EndoPcoSOS

Connecting with women with diagnosed or suspected endometriosis and/or PCOS for support, sharing and collective action #deedsnotwords

[EndoPcoSOS @ENDOPCOSOS]

Breaking with my hiatus to share a few dreams here:I wish we had healthcase systems that:
- Do not take a 'one size fits all' approach
- Do not treat women with disdain for wanting more personalised support
- Truly work for women
You're not awkward for challenging broken systems

[EndoPcoSOS @ENDOPCOSOS]

It's hard to listen to people tell you not to get angry about an issue that doesn't affect them.If the healthcare system actually worked for those with conditions like PCOS or Endo, I'm sure I'd be able to 'chill out' too... this is why community & allyship is so important!

[EndoPcoSOS @ENDOPCOSOS]

@EndometriosisSA Such important reminders. Thank you for sharing ❤️

[𝐁𝐨𝐧𝐭𝐥𝐞 | Endometriosis South Africa🎗 @EndometriosisSA]

Endometriosis Reminders ✨

- Not everyone can afford surgery
- Not everyone has supportive partners/family
- Not every medication works for everyone
- Self-care is essential, not selfish
- Your pain is valid, even if others can’t see it
- You’re not alone

💛

#endometriosis

[EndoPcoSOS @ENDOPCOSOS]

Finally, some sense! And on this subject...Shout-out to the PE teacher who ripped up a note my mum wrote when I was in agonising pain & said loudly so others could hear: 'Periods AREN'T a reason not to do P.E.' 🤯

https://t.co/8YocTjzs1k

[EndoPcoSOS @ENDOPCOSOS]

💯

[Dimitrios Tsatiris MD @DrDimitrios]

Medicine is full of bias against:

- Women
- Interns
- General Practitioners
- Ethnic and Racial Minorities
- Graduates of Foreign Medical Schools
- Anyone not a doctor

Improving the culture of medicine starts by treating each other in a more humane and compassionate manner.

[EndoPcoSOS @ENDOPCOSOS]

@EndometriosisSA I think that sadly for a lot of people there's a strong element of 'seeing is believing'. Sure, there are some annoying symptoms of PCOS that I can physically point out, but with painful periods/endo, the bone-deep pain and debilitating migraines are totally invisible

[EndoPcoSOS @ENDOPCOSOS]

That moment when someone close to you, who never quite seemed to fully believe your symptoms actually sees you during a flare up...
#Endo #PCOS #WomensHealth #Endometriosis #Heavyperiods

[BBC News (UK) @BBCNews]

Period pain policy reversed as school apologises https://t.co/uKJnpwnc43

[EndoPcoSOS @ENDOPCOSOS]

What a compassionate message ❤️

[Miranda Hart @mermhart]

Sending huge love to all my fellow ME sufferers and all those with chronic conditions. My book doesn’t just speak to that but that was my story, and I know that sadly there a millions who also suffer from similar. Big hopeful hug to you ❤️

[ThePOTSPostman @ThePOTSPostman]

“Maybe if you didn’t think about your illness, it wouldn’t effect you so much”

I wish it worked that way!

Unfortunately, chronic illness doesn’t take a break when I’m not thinking about it.

[Verity (PMOS UK) @veritypmos]

Get your #PCOSMerch & help raise awareness whilst supporting Verity’s work in fighting for better outcomes for all 💜💜

https://t.co/xLlI2xmrQv

[EndoPcoSOS @ENDOPCOSOS]

@EndometriosisSA 💯 - they met me at my door earlier and I could see the shock on their face at how pale I was. I saw their realisation of:.'oh, wow. This is actually real.' There's no turning away from it then!

[Anna 🎗 @BattleWithEndo]

The fact we still 16 years on from when I was dismissed & ridiculed at times in school for my painful periods (which was later diagnosed in stage 4 severe endometriosis), & we are still no further forward is beyond me

[EndoPcoSOS @ENDOPCOSOS]

Ah, TENS machine...we meet again!

[EndoPcoSOS @ENDOPCOSOS]

People + healthcare + profit = a broken system where vulnerable people get taken advantage of

#healthinequity #womenshealth #healthcare #healthempowerment #PCOS #Endo #peopleoverprofit

[EndoPcoSOS @ENDOPCOSOS]

@EndometriosisSA People don't realise how much of a privilege it is to be able to turn away from discomfort, until they are faced with discomfort themselves! A chronic illness teaches you that & I don't think that empathy ever leaves you. Take care xx

[EndoPcoSOS @ENDOPCOSOS]

@EndometriosisSA I mostly use my personal instagram to raise awareness of my condition(s). It gets very little reaction,so feels like I'm talking into a void/being 'dramatic' or 'negative'. But posting just photos of beaches etc does not reflect the reality of my life!

[EndoPcoSOS @ENDOPCOSOS]

@EndometriosisSA ...and they can then comfort themselves with not having to address the difficulties you are still facing. It's for reasons like this that I barely use Instagram these days. I may post a photo of a blue sky & a beach, & I may also be in crippling pain-all these things can be true!

[EndoPcoSOS @ENDOPCOSOS]

@EndometriosisSA I think a lot of people think in binary terms and don't get that we can be experience moments of joy, pain, heartbreak, frustration etc all in the space of one day, or even within a few hours. It's easier for people to conclude that if you show joy, everything's fine...

[EndoPcoSOS @ENDOPCOSOS]

The healthcare system does a great job of keeping women feeling small...because there's not enough money invested into women's health conditions, we're still mostly using models based on the male body etc. It's 2024. It's about time things changed. Women are being failed.