Dystonia IMPACT

[Dystonia IMPACT @Dystonia_IMPACT]

@scope @PeepsHie @RareBeacon @CpScotland @CDAUK2024 @DystoniaUK @CP_Cymru @BrainTumourOrg @SUCCESS_Charity @OscarsCharity @rarediseasesnet @BuddyBearTrust2 @action_cp @TheBrainCharity @CPMidlands @CerebraCharity

[Dystonia IMPACT @Dystonia_IMPACT]

We are still recruiting #children with #Dystonia for our qualitative study, including dystonia in #CerebralPalsy and #HemiDystonia
If your child would like to take part, complete an expression of interest here: https://t.co/A1hKwDD3IU
Or contact us at [email protected]

[Dystonia IMPACT @Dystonia_IMPACT]

We are still recruiting to our #Dystonia Impact qualitative study! We are particularly looking to hear from #fathers & families with children with #genetic and #idiopathic diagnoses. Register your interest: https://t.co/A1hKwDDBys or contact the team at [email protected]

[Dystonia IMPACT @Dystonia_IMPACT]

We're looking for children & young people, parent/carers and healthcare professionals to take part in our Delphi to understand what's most important to #children with #dystonia (including in #CerebralPalsy) and their #families

Find out more & take part: https://t.co/fCnexFgsZI

[Dystonia IMPACT @Dystonia_IMPACT]

@DystoniaUK @rarediseaseuk @GeneticAll_UK @RareBeacon @RDRUKHub @TheBrainCharity

[Dystonia IMPACT @Dystonia_IMPACT]

We are still recruiting to our #Dystonia Impact qualitative study! We are particularly looking to hear from #fathers & families with children with #genetic and #idiopathic diagnoses. Register your interest: https://t.co/A1hKwDDBys or contact the team at [email protected]

[Dystonia IMPACT @Dystonia_IMPACT]

@DystoniaUK @GeneticAll_UK @RareBeacon @CpScotland @scope @DCPcampaign @action_cp @CPMidlands @CP_Cymru @CDAUK2024 #dystonia

[Dystonia IMPACT @Dystonia_IMPACT]

The Dystonia IMPACT team are recruiting #children & young people with #dystonia & their parents to take part in interviews to find out what matters most to them.
Register your interest: https://t.co/A1hKwDD3IU

Or contact the team at [email protected] or 07542 170 649

[Dystonia IMPACT @Dystonia_IMPACT]

The Dystonia IMPACT team are recruiting #children & young people with #dystonia & their parents to take part in interviews to find out what matters most to them.

Register your interest: https://t.co/A1hKwDD3IU

Or contact the team at [email protected] or 07542 170 649

[Dystonia IMPACT @Dystonia_IMPACT]

The Dystonia IMPACT team are recruiting children & young people with dystonia & their parents to take part in interviews to find out what matters most to them.

Register your interest: https://t.co/wHvNKvV1LM

Or contact the team at [email protected]

[ICPCN @ICPCN]

Do you work with children and young people with hyperkinetic movement disorders?

@QMUL are developing a core outcome set to improve care & research and they need your input!

📝 Complete the survey: https://t.co/dNwqZlFrE7

#DystoniaIMPACT #HyperkineticMovementDisorders #ClinicalResearch

[Dystonia IMPACT @Dystonia_IMPACT]

The Dystonia IMPACT team are recruiting children & young people with dystonia & their parents to take part in interviews to find out what matters most to them.

Register your interest: https://t.co/wHvNKvV1LM

Or contact the team at [email protected]

[Hannah Scott @HannahM_Scott20]

📢 Calling all healthcare #hcp #ahp, #SocialCare, & #education-based professionals working with #children with hyperkinetic movement disorders #HMD including #Dystonia & dyskinetic/mixed #CerebralPalsy to take part in our @Dystonia_IMPACT survey:

➡️ https://t.co/A0NMf9TrmH

[Hannah Scott @HannahM_Scott20]

Excited to be presenting our poster from @Dystonia_IMPACT on “Enabling people from underrepresented groups to take #PPI roles in #paediatric #dystonia research” today at 9:40am CEST at poster screen 7 at #EACD2025 #IAACD2025 @HortensiaGimeno @KateKnighting @BartsBoneJoint

[Dystonia IMPACT @Dystonia_IMPACT]

We are looking for #children and #YoungPeople with #MovementDisoders including #Dystonia to join our Young Persons Advisory Group! Ask your parent/carer to contact the research team at [email protected] to find out more or get involved and help us shape our research!

[Dystonia IMPACT @Dystonia_IMPACT]

We are looking for adults with #LivedExperiance and #parents to join the #Dystonia IMPACT patient and family advisory group! Contact the research team at [email protected] to find out more or get involved and help us shape our research!