The EPSET Project. Working with patients, researchers and health professionals to find the most important outcomes to measure for adults with epilepsy.
Have your say to help develop a Core Outcome Set for future epilepsy clinical trials. We want to hear from 1) adults with epilepsy & their representatives 2) healthcare professionals and 3) researchers. Survey open now! https://t.co/j3CxKNbqRw
Round 2 of EPSET Project Survey is open, and will close on 9th December 2022!
For those that have completed Round 1 please check your email inboxes.
Many thanks for sharing your views and shaping future epilepsy treatment studies by defining the critical outcomes to capture.
For:
1. Adults with #epilepsy (18 years & older)
2. Advocates for adults with epilepsy (inc. family members & caregivers)
3. Healthcare professionals who regularly assess & treat adults with epilepsy
4. Researchers assessing effectiveness of epilepsy treatments
The EPSET Project Survey has been extended to 14th September!
The ILAE Big Data Commission want to hear your views on which outcomes should be prioritised in future research testing whether treatments for #epilepsy are effective and safe. Survey open now https://t.co/5jhUSOCPem
Do you have epilepsy, or treat people who have epilepsy? Take part in a 10-minute survey and tell us what's important to measure when deciding if epilepsy treatments work. Shape the future of clinical trials by sharing your views
@EPSETproject
https://t.co/dPGJrJMqk3
Queremos saber de 1) adultos con epilepsia y sus representantes 2) profesionales de la salud y 3) investigadores. ¡La encuesta está abierta ahora! https://t.co/e2zR6ohfiT (2/2) #epilepsy
Nous voulons entendre 1) les adultes atteints d'#épilepsie et leurs représentants 2) les professionnels de la santé et 3) les chercheurs. Enquête ouverte dès maintenant ! https://t.co/rSHLKDoBfn #epilepsy
@drcolindunkley@IlaeWeb The @CASTLE_Epilepsy group have developed and published Core Health Outcomes In Childhood Epilepsy (CHOICE) recently, using COMET methodology: https://t.co/XOfCQZ5NRk The @EPSETproject builds on this work for adults with epilepsy. Survey open now: https://t.co/ePr8F7uHUp
The #ILAE Big Data Commission asks you to share your views to inform a Core Outcome Set for future #epilepsy clinical trials. We want to hear from 1) adults w/epilepsy & their representatives 2) healthcare professionals & 3) researchers. Survey open now! https://t.co/Z3aeQfNCh4
Please visit https://t.co/Nes3wLYAZn to complete the survey and contribute to the Core Outcome Set, to ensure future research is relevant to people with #epilepsy, and to reduce research waste in clinical trials.
The EPSET Survey is still open, to complete in English, Français, Italiano, Español, Deutsch, Dansk, & Русский! Please share your views and shape the content of the Core Outcome Set:
https://t.co/dPGJrK41bB
Thanks @EpilepsyRUK. Share your views and help us decide what should be measured to determine if treatments for epilepsy work. Survey open now! https://t.co/1BuWLBy7tm
We are proud to be supporting the @EPSETproject, which is developing the first-ever Core Outcome Set (COS) for adults with epilepsy to ensure issues important to patients are considered in clinical research. Read more and see how you can get involved here: https://t.co/pI5L0h6h9d
Thanks @JMGraglia and to @EpilepsyFdn for the opportunity to talk about Core Outcome Sets for epilepsy trials. @EPSETProject online Delphi now open in 8 languages, share your views and help shape the final Core Outcome Set for adult effectiveness studies. https://t.co/MRmOjvaKWH
An important project that needs the support of all the epilepsy community to make lasting and meaningful change to epilepsy trials given it is International Clinical Trial Day - no better time to complete it! #InternationalClinicalTrialsDay2022#WhyWeDoResearch
Have your say to help develop a Core Outcome Set for future epilepsy clinical trials.
We want to hear from 1) adults with epilepsy & their representatives 2) healthcare professionals and 3) researchers.
Survey open now! https://t.co/j3CxKNbqRw
Have your say to help develop a Core Outcome Set for #epilepsy clinical trials.
We want to hear from
1) adults with epilepsy & their representatives
2) healthcare professionals
3) researchers
Survey open:
https://t.co/j3CxKNt2g6
@_JWMitchell@epilepsy_liv@livuniHLS
Have your say to help develop a Core Outcome Set for future #epilepsy clinical trials.
We want to hear from
1) adults with epilepsy & their representatives
2) healthcare professionals
3) researchers
Survey open now: https://t.co/j3CxKNbqRw
@_JWMitchell