ERN GUARD-Heart is part of the European Reference Networks for rare or low-prevalence disease and focuses on rare and complex diseases of the heart.
@AMC_nl
Hereby the fourth newsletter of 2024, with topics:
https://t.co/hRftPSLomy
Agenda boardmeeting
Who are our ePAG’s, Inês Pinto Gonçalves-Portugal
LMNA PRIORITY project awarded prestigious Leducq grant
Upcoming Webinar
Latest Publications
#guardheart#europeannetworks#EU4Health
Listen to episode 3, Lorraine McGlinchey (Irish Heart Foundation) and Sophie Pierre (AMRYC - Association des Maladies Héréditaires du Rythme Cardiaque)
https://t.co/i7i9qulpuf
#podcast#EU4Health#ernguardheart#rarecardiacdisease
Hereby our latest newsletter:
Cardiomyopathy Awareness
Save The Date: board meeting
Joint action on Integration of ERNs into National Healthcare systems JARDIN
Who are our ePAG’s with Katja Laine
CPMS 2.0 Desktop version
Latest publications
#europeannetworks#EU4Health
Each week one of our member-centres is in the spotlight with an interview of the main representative and one of her/his junior colleagues.
Episode 37: Hospital Münster – Eric Schulze Bahr & Gerhard Diller
https://t.co/CQmlLBzABM