

The 23rd July is World Sjögren's Day and focuses entirely on you! 📢Use #ProudWithSjögrens to join the conversation and learn more about @SjogrensUK and ways you can support on their website ➡️https://t.co/eiAmS2r7nh

[Gillian Smith @GillianSmith16]

As Cathy explains there is a serious mismatch between the guidance for clinically extremely vulnerable people and poor IPC measures in healthcare. We only have a few hours left. Please sign the petition https://t.co/9PHPffkqAU

[Lupus Europe @LupusEurope]

@Lupusreference Learn more about how to live with #lupus thanks to #Lupus100! A website written by doctors and patients to make it possible for people with lupus to have easy-to-understand and high-quality information about lupus!

https://t.co/ksuAJGfMae
https://t.co/AolALvG1LC

#WorldLupusDay

[Lupus Europe @LupusEurope]

#Lupus is an autoimmune disease that affects nearly 500,000 people in Europe and over 5 million people in the world.

It affects not only patients but also their loved ones.

Let's raise awareness of the importance of an early diagnosis
#WorldLupusDay
#MakeLupusVisible
#Lupus100

[PReS Lupus Working Party @PReSLupusWP]

🦋 Today on #WorldLupusDay, we shine a light on childhood-onset SLE #cSLE Early diagnosis, better treatments, and global awareness can transform young lives 🌟

🤝Let’s stand together to support children living with lupus 💜 #Lupus #LupusAwareness #PediatricRheumatology

[APS Support UK @APSsupportUK]

🌍💜 Today is #WorldLupusDay. Did you know around 30-40% of people with lupus have antiphospholipid antibodies (aPL), and 15% of them develop #APS, increasing their risk of blood clots?

Learn more: https://t.co/QyOBSzcNR6 #MakeLupusVisible #LupusAwareness @worldlupusday

[Laurent ARNAUD @Lupusreference]

✅ Today is the world #LUPUS #DAY 🌍🌎🌏 Let's raise AWARENESS about this rare #autoimmune disease impacting ~3.4 million persons worldwide. Lupus is a multifaceted disease, it can be very VISIBLE👀 life-threatening 🔥or on the contrary INVISIBLE with #fatigue or even minimal🦋

[Sue Pears @DigitalSueP]

@RecorderUK

[Ricky Chotai (he/him) @ricky_chotai]

UK healthcare professionals & lupus researchers: Your input is crucial! 🏥🔬

Help @LupusUK shape support for lupus patients. Quick, anonymous survey closing May 1st, 4PM BST.

Your expertise can make a difference!

Survey link: https://t.co/2r1A886HaC

#Lupus #UKHealthcare

[Sjögren's UK @SjogrensUK]

March is Autoimmune Awareness Month, a time to recognize and support the millions affected by autoimmune diseases.

Join us in spreading awareness, supporting those affected, and advocating for research and better treatments.

#autoimmuneawareness #sjogrens #sjogrensuk

[World Kidney Day @worldkidneyday]

March is Kidney Month! 🏥💙 Let’s raise awareness about how vital our kidneys are to overall health. Organize an activity, spread the word on social media, and use our campaign materials to make an impact.

📢 Access our resources: https://t.co/M1kylBqY5k

#WorldKidneyDay

[Lupus Europe @LupusEurope]

🦋 #Lupus is a #RareDisease that affects nearly 500,000 people in Europe and over 5 million people in the world.

‼️However, lupus affects not only patients but also their loved ones. Let's raise awareness of the importance of an early diagnosis

#RareDiseaseDay #ShareYourColours

[RAIRDA @RAIRDA_org]

Today it's #RareDiseaseDay, a global day to raise awareness for rare diseases, including rare autoimmune rheumatic diseases.

[Sjögren Europe @SjogrenEurope]

LET’S CELEBRATE WORLD SJÖGREN’S DAY ! ⭐️

23th of July is dedicated to the World Sjögren’s Day. Every story is unique, every journey is different, but together, We Are Stronger.

#SjögrenDisease #Sjögrens #Unmetneeds #Raredisease #WorldSjögrensday

[Lupus Europe @LupusEurope]

#Lupus is a complex and heterogeneous systemic autoimmune disease in which the body's immune system attacks your own tissues and organs, causing inflammation and damage in any part of the body

Visit https://t.co/yuWoAS7CLh for more!

#WorldLupusDay
#MakeLupusVisible
#Lupus100

[Lupus UK @LUPUSUK]

Today is #WorldLupusDay! 💜

Lupus is a chronic autoimmune disorder where the immune system of the body attacks itself, affecting around 1 in 1,000 people living in the UK.

Learn more about #lupus at https://t.co/XhLZbUmlmx
#MakeLupusVisible #LupusAwareness #LUPUSUK

[Marcus Elliott @marcuselliott]

Hello? Anyone still here?

If so, I'm doing a charity bike ride thing. 1000km in 7 days. In memory of my dad who died from cancer last year. It's gonna hurt.

More info and donate at https://t.co/eLWKjg24ZS