EJS ACT-PD

Designing the first MAMS trial for patients with Parkinson’s disease, funded by the Edmond J. Safra Foundation led by @foltynie @UCL & @CamilleBCarroll @PlymUni

[EJS ACT-PD @EJS_ACT_PD]

We’re proud that the EJS ACT-PD Initiative is a finalist for the Made with Patients Awards 2026 by PFMD! 🎉

Being recognised as a finalist reflects our commitment to embedding lived experience into research from the beginning!

#MadeWithPatientsAwards #ParkinsonsResearch

[EJS ACT-PD @EJS_ACT_PD]

🚨 We are aware of issues with our usual registration of interest link for the #EJSACTPD trial. This is due to online updates.

If you’re interested in taking part, you can still register your interest using this link in the meantime:
🔗https://t.co/XvIMtW9qyv

[EJS ACT-PD @EJS_ACT_PD]

🎉 Over 2,000 people have joined JPR@Research+Me - connecting people with Parkinson’s to research opportunities.

Know someone with Parkinson’s? Signing up takes minutes.

🔗 Link in bio or scan the QR code

#JPR #ParkinsonsResearch #ClinicalTrials #ParkinsonsCommunity

[EJS ACT-PD @EJS_ACT_PD]

🎥 Catch-up on the latest @PDFrontline webinar!

🧠 Learn about the #EJSACTPD trial, how you can get involved, and how our study fits into the wider Parkinson’s research landscape.

➡️ Watch here: https://t.co/J5026l1Azq

#ParkinsonsResearch #ClinicalTrials #PDFrontline

[PDFrontline🧬 @PDfrontline]

@CureParkinsonsT provided an event themed on MAMS Platforms (Multi-Arm Multi-Stage Trials).
Two prominent MAMS Platforms that had presentations at this event were EJS ACT-PD (we are providing the genetic sequencing) and SLEIPNIR (Norway).
#parkinsonsresearch #parkinsonsdisease

[EJS ACT-PD @EJS_ACT_PD]

We’re hiring a Clinical Research Associate (Fellow) at Newcastle University!

This is an exciting opportunity to join the #EJSACTPDtrial team and contribute to cutting-edge clinical research.

Apply by 25 November 2025!

🔗 https://t.co/ZPTqqvh4XM

#ClinicalResearch #AcademicJobs

[EJS ACT-PD @EJS_ACT_PD]

Joe Gregory is not just living with Parkinson’s — he’s helping shape the future of #Parkinson’s research.

Read how this #EJS ACT-PD Community Advisory Panel member is making an impact:

🔗https://t.co/KpaVgMgXCN

[EJS ACT-PD @EJS_ACT_PD]

🔍 Interested in Parkinson’s research? Check out this funded #PhD opportunity @UniofNewcastle

“Perceptions of digital outcome measurement in Parkinson’s disease”

Read more below:👉 https://t.co/yua9UhGbXX

📅 Apply by 12 Jan 2026

[The Science of Parkinson's @ScienceofPD]

HUGE news: The @EJS_ACT_PD multi-arm, multi-stage clinical trial platform for #Parkinsons is now live & recruiting! They are looking for 1600 participants, who will be randomised across 4 arms (3 diff. drugs & a placebo).
Want to get involved in research?
Here is an opportunity:

[EJS ACT-PD @EJS_ACT_PD]

We are excited to share the news that the #EJSACTPD trial has officially launched to recruitment! 🎉

Read more below about the worlds largest-ever clinical trial to stop or slow #Parkinsons and how you can get involved: ⬇️
#ParkinsonsResearch

[UCL Brain Sciences @UCLBrainScience]

🧵1/ The world’s largest-ever clinical trial to slow or stop Parkinson’s disease has officially launched — led by researchers at @UCLIoN and @UniofNewcastle. A major milestone in the fight against neurodegeneration.
https://t.co/1I09nAWE8o

[Parkinson's UK @ParkinsonsUK]

We’re incredibly proud to be supporting and co-funding the largest ever UK Parkinson’s research trial, which will test treatments that have the potential to stop or slow Parkinson’s progression. Carroll from the planning team is here to tell you more 👇

https://t.co/n6g0g3O4rk

[Cure Parkinson's @CureParkinsonsT]

We’re excited to announce that recruitment for the first multi-arm, multi-stage (MAMS) platform for Parkinson’s in the UK – @EJS_ACT_PD – is open. This project will continuously test new therapies that could impact Parkinson's progression: https://t.co/O3M15zbf2P #ejsactpd

[EJS ACT-PD @EJS_ACT_PD]

🧠 “The JPR registry will revolutionise how people like me find out about research.” – Phil, who has Parkinson’s & helped design JPR.
Help us connect more people to studies!

📰 Read more: https://t.co/WRwHeoGkFk
🔗 Sign up here: https://t.co/I9hiyiQLvF

#ParkinsonsResearch

[David Breen @breenneurology]

Great meeting at the Crick today. @EJS_ACT_PD promises to be a game-changing trial platform. Grateful for the meaningful support to deliver the study in Scottish sites. @NRS_NDN @AnneRowlClinic @EdinburghParki2 @ParkinsonsUKSco @GordonWDuncan

[The Science of Parkinson's @ScienceofPD]

Very excited to be at the @EJS_ACT_PD annual meeting today - an extremely ambitious & exciting new multi-arm, multi-stage clinical trial platform for testing potentially disease modifying therapies for #Parkinsons - @CureParkinsonsT is proud to be one of the funders involved

[EJS ACT-PD @EJS_ACT_PD]

Want to get involved in Parkinson’s Research? 🔊

Research+Me has launched 'Join Parkinson’s Research' (JPR@Research+Me) - a new online registry aiming to connect people with Parkinson’s to research opportunities!

👉 Register today at https://t.co/mqZTJS8O4b or scan the QR code:

[EJS ACT-PD @EJS_ACT_PD]

It was a pleasure to be part of the @CureParkinsonsT webinar on Advancing Parkinson's Trial Designs! Great to share updates about our progress on the upcoming @EJS_ACT_PD trial 🙌
Tune in here to find out more: https://t.co/m2lwUvGgON

[EJS ACT-PD @EJS_ACT_PD]

We had a brilliant few days celebrating exciting new developments in the world of clinical trials methodology. The EJS ACT-PD team were delighted to present 6 posters this year at ICTMC! You can find these in our poster hall here: https://t.co/yTfazy1LXQ #ICTMC2024 @ictmc2024

[UK Parkinson’s Disease Clinical Studies Group @UK_PD_CSG]

The @UK_PD_CSG now has 90+ members!

Thank you to all of our members for supporting #Parkinsons clinical research across the UK representing a variety of professions & geographical locations.

If you're involved or interested in Parkinson's research, visit https://t.co/5x0ZPzWR7L

[Shafaq @Dr_SF_Hussain]

Had such a lovely @EJS_ACT_PD annual information day - made all the better by bumping into these 2 lovelies @morethanatremor @JoeGregory100 and finally getting to meet the lovely Helen 😊