DownSyndrmePregnancy

University of Kentucky program providing balanced, honest, compassionate info & support for parents in their pregnancy after a Down syndrome diagnosis.

[DownSyndrmePregnancy @DownSynPreg]

Come chat with us at booth 104 about how to earn 0.5 free CEUs for our online course thanks to a generous sponsorship from the @NDSS! #NSGC22

[DownSyndrmePregnancy @DownSynPreg]

We don’t have any fancy snacks or swag at booth 104, but we do have awesome and free nationally-recommended patient resources about genetic conditions. Come visit us during the reception! #nsgc22

[Brian Skotko @brianskotko]

The @US_FDA has issued a warning about misleading marketing from #NIPT prenatal testing companies: https://t.co/Gs0BikORZ8

[U.S. FDA @FDA]

Today we're warning the public of false results and other risks associated with non-invasive prenatal screening (NIPS) tests, also called cell-free DNA tests or non-invasive prenatal tests (NIPT). https://t.co/jVyfJYcYZT - @FDADeviceInfo

[Katie Stoll @katie_stoll]

I am a genetic counselor who has been concerned about the overselling of prenatal genetic tests for years. I was glad to see this safety communication published by @US_FDA. And I have concerns about some of the misinformation in this recent segment on @GMA. Fact check thread/

[DownSyndrmePregnancy @DownSynPreg]

@Matt_Tschirgi Don’t we all 😂

[DownSyndrmePregnancy @DownSynPreg]

Waiting Game: This article describes the experiences of women who received blood tests or ultrasound findings indicating high chances for Down syndrome but declined an amnio or CVS to know with more certainty. https://t.co/NvEYJ5ZWfo

[DownSyndrmePregnancy @DownSynPreg]

“Coping with Loss: Down Syndrome”: For those families of children with Down syndrome who experience miscarriage, stillbirth, or loss. https://t.co/AGfIC4r7ao

[DownSyndrmePregnancy @DownSynPreg]

What will baby need? (It’s a Baby Shower!): This article includes a list of baby shower items recommended by other moms for babies with Down syndrome to celebrate and prepare for the birth of your little one. https://t.co/azrGcMBSuN

[DownSyndrmePregnancy @DownSynPreg]

Request brochures for medical offices or gift baskets that show where to find all of our free Down Syndrome Pregnancy and Lettercase online resources: https://t.co/1zLlcSf4H0

[DownSyndrmePregnancy @DownSynPreg]

Who was I then? Who am I now?: This article describes how children with Down syndrome have changed their parents over time. https://t.co/qdGTGLI3ut

[DownSyndrmePregnancy @DownSynPreg]

Request brochures for medical offices or gift baskets that show where to find all of our free Down Syndrome Pregnancy and Lettercase online resources: https://t.co/1zLlcRXtPs

[DownSyndrmePregnancy @DownSynPreg]

Working Moms: This article talks about different ways working moms coordinate their schedules and childcare to make it possible to be a parent and also work. https://t.co/bvadxqierK

[DownSyndrmePregnancy @DownSynPreg]

“Welcoming a Newborn with Down Syndrome”: Book for parents of newborns with Down syndrome. Covers topics like adjusting to a diagnosis, preparing siblings, medical issues, preparing for the future, etc. Print and free online. https://t.co/QzDF1rSuN1

[DownSyndrmePregnancy @DownSynPreg]

Your Prenatal Care: This article discusses how extra medical care can be helpful during a pregnancy when the baby has Down syndrome. https://t.co/U9YMAruXtU

[DownSyndrmePregnancy @DownSynPreg]

Libros gratis: "Del diagnóstico al nacimiento”: Una guía para las mujeres embarazadas de un bebé con síndrome de Down" y "La bienvenida a un bebé con síndrome de Down: Una guía para nuevos padres https://t.co/1rtSF1CbyT

[DownSyndrmePregnancy @DownSynPreg]

Happy Heart Health Month! Heart Moms: This article covers articles and resources about heart conditions common to babies with Down syndrome and shares stories from parents who have experienced surgery. https://t.co/U8g1VTlaaE

[DownSyndrmePregnancy @DownSynPreg]

“Diagnosis to Delivery”: Book for parents preparing for the birth of a baby with Down syndrome. Covers preparing for NICU, telling friends and family, preparing sibling & more. Print or free online. https://t.co/NPUPkT371g

[DownSyndrmePregnancy @DownSynPreg]

Libros gratis: "Del diagnóstico al nacimiento”: Una guía para las mujeres embarazadas de un bebé con síndrome de Down" y "La bienvenida a un bebé con síndrome de Down: Una guía para nuevos padres https://t.co/1rtSF1CbyT

[DownSyndrmePregnancy @DownSynPreg]

Creating & Evaluating Your Birth Plan: Provides templates for birth plans & doctor letters from expectant moms to their obstetricians about their concerns, expectations & desires for their pregnancy when preparing for the birth of a baby w/ Down syndrome. https://t.co/RXfPlP82VL