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ELLAwareness for SMA
@ELLAwarenessSMA
Ella (born June 10, 2010) has SMA Type 2. She has a blog so you may follow her journey. Her family raises funds for SMA research via Mama Bracelets.
Joined August 2013
118
Following
134
Followers
58
Posts
ELLAwareness for SMA
@ELLAwarenessSMA
over 11 years ago
Help Send The Castens to the 2015 FSMA Conference! http://t.co/z8DnEKho4E
@PayItSquare
ELLAwareness for SMA
@ELLAwarenessSMA
about 12 years ago
Ella's Corner: Found...(by Michael) http://t.co/MZZpLydRgO
ELLAwareness for SMA
@ELLAwarenessSMA
about 12 years ago
Ella's Corner: I'm Gonna Keep It...(by Michael) http://t.co/2xsTuKbYEG
ELLAwareness for SMA
@ELLAwarenessSMA
about 12 years ago
Ella's Corner: Unexpected News (by Lindsay) http://t.co/1zvgUsG0UG
Who to follow
Michael Casten
@mcc2oreos
Father of 3 children; youngest with SMA (Type 2). 4th Grade Teacher & K-5 Tutor
rhondarenee
@RhondaRenee69
Debbie Cuevas
@debralyn34
Love my family, love NY, love my Yankees. Cure SMA.
ELLAwareness for SMA
@ELLAwarenessSMA
about 12 years ago
Ella's Corner (4.3.14)...http://t.co/CqRIJGrYnV
ELLAwareness for SMA
@ELLAwarenessSMA
about 12 years ago
Ella's Corner: That Tiny Space; So Filled...(by Michael) http://t.co/9ThqC5M0X3
ELLAwareness for SMA
@ELLAwarenessSMA
about 12 years ago
Come join us for a night of white elephant bingo to raise fund for Ella's home modifications. Follow link for info https://t.co/Fz0Nquy2Qj
ELLAwareness for SMA
@ELLAwarenessSMA
about 12 years ago
Ella's Corner: Our Next Life Chapter: A New House! (by Michael ... http://t.co/9RNrOctOKQ
ELLAwarenessSMA
retweeted
The Castens
@Caring4Castens
over 12 years ago
We have an offer in on a house...playing the waiting game now.
ELLAwareness for SMA
@ELLAwarenessSMA
over 12 years ago
Ella's Corner: Short Time-Long Life...(by Michael) http://t.co/24cr7aPNvA
ELLAwareness for SMA
@ELLAwarenessSMA
over 12 years ago
Three's-a-Charm. Buy any 3+ ellaWEAR items @ 75% off each & receive an extra 15% off thru 2.2.14 at http://t.co/W7DuCQybbo
ELLAwareness for SMA
@ELLAwarenessSMA
over 12 years ago
Ella's Corner (12.30.13): http://t.co/28MyC5p4Ok
ELLAwareness for SMA
@ELLAwarenessSMA
over 12 years ago
New items...restocked items. Great gifts while supporting Ella http://t.co/gxYYBrIbxj
ELLAwareness for SMA
@ELLAwarenessSMA
over 12 years ago
Ella standing by herself...whoa!!! https://t.co/hLmruzL8zh
ELLAwareness for SMA
@ELLAwarenessSMA
over 12 years ago
Dr. Kaspar's gene therapy gets fast track status...WOW!! http://t.co/w4aLX7gvat
ELLAwarenessSMA
retweeted
The Castens
@Caring4Castens
over 12 years ago
http://t.co/8PPhUqQsVJ new post
ELLAwarenessSMA
retweeted
The Castens
@Caring4Castens
over 12 years ago
We sit counting our blessings. Thank you to Skinny Sweet for hosting the fundraiser today. Thank you everyone for Caring for The Castens.
ELLAwarenessSMA
retweeted
The Castens
@Caring4Castens
over 12 years ago
Oct 12 @ 12-9pm at 545 Roosevelt, Glen Ellyn. 20% of proceeds go to Ella Casten...
ELLAwareness for SMA
@ELLAwarenessSMA
over 12 years ago
Ella's Corner: 23 to 33...(by Michael) http://t.co/1hnVZnlite
ELLAwareness for SMA
@ELLAwarenessSMA
over 12 years ago
Ella's Corner: http://t.co/lFEVZyFwye
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