Today is #RareDiseaseDay! There are approximately 25K people in the U.S. living with #EpidermolysisBullosa. Please take some time today to read & share the stories of some of the incredible people that make up our strong, proud, and rare community: https://t.co/1foY9lCsjG
Back to school after almost a year. She didn’t think she’d be able to do dance but we signed her up and the teacher is just awesome. We couldn’t ask for anything more. These are the times EB takes a backseat and my girl gets to enjoy what she loves! @RMSPrincipal07
Tonight's episode of the @BigBangTheory will honor Isaiah Zarate, who lives with EB and is a longtime fan and friend of Kaley Cuoco. Thank you for spreading awareness, Kaley! (via @WomensHealthMag) https://t.co/RBcgNmBIKS