Allyson Buck

[Allyson Buck @DosyB]

@CapitalOne #TSxCapitalOne #Sweepstakes

[Allyson Buck @DosyB]

The @VWMFamilies Rare Disease Day Virtual 5k is only 2 weeks away!
Click below to register to walk, run or bike, indoor or outdoor, from wherever you are on February 28th. All proceeds fund research & clinical trials to find a treatment for VWM.

https://t.co/rYPD7sNcm8

[Kamala Harris @KamalaHarris]

We did it, @JoeBiden.

[Sam VWM @SamvsVWM]

Happy Bunny in this year's Halloween costume! #halloween #adaptivehalloween #adaptivehalloweencostume #wheelchaircostume #wheelchairhalloweencostume #carrotcostume #bunnycostume #wheelchairhalloweencostume #homemadehalloween #homemadehalloweencostume #rabbitcostume #Halloween2020

[Sam VWM @SamvsVWM]

Sam yesterday "I'm having a great day! One of my a million best!" Other than walks around our neighborhood, Sam has only left the house once (for his sister's graduation) since March 12, and still everyday is his Best Day Ever. We are so lucky to be socially isolating with him.

[Allyson Buck @DosyB]

An article I wrote about travelling with Sam for Travel Without Limits, an Australian magazine that is exclusively about tavelling with disabilities.
https://t.co/6LOxtM9FiG

[Sam VWM @SamvsVWM]

Photo of us for #thefrontstepsproject
#frontstepsproject #socialisolation
#vwmff #vwm #vanishingwhitematterdisease #leukodystrophy #vwmfamiliesfoundation #livingwithaterminalillness #leukodystrophyawareness #sambuck

[Sam VWM @SamvsVWM]

Sam thought it was the perfect day for his Santa suit.... #santasuit #christmasinapril #style #vwmff #vwm #findacureforvwm #samvsvwm #vanishingwhitematterdisease #leukodystrophy #vwmfamiliesfoundation #livingwithaterminalillness #leukodystrophyawareness #sambuck

[Sam VWM @SamvsVWM]

Sam loves playing soccer, he can't kick the ball so he plays goalie instead. #vwmff #vwm #findacureforvwm #samvsvwm #vanishingwhitematterdisease #leukodystrophy #vwmfamiliesfoundation #livingwithaterminalillness #leukodystrophyawareness #sambuck #soccer #goalie

[Allyson Buck @DosyB]

Drum ninja.

@JamieBDrum #ratsalad #11yearolddrummer https://t.co/tkogxwZiBt

[Allyson Buck @DosyB]

Local friends, join using the Avenue Saturday between 12-4! https://t.co/z3TunDNc7K

[WMS Administration @WMSadmin]

“Assistant Principal of the day” with one of our great 6th graders! He did an amazing job! He needs to work on his AP “mean face,” but otherwise could fill in for me any day! I guess red hair is a prerequisite for the job. #westsidebestside #redheadsrule

[Sam VWM @SamvsVWM]

Sam's list of people he loves. @NiallOfficial came in first, his friends second and family a distant 3rd. 😂

#vwm #vwmfamiliesfoundation #vwmff #livingwithaterminalillness #RareDisease #NiallHoran #superfan #Leukodystrophy #vanishingwhitematterdisease

[Sam VWM @SamvsVWM]

Yup, wearing his tuxedo to school.

#tuxedo #samstyle #dapperdresser
#vwmff #vwm #findacureforvwm #samvsvwm #vanishingwhitematterdisease #leukodystrophy #vwmfamiliesfoundation #livingwithaterminalillness #leukodystrophyawareness #sambuck #fashionisto #kidfashion

[Allyson Buck @DosyB]

Who would have thought @oldspice should be such a hit? James decided he needs to start wearing deodorant (he doesn't) - last week he decided to try Daddy's but couldn't find it and ended… https://t.co/EDHhaIyy8A

[Allyson Buck @DosyB]

Happy Holidays everyone! https://t.co/dncJ58DnNm

[Sam VWM @SamvsVWM]

Sam & @NiallOfficial!

@onedirection #niallhoran #samvsvwm #vwmfamiliesfoundation #vwmff #vanishingwhitematterdisease #livingwithaterminalillness #1D #JingleBall2019 #JingleBall @TheGarden

[Sam VWM @SamvsVWM]

Grateful to Sam's para for capturing this epic performance in chorus today
@taylorswift13 sums it up best:
"I keep cruising, can't stop, won't stop grooving
It's like I got this music in my mind saying it's gonna be alright"
This kid brings us so much joy (and laughter) every day

[Allyson Buck @DosyB]

Halloween done.

#sgtpepperslonelyheartsclubband #sgtpepper #beatles #yellowsubmarine @paulmccartney ringostarrmusic #vwmff #vwm #findacureforvwm #samvsvwm #vanishingwhitematterdisease… https://t.co/yQsoo4DQuY