EPPigen

Ethical Preparedness Project in Genomic Medicine. A Wellcome Trust Collaborative award held by @bsmsmedschool & @UoS_Medicine. Led by @annekeluc & @ethixbird

[Edward Dove @EdwardSDove]

The duty to warn at‐risk relatives—The experience of genetic counselors and medical geneticists https://t.co/38kDREboF3

[Ethixbird @Ethixbird]

.@annekeluc what a great day’s work. Thank you for constantly doing your bit to ensure we understand the finer points of genomic medicine - so important for professionals, patients and public. @eppigen @wellcometrust

[Anneke Lucassen @annekeluc]

What a privilege to give evidence at science and tech committee with @mehurles and @Genomethics. The snippet here is also out in a BMJ piece this week with @rach_horton @cels_uos @eppigen @BritSocGenMed #DTC genetic tests

[Anneke Lucassen @annekeluc]

Great that @guardian covering poor performance of many #DTC tests w rare variants such as in BRCA1/ BRCA2. @BritSocGenMed Ethical implications @eppigen @wellcometrust @Ethixbird Preparedness of publics and professionals to navigate? Home genetic testing: https://t.co/tJxEeZmHv6

[Anneke Lucassen @annekeluc]

Ministers scrap plan to sell DNA tests to healthy people https://t.co/VDSVYbaMPe

[Anneke Lucassen @annekeluc]

Listen to the excellent @carolinefwright explaining reasons behind recent media headlines about #DTC genetic tests. https://t.co/JAEPnLGFEP : Call for crackdown on home genetic testing kits https://t.co/tJxEeZmHv6

[UK Biobank @uk_biobank]

UK Biobank is joining the Health Data Research Alliance - sharing health data in a trustworthy and ethical way for research and innovation is key to improving future health #research #health #bigdata

[Anneke Lucassen @annekeluc]

This reflects our clinical experience that individuals who sent their raw data from #DTC genetic test for secondary analysis had false positive results for rare variants such as BRCA1/2 and Lynch. @BritSocGenMed @eppigen 1/3

[Anneke Lucassen @annekeluc]

Woman conceived after rape of 13-year-old wants birth father prosecuted https://t.co/dwc3WtLr79

[Anneke Lucassen @annekeluc]

New bowel cancer test leads to screening rate rise https://t.co/z2wXn3cddl

[EPPigen @eppigen]

A few places still left come and join us for this event. #ethicalquandaries

[BSMS @BSMSMedSchool]

The @BSAMedsoc’s 'Ethical quandaries: blurred boundaries and transformations in genomic medicine' symposium takes place at BSMS on 11 June.

All staff, colleagues and friends are invited to join us. Book your place here: https://t.co/dcLIiAYFbA @eppigen

[EPPigen @eppigen]

Great to spend the day together - @wellcometrust @eppigen really is proving to be a great collaboration between @BSMSMedSchool and @SouthamptonUni. Thank you to our wonderful colleagues in @cels_uos for hosting and to @MirjamPlantinga for joining us.

[Anneke Lucassen @annekeluc]

Paid-for NHS genomic testing could undermine the 100,000 Genomes Project's work - BioNews ⁦from @Ethixbird⁩ https://t.co/tVsalU2Cor

[Bronwyn Parry @ParryBronwyn]

Delighted to announce the publication of my position piece on surrogate labour in India. Thanks to all my collaborators. This is open access so please retweet! Surrogate Labour: Exceptional for whom?: Economy and Society: Vol 47, No 2 https://t.co/O0pxlSZaVe

[EPPigen @eppigen]

Fantastic #EPPiGEN collaborators’ meeting at medical society London. We are so grateful for your input and expertise @Ajf3Angela @WrightKatharine @imvanlangen @marianverkerk @balemj @Prof_JonMont @ParryBronwyn and others!

[EPPigen @eppigen]

We are advertising 2 posts for @wellcometrust @EPPigen project. Research Fellow in Ethics/ Social science Southampton + BSMS. To collaborate + play a key role in work on ethical preparedness in Genomic medicine. Please share https://t.co/aguJLyb0xX and https://t.co/BmO9BUJdJI

[Anneke Lucassen @annekeluc]

We are looking to appoint senior RF ethics/ social science @wellcometrust @EPPigen collaborative award project. One in each location- Southampton and Brighton. To play a key role in our work on ethical preparedness in Genomic medicine. Please share: https://t.co/D6ze5oKeIr

[gabrielle samuel @gabriellesamue1]

Just out in @JME_BMJ - our paper with @Ethixbird @Sandi_Dheensa @annekeluc on "Towards a national genomics medicine service: the challenges facing clinical-research hybrid practices and the case of the #genomes100k" #100kGP #genome https://t.co/8OEQm1GIgk

[Anneke Lucassen @annekeluc]

Post lunch session #gecip @Ethixbird outlines our WT CA on @ethical preparedness @eppigen #eppigen beautifully