Duchenne Awareness UK

On a mission to raise much-needed awareness of the life-limiting genetic disease Duchenne Muscular Dystrophy

[Duchenne Awareness UK @DuchenneAware]

https://t.co/iHUA1iqlk2 https://t.co/iHUA1iqlk2

[Harveys journey @harveysjourney]

Concert he will be attending is in Birmingham... please help a fellow Duchenne friend #memories are everthing @birmingham_live @ArenaBirmingham @RitaOra #RitaOra #bigfan

[Duchenne Awareness UK @DuchenneAware]

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[Duchenne Awareness UK @DuchenneAware]

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[Duchenne Awareness UK @DuchenneAware]

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[Duchenne Awareness UK @DuchenneAware]

DUCHENNE & ANAESTHESIA

When anaesthetic is necessary it is absolutely vital the medical team are aware that a patient has Duchenne, it is also important that parents & carers are aware of anaesthetic risks in... https://t.co/QAd3Fv3hRu

[Duchenne Awareness UK @DuchenneAware]

https://t.co/FZQUtMLGDX

[Duchenne Awareness UK @DuchenneAware]

Things have been slow on the page lately, we’d love to know how far our posts are reaching. Could you help by letting us know where you are, and whether you have a Duchenne connection?

[Duchenne Awareness UK @DuchenneAware]

Still a long way to go, hurry up CRISPR! 🤞

https://t.co/Lt6hatGXao https://t.co/Lt6hatGXao

[Duchenne Awareness UK @DuchenneAware]

Today we welcomed the 1000th member to our parents group Duchenne Parents Zone. If you’re in the UK or Ireland and are the parent or legal guardian of someone with Duchenne do come and join us 💚

https://t.co/aqGisBQgNY https://t.co/aL9BgjVMwO

[Duchenne Awareness UK @DuchenneAware]

https://t.co/CcY11WWJJN

[Duchenne Awareness UK @DuchenneAware]

BONE HEALTH IN DMD

A new study on bone health in DMD comparing boys on different steroid regimes has found that those on daily deflazacort are at the highest risk of of fractures, including spinal compression fractures.

Find out more here:... https://t.co/RrGGk0xKWD

[Duchenne Awareness UK @DuchenneAware]

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[Duchenne Awareness UK @DuchenneAware]

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[Who Really Cares? @TheParentCarer]

Travelling with disabled 6 year old son by train and gate staff tells me “it’s not my job to help you with the wheelchair ramp” and rolls her eyes at me... absolutely disgusted and appalled by such exclusion. Rectify this immediately @greateranglia - my son deserves better. 🤬

[Duchenne Awareness UK @DuchenneAware]

Teen with Duchenne muscular dystrophy to model in fashion show in Las Vegas https://t.co/ktZ53ofQ2N

[Duchenne Awareness UK @DuchenneAware]

https://t.co/aIDWtecGw0

[Duchenne Awareness UK @DuchenneAware]

This weeks featured family are The Stride family from Telford. Sally and Chris are parents to Harry, who has just turned 16 and has Duchenne Muscular Dystrophy. Sally also has two daughters, Chloe, 20, and... https://t.co/uxuAtre598

[Duchenne Awareness UK @DuchenneAware]

A wonderful ambassador for Duchenne https://t.co/pGUhVAidjM

[Duchenne Awareness UK @DuchenneAware]

Great awareness of Duchenne at Twickenham this afternoon, these three lovely lads done the Duchenne community proud 💚