📅 Rare Diseases Forum 2026 | Brussels
30 million Europeans. Multiple EU initiatives. Major legislative reform underway. Yet access to diagnosis and treatment for rare diseases remains uneven, and coordination across borders fragile.
On 21 April, the focus turns to the policy decisions that will shape the next phase of EU action. Join our Rare Diseases Forum in Brussels, with MEPs @BosseStine and @nicogoncas e and many others.
Take part in the debate: https://t.co/LbOk3woaar
@ChiesiGroup, @AlexionPharma, @Amgen, @sanofi, @ultragenyx, @PTCBio, @EUCOPE, @eurordis
🎥 Lights, mics, and EU health policy.
We are already in the @Europarl_EN preparing the next episode of the EU Perspectives podcast
Take a sneak peek behind the scenes👀
We’re diving into two of the biggest issues in EU healthcare today:
➡️ The Critical Medicines Act
➡️ Multiannual Financial Framework
🎙️ With expert voices:
• @VeronikaCifrova (MEP, @RenewEurope )
• Arnaud Maheas (Head of Public Affairs Europe at Sandoz and & Chair of @medicinesforEU market access committee)
• Stefano Romanelli (Senior Government Affairs Manager from @EUCOPE )
📺 Full episode coming soon, stay tuned!
#EUPerspectives #Podcast #EUhealthcare #PharmaPolicy #HealthPolicy
🚨 New EUCOPE Member Spotlight:
🧪For 15+ years, @ultragenyx focuses on #rarediseases, using a dynamic development model and collaboration with families to accelerate innovation in life-changing treatments.
👉Learn more from SVP Jane Cooper: https://t.co/8W82QiMwmK
EUCOPE reacts to Council deal on #EUPharmaPackage:
It's a step forward, but #innovation must remain a priority. The trilogue negotiators need to deliver a future-proofed, innovation-friendly framework.
Read more: https://t.co/QaYTxidsEL
#LifeSciences#EUPharma
As the EU enters a new legislative cycle, #EUCOPE sets out its vision for the future of #HERA.
To build a resilient #PreparednessUnion, we outline 6 priorities—from innovation & funding to coordination & public-private partnerships:
👉https://t.co/WIhlCbF0ND
#EUHealth#MFF2027
🌍 On 24 May, the #WHA77 adopted a historic resolution on #RareDiseases.
💬 “The #EU should seize this chance to lead globally and deliver real change for #RareDisease#patients.” — Sarah Khor, @Amgen
📄 Read more:https://t.co/8Rv0wK64cP
Watch now the full recording of #EUCOPE's webinar: "Implementing the #EuropeanHealthDataSpace – The Next Steps" 👉https://t.co/SrrFkWN5kn
In a dynamic session, EU policymakers, legal experts, and industry leaders explored the practical aspects of #EHDS implementation.
🎙️ Sounds of Science | #EU Biotech Act: How to ensure the biopharmaceutical sector thrives in the EU
EUCOPE joins J. Grames - AOP Health & E. Gicquel -Miltenyi Biomedicine to unpack the #BiotechAct & its impact on #innovation.
🔗 Listen now: https://t.co/awNVfYRW7o
#EUHealth
Join the EUCOPE Life Science Lecture Webinar: Implementing the European Health Data Space (#EHDS) – The Next Steps
🗓️ 6 May 2025
🕒 15:00–16:00 CEST
📄 Read the agenda: https://t.co/91OujfavUg
📨 Register now: https://t.co/l5rJLHtccg
📢 EUCOPE policy brief outlines:
✅ The potential of #LiquidbBiopsy in #CancerCare
✅ The benefits for healthcare systems
✅ Country-level insights into access and reimbursement
✅ Key policy recommendations to support adoption across the #EU
Read more: https://t.co/2fSZ1teThH
🚀 #Sustainability & #HealthEquity are reshaping @MarketAccess in the #EU.
Stay ahead with @AliraHealth’s webinar: learn how policy shifts are changing payer expectations & strategies.
👉More information: https://t.co/eeh7gFmcdE
Join EUCOPE's in-person workshop: 'How to prepare for EU HTA from a Payer Perspective'
🗓️ Thursday 8 May 2025
⏰ 11:00 to 17:00 CET
📍 Brussels
Learn how to navigate the impact of #EUHTA on pharmaceutical market access in Europe.
Registration: https://t.co/KZZlRrJ85d