EPSET Project

The EPSET Project. Working with patients, researchers and health professionals to find the most important outcomes to measure for adults with epilepsy.

[EPSET Project @EPSETproject]

Have your say to help develop a Core Outcome Set for future epilepsy clinical trials. We want to hear from 1) adults with epilepsy & their representatives 2) healthcare professionals and 3) researchers. Survey open now! https://t.co/j3CxKNbqRw

[EPSET Project @EPSETproject]

Round 2 of EPSET Project Survey is open, and will close on 9th December 2022!

For those that have completed Round 1 please check your email inboxes.

Many thanks for sharing your views and shaping future epilepsy treatment studies by defining the critical outcomes to capture.

[Reetta Kälviäinen @rkalviainen]

.@_JWMitchell presenting the first results of our worlwide @EPSETproject of development of core outcome set for adult epilepsy treatment trials - more to follow ! @AmEpilepsySoc #aes2022

[EPSET Project @EPSETproject]

For:
1. Adults with #epilepsy (18 years & older)
2. Advocates for adults with epilepsy (inc. family members & caregivers)
3. Healthcare professionals who regularly assess & treat adults with epilepsy
4. Researchers assessing effectiveness of epilepsy treatments

[EPSET Project @EPSETproject]

The EPSET Project Survey has been extended to 14th September!

The ILAE Big Data Commission want to hear your views on which outcomes should be prioritised in future research testing whether treatments for #epilepsy are effective and safe. Survey open now https://t.co/5jhUSOCPem

[EPSET Project @EPSETproject]

Survey available in English, Français, Italiano, Español, Deutsch, Dansk, & Русский! Visit https://t.co/78U7KUxi9h

[EPSET Project @EPSETproject]

@JaneBea5 @_JWMitchell @mindsofepilepsy @EpilepsyRUK @IlaeWeb @epilepsy_fdn @BCEpilepsy @rkalviainen @COMETinitiative @frenchja @wiebe_ilae @epilepsyaction Hi @JaneBea5 many thanks for your interest in completing the EPSET survey. Please visit https://t.co/1BuWLBgwBO

If possible, this is easier to complete on a computer rather than a mobile device for functionality reasons. Any issues please email [email protected].

[James Mitchell @_JWMitchell]

Do you have epilepsy, or treat people who have epilepsy? Take part in a 10-minute survey and tell us what's important to measure when deciding if epilepsy treatments work. Shape the future of clinical trials by sharing your views
@EPSETproject

https://t.co/dPGJrJMqk3

[ILAE_ES @IlaeEs]

Queremos saber de 1) adultos con epilepsia y sus representantes 2) profesionales de la salud y 3) investigadores. ¡La encuesta está abierta ahora! https://t.co/e2zR6ohfiT (2/2) #epilepsy

[ILAE_FR @ILAE_FR]

Nous voulons entendre 1) les adultes atteints d'#épilepsie et leurs représentants 2) les professionnels de la santé et 3) les chercheurs. Enquête ouverte dès maintenant ! https://t.co/rSHLKDoBfn #epilepsy

[EPSET Project @EPSETproject]

@drcolindunkley @IlaeWeb The @CASTLE_Epilepsy group have developed and published Core Health Outcomes In Childhood Epilepsy (CHOICE) recently, using COMET methodology: https://t.co/XOfCQZ5NRk The @EPSETproject builds on this work for adults with epilepsy. Survey open now: https://t.co/ePr8F7uHUp

[International League Against Epilepsy @IlaeWeb]

The #ILAE Big Data Commission asks you to share your views to inform a Core Outcome Set for future #epilepsy clinical trials. We want to hear from 1) adults w/epilepsy & their representatives 2) healthcare professionals & 3) researchers. Survey open now! https://t.co/Z3aeQfNCh4

[EPSET Project @EPSETproject]

Please visit https://t.co/Nes3wLYAZn to complete the survey and contribute to the Core Outcome Set, to ensure future research is relevant to people with #epilepsy, and to reduce research waste in clinical trials.

[James Mitchell @_JWMitchell]

The EPSET Survey is still open, to complete in English, Français, Italiano, Español, Deutsch, Dansk, & Русский! Please share your views and shape the content of the Core Outcome Set:
https://t.co/dPGJrK41bB

[EPSET Project @EPSETproject]

Thanks @EpilepsyRUK. Share your views and help us decide what should be measured to determine if treatments for epilepsy work. Survey open now! https://t.co/1BuWLBy7tm

[Epilepsy Research Institute @EpilepsyInst]

We are proud to be supporting the @EPSETproject, which is developing the first-ever Core Outcome Set (COS) for adults with epilepsy to ensure issues important to patients are considered in clinical research. Read more and see how you can get involved here: https://t.co/pI5L0h6h9d

[Torie Robinson 🇺🇦 @TorieRobinson10]

Really important - what should be prioritised in #epilepsy research? Have your say - patients, carers, clinicians and researchers. 👇🏻

[James Mitchell @_JWMitchell]

Thanks @JMGraglia and to @EpilepsyFdn for the opportunity to talk about Core Outcome Sets for epilepsy trials. @EPSETProject online Delphi now open in 8 languages, share your views and help shape the final Core Outcome Set for adult effectiveness studies. https://t.co/MRmOjvaKWH

[Liverpool Epilepsy Research Group (LERG) @epilepsy_liv]

An important project that needs the support of all the epilepsy community to make lasting and meaningful change to epilepsy trials given it is International Clinical Trial Day - no better time to complete it! #InternationalClinicalTrialsDay2022 #WhyWeDoResearch

[EPSET Project @EPSETproject]

Survey now live! Please share your views to shape future epilepsy research trials. @theABN_Info funded research @_JWMitchell. @IlaeWeb @yesILAE @ILAEBRITISH @epilepsyaction @ResearchNetERUK @ep_professional @COMETinitiative

[EPSET Project @EPSETproject]

Have your say to help develop a Core Outcome Set for future epilepsy clinical trials.

We want to hear from 1) adults with epilepsy & their representatives 2) healthcare professionals and 3) researchers.

Survey open now! https://t.co/j3CxKNbqRw

[EPSET Project @EPSETproject]

Have your say to help develop a Core Outcome Set for #epilepsy clinical trials.

We want to hear from
1) adults with epilepsy & their representatives
2) healthcare professionals
3) researchers

Survey open:
https://t.co/j3CxKNt2g6

@_JWMitchell @epilepsy_liv @livuniHLS

[EPSET Project @EPSETproject]

@AmEpilepsySoc Thanks @AmEpilepsySoc. For more information please visit https://t.co/78U7KUOT0P

@epilepsy_liv

[EPSET Project @EPSETproject]

Have your say to help develop a Core Outcome Set for future #epilepsy clinical trials.

We want to hear from
1) adults with epilepsy & their representatives
2) healthcare professionals
3) researchers

Survey open now: https://t.co/j3CxKNbqRw

@_JWMitchell