Snapped Dragon

I like desserts, romance novels, and nature. Quite unfortunately, I seem to have angered some sort of migraine demon. PhD student.

[Snapped Dragon @DragonSnapped]

Anyone remember this and have a link? I can’t remember the activist’s name, but I do remember she passed away at a fairly young age a couple years ago. US-based. She had a background in law and dealt with chronic pain and diabetes.

[Snapped Dragon @DragonSnapped]

#DisabilityTwitter , I need your help! Several years ago, a disability activist wrote a beautiful open letter about how public health professionals often have an “us vs them” mindset about poor/sick ppl and asking: who is ‘them’ and why aren’t they part of the convo?

[Snapped Dragon @DragonSnapped]

@beth_morton A3. Ugh, I don’t really want to admit this, but if an insurance issue doesn’t go away after one nice attempt on my part, I cope by putting on my pretentious health economist persona for round two of the argument. #MigraineChat

[Snapped Dragon @DragonSnapped]

@sarie_ellen @beth_morton Yep, I spent years ignoring GI pain because it wasn’t as bad as my migraines. Although once I finally addressed it, there was some relief in it turning out to be a fixable issue, unlike my migraines seem to be #MigraineChat

[Snapped Dragon @DragonSnapped]

@beth_morton A1. I think this has mostly happened when I was trying to do multiple time-intensive treatments. I was seeing a neurologist, a PT, and an osteopath, and they all gave me exercises. None helped and everyone was criticizing me. I felt overwhelmed and guilty #MigraineChat

[Snapped Dragon @DragonSnapped]

@HemingwayMuse @beth_morton A1: Resentment at all the STUFF everything seems to think I *should* be doing to get better! (E.g., daily cardiovascular exercise, food stuff that a rando made up with no evidence). Plus, guilt about not doing all of it at 100% all the time. #MigraineChat

[Snapped Dragon @DragonSnapped]

New from Health Economics: threatening to take away people’s disability insurance may worsen their mental health. Y’all. This got published in a wildly competitive journal in a field where nearly all of the historical lit on disability is about “fakers”

https://t.co/2jVRo7p0pB

[Snapped Dragon @DragonSnapped]

Turns out there is a grim satisfaction to recommending reject on bad medical papers written by MDs who clearly know nothing about research.

[Snapped Dragon @DragonSnapped]

@emilygayle99 @beth_morton I love massages but can’t handle lying face down with my face in the face cradle thing. My masseuse is really good about managing to work on my neck and shoulders while I’m lying face up.

[Snapped Dragon @DragonSnapped]

@lyzl Yeah, pretty sure being married to either of my grandfathers would have been hell. Also, my maternal grandfather claimed to be a windower and when my mom looked it, discovered that my grandfather had divorced the lady after her cancer dx and my grandma was actually his third wife

[Snapped Dragon @DragonSnapped]

@cronewitchswamp @beth_morton I took hormonal birth control pills continuously (ie, skipping the placebo week) to see if it helped my migraines. It didn’t really and I felt like my body didn’t like it. But, I only tried this after my menstrual migraines had transformed to chronic.

[Snapped Dragon @DragonSnapped]

@beth_morton @SMauro1622 A4. I am going to Venice next month and I’m SO PSYCHED for blown glass stuff in Murano. Also, this is reminding me that I used to love traveling and how that is another hobby that I’ve had to make major changes to. #MigraineChat

[Snapped Dragon @DragonSnapped]

@SMauro1622 A4. I love blown glass, but I took one class and decided that with the heat and brightness, it wasn’t for me. What accommodations do you use? #MigraineChat

[Snapped Dragon @DragonSnapped]

@beth_morton A4. I got really into reading romance novels - the lightness and predictability mean that they don’t require much thought. Also, I play so much Stardew Valley. #MigraineChat

[Snapped Dragon @DragonSnapped]

@SMauro1622 @beth_morton A3. Oh yes, I keep earplugs in the kitchen for when I need the food processed or the exhaust fan over the stove. It’s amazing how loud that thing is! #MigraineChat

[Snapped Dragon @DragonSnapped]

@beth_morton A3. I love baking, but I definitely have to pace myself. Things where I can take a break and put the dough or whatever in the fridge for a while are best. #MigraineChat

[Snapped Dragon @DragonSnapped]

@MigraineAgain @KerriWolften @beth_morton Q2-Q3: yes, I have reduce the jumping, too - any movement that makes it feel like my brain is bouncing around in skull is a no for me! #MigraineChat

[Snapped Dragon @DragonSnapped]

@MaeNena73 @beth_morton A2: I feel like outside hobbies also often involve coordinating with other people, which is difficult with chronic migraines. I used to go indoor rock-climbing more, but having to cancel all the time sucks. #MigraineChat

[Snapped Dragon @DragonSnapped]

@HemingwayMuse @beth_morton A2. So glad you’re able to read again - reading romance novels when my pain is low or moderate is a great comfort to me. #MigraineChat

[Snapped Dragon @DragonSnapped]

@KerriWolften @beth_morton A2 - yes! I used to like Zumba, but now it’s intense and loud and a pandemic anyway #MigraineChat