ECD Global Alliance

The ECD Global Alliance is the only nonprofit worldwide solely dedicated to people living with #ErdheimChester disease #histocytosis #histocyte #raredisease

[ECD Global Alliance @ECDGA]

Save the Date! Join the ECD community in Glasgow, Scotland, August 27–28, 2027, for the 12th Annual ECD Patient & Family Gathering.

#ECDGA #ErdheimChesterDisease #RareDisease #PatientCommunity #Glasgow2027 #SaveTheDate #TogetherWeMakeRareVisible
https://t.co/Ljm8RBiQzs

[ECD Global Alliance @ECDGA]

Hydration matters, especially with ECD. Keep water handy, snack on watermelon & cucumber, and build small habits that support your well-being.

#raredisease #ecdga #erdheimchester
https://t.co/e7Xjp2uy5w

[ECD Global Alliance @ECDGA]

You went above and beyond and because of you, hope goes further. Thank you for your generosity, dedication, and unwavering support of the ECD community. Together, we’re making a lasting difference.

#raredisease #ecdga #erdheimchester
https://t.co/mKamIJIl8Z

[ECD Global Alliance @ECDGA]

Today’s the last day! There’s still time to support the ECDGA Virtual Fun Run, Walk or Roll. Every donation helps advance research, education, and support for the ECD community. Finish strong with us!

#raredisease #ecdga #erdheimchester
https://t.co/Tv3ABbdDY3

[ECD Global Alliance @ECDGA]

Only 48 hours left! Every donation is still being matched, doubling your impact for the ECD community. Don’t wait help us unlock the full match before time runs out.

#raredisease #ecdga #erdheimchester
https://t.co/xN9viPm0wE

[ECD Global Alliance @ECDGA]

Because of Team Rocky Mountain High, hope grows. Every mile and every effort strengthens the ECD community. Thank you for leading the way.

#ECDGA #VirtualFunRun #WalkOrRoll #TeamRockyMountainHigh #RareDisease #ErdheimChesterDisease #TogetherForECD
https://t.co/LFa82HjLCx

[ECD Global Alliance @ECDGA]

Every step, every donation, every shared story you make this community stronger. Thank you for standing with ECDGA and helping bring hope, support, and awareness to families around the world.

#raredisease #ecdga #erdheimchester
https://t.co/N2zkY9a8EH

[ECD Global Alliance @ECDGA]

Every step, every donation, every shared story you make this community stronger. Thank you for standing with ECDGA and helping bring hope, support, and awareness to families around the world.

#raredisease #ecdga #erdheimchester #FunRun
https://t.co/ZzDXg68HY6

[ECD Global Alliance @ECDGA]

We’ve raised $6,545 toward our $10,000 match goal—and every donation is still being doubled. Help us unlock the full match and create an even greater impact for the ECD community.

#raredisease #ecdga #erdheimchester
https://t.co/4fbr1PcDcZ

[ECD Global Alliance @ECDGA]

The finish line is in sight! This is your final chance to rally your team, boost your fundraising, and make every mile count for the ECD community. Let’s finish strong together.

#raredisease #ecdga #erdheimchester
https://t.co/mTrDIFEoCN

[ECD Global Alliance @ECDGA]

The clock is ticking only a few days left to double your impact. Help fund research, education, and support for the ECD community before the match ends.

#raredisease #ecdga #erdheimchester #RunWalkRollForECD #ECDAwareness #DoubleTheImpact #TeamECD
https://t.co/bEAMHbw8lN

[ECD Global Alliance @ECDGA]

Every dollar makes a difference. Small contributions add up to real impact supporting patients, advancing research, and strengthening the ECD community.

#raredisease #ecdga #erdheimchester #RunWalkRollForECD #ECDCommunity #FundraisingChallenge
https://t.co/hhKyPLE00C

[ECD Global Alliance @ECDGA]

Double your impact today. Every gift helps advance research, expand patient support, and raise awareness for ECD and right now, every dollar goes twice as far.

#raredisease #ecdga #erdheimchester #RunWalkRollForECD #RareDiseaseAwarenes #DoubleYourImpact3
https://t.co/7UziUJzWS3

[ECD Global Alliance @ECDGA]

Double your impact this week! Every dollar raised brings us closer to stronger support, greater awareness, and more hope for the ECD community. Now is the time to make every contribution count.

#raredisease #ecdga #erdheimchester
https://t.co/h0IReDUHgr

[ECD Global Alliance @ECDGA]

Want to be featured? Share your Fun Run moments teams, miles, and meetups and you could be spotlighted during the event!

#raredisease #ecdga #erdheimchester #RunWalkRollForECD #ECDCommunity #FacesOfECD #TeamECD
https://t.co/1OyoBpIMSR

[ECD Global Alliance @ECDGA]

Missed the ECDGA events—or want to revisit key moments? Now you can access expert insights, research updates, and global discussions anytime.

#raredisease #ecdga #erdheimchester #ECDAwareness

https://t.co/JRncJEVuWF

[ECD Global Alliance @ECDGA]

Week 2 Challenge is here!
Recruit 5+ teammates and earn a $150 bonus for your team. Invite your people and start building every step supports the ECD community.

#raredisease #ecdga #erdheimchester #RunWalkRollForECD #ECDAwareness #TeamChallenge #TeamECD
https://t.co/yxMNfOuoss

[ECD Global Alliance @ECDGA]

Real progress in rare disease starts with conversations. At AAD, experts and future clinicians came together to share knowledge, ask questions, and push ECD awareness forward—one interaction at a time.

#Healthcare #MedicalEducation #ErdheimChesterDisease
https://t.co/9tSAubhAB9

[ECD Global Alliance @ECDGA]

Registration is now open for the 2026 Patient & Family Gathering in Birmingham, Alabama, April 29–30. Join patients, families, and caregivers to connect, learn from experts, and explore the latest research. Reserve your hotel by April 6.
https://t.co/I7wxB7HmpI

[ECD Global Alliance @ECDGA]

Today is Rare Disease Day. I’m Ziggy and along with ECDGA I’m proud to stand with every individual and family affected by rare disease. Together, we are rare—but never alone.

#raredisease #ecdga #erdheimchester #ecd #rareisneveralone #rarediseaseday #histiocytosis