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Dravet.org
@Dravet_org
Dravet.org is the leading global patient advocacy org for promoting and funding education, support, and research to find cures for Dravet Spectrum Disorders.
Deale, Maryland USA
Joined May 2011
2
Following
230
Followers
20
Posts
Dravet_org
retweeted
Steven C. George
@MrStevenGeorge
over 13 years ago
"It is No Use Walking anywhere to preach Unless Our Walking Is our preaching". ~St. Francis of Assisi
#Profession
&
#Relationships
☛
#Startup
Dravet.org
@Dravet_org
about 14 years ago
An important research update from Jing-Qyong Kang, MD, PhD. & A Mother's Day Wish http://t.co/hIpCtfc6
Dravet.org
@Dravet_org
over 14 years ago
Get the details on the IOM report, Epilepsy Across the Spectrum: Promoting Health and Understanding, in the latest iss…http://t.co/BtYgKonN
Dravet.org
@Dravet_org
over 14 years ago
@Dravet_org
Get the details on the IOM report, Information on the hotel accommodations at the DSD4 conference and more!
Who to follow
Dravet Syndrome Foundation
@curedravet
The mission of DSF is to raise funds for research into Dravet syndrome and related epilepsies, while offering support to patients and families.
Tracy Dixon-Salazar
@TracyDixonSalaz
Neuroscientist who found the drug that gave her daughter years. Now writing the book nobody gave her. CEO @lgsfoundation
stxbp1
@curestxbp1
Non-profit dedicated to ending STXBP1-related disorders, rare neurodevelopmental and epileptic encephalopathies, and spreading awareness of this rare disease.
Dravet.org
@Dravet_org
over 14 years ago
Latest news! http://t.co/TkZo44DN
Dravet.org
@Dravet_org
over 14 years ago
2012 http://t.co/APouK09b Biennial Conference https://t.co/hoHMumwd
Dravet.org
@Dravet_org
over 14 years ago
Institute Of Medicine Live Webcast http://t.co/VX9FedxN
Dravet.org
@Dravet_org
over 14 years ago
Register for the 2012 Family Medical Conference | March 29, 2012 Newsletter - http://t.co/jYJ6zLW2
Dravet.org
@Dravet_org
over 14 years ago
IOM Epilepsy Report to Be Released March 30 | March 14, 2012 Newsletter - http://t.co/YLmKOcEG
Dravet.org
@Dravet_org
over 14 years ago
http://t.co/APouK09b's Winter 2012 Newsletter is out! http://t.co/z3MI05uw
Dravet.org
@Dravet_org
over 14 years ago
Clobazam (ONFI) now available in US Retail Pharmacies https://t.co/tEqel1RO
Dravet.org
@Dravet_org
over 14 years ago
Bringing Us Closer to a Cure: 2011 Highlights - http://t.co/nXE5ECu8
Dravet.org
@Dravet_org
over 14 years ago
Currently reading http://t.co/LoawnYbB
Dravet.org
@Dravet_org
over 14 years ago
'Tis the Season of Hope . . . - http://t.co/38aY2KF9
Dravet.org
@Dravet_org
over 14 years ago
Lundbeck Announces Date of ONFI (Clobazam) Tablet Availability in the United States | http://t.co/APouK09b News - http://t.co/GTkCJASY
Dravet.org
@Dravet_org
over 14 years ago
http://t.co/GTkCJASY
Dravet.org
@Dravet_org
over 14 years ago
FDA Approves Onfi (Clobazam) http://t.co/3qpivYKy via
#constantcontact
Dravet.org
@Dravet_org
over 14 years ago
News from http://t.co/APouK09b http://t.co/gx9YDILK via
#constantcontact
Dravet.org
@Dravet_org
almost 15 years ago
Please take a moment to vote for dravet.org! Charity http://t.co/Ct54rwn
Dravet.org
@Dravet_org
almost 15 years ago
Important Research News from NYU & Dravet.org http://conta.cc/pdLOOw
#constantcontact
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