BINDproject

EU funded project to assess and address learning and behavioural challenges in Duchenne and Becker muscular dystrophy

[BINDproject @EU_BIND]

Thrilled to announce that @LUMC_Leiden and @DuchenneDF have secured funding to further continue deep phenotyping of the brain in Duchenne and Becker muscular dystrophy.

🤝 This will further enhance the understanding of brain involvement in DMD and BMD.
https://t.co/ro6k1S1Nv6

[BINDproject @EU_BIND]

Last week, the BIND project was presented at the 8th @EPNSnews Research Meeting by Dr. Jos Hendriksen, with remote input from Prof. Eugenio Mercuri.

We are grateful for this opportunity to share ongoing research in brain related comorbidities in Duchenne and Becker MD.

[BINDproject @EU_BIND]

We had an incredible experience at the 2023 Brain Innovation Days, and are looking forward to this year's #BIDays.

The 2024 edition takes place 13-14 November 2024 in Brussels, under the overarching theme 'Navigating the Brain Across a Lifetime'

👉 https://t.co/6SDik7cZZX

[BINDproject @EU_BIND]

Missed our posters at the World Muscle Society 2024? Check them out in the #WMS2024 virtual platform!

Data on brain involvement in dystrophinopathies in Duchenne and Becker muscular dystrophy is presented BIND various partners.

Happy to take questions!

[BINDproject @EU_BIND]

⏰ Last change to register!

Tonight at 18:00 CEST, Dr. Jos Hendriksen from @Kempenhaeghe presents how to assess cognitive and behavioural challenges in Duchenne and Becker MD.

👉 Register here:
https://t.co/WmO55sycui

[BINDproject @EU_BIND]

Elizabeth Vroom explains why the @worldduchenne Organization is part of the BIND Project.

At the BIND webinar tonight, she will share her experience and moderate the questions from participants.

👉 Don't miss this opportunity! https://t.co/WmO55sycui

[BINDproject @EU_BIND]

Next Monday, Dr. Amel Saoudi from @CNRS shares what we have learnt on dystrophin in the brain from mouse models. Join the BIND Patient Community Webinar to find out!

🗓️ Monday September 23, 18:00 CEST
https://t.co/WmO55sycui

[BINDproject @EU_BIND]

🧠 Dr. Hermien Kan used advanced MRI scans of the brain to see how DMD/BMD affect the structure and function of the brain.

Join us next Monday September 23 at 18:00 CEST and learn about this & more insights from the BIND Project

🔗 Register here: https://t.co/WmO55sycui

[BINDproject @EU_BIND]

You are invited to join the BIND Patient Community webinar 'Understanding the role of dystrophin in the brain'

🗓 Monday, September 23
🕕 18:00 CEST
📍 Online via Zoom

👉 Please register your interest here: https://t.co/WmO55sycui

[BINDproject @EU_BIND]

At the @DPPSpain Annual Conference last May, representatives from the BIND consortium participated in a session titled “Cognitive Part in DMD/BMD: Project BIND.”

→ A summary of what was presented and discussed is now available: https://t.co/7fRTf5uj0G

[AnnemiekeAartsma-Rus @oligogirl]

We have a vacancy for a PhD student 👇
PhD Candidate 3D Muscle Cultures for Duchenne Muscular Dystrophy | LUMC

[BINDproject @EU_BIND]

Just out! In the latest BIND newsletter, we summarise the latest publications on brain comorbidity research in Duchenne and Becker MD. Each publication had a lay summary available.

Read the full newsletter here 👉 https://t.co/zvbnkcXTTj

[BINDproject @EU_BIND]

Last @ActionDuchenne Spring Webinar, the BIND project was presented.

Prof Muntoni, Dr. Hendriksen, Dr. Miranda and Dr. Kolesnik provided insights into learning and behavioural challenges associated with Duchenne & Becker.

Thank you for the invitation!
https://t.co/q0x4hgxkiJ

[BINDproject @EU_BIND]

Dr. Jos Hendriksen presented at the Duchenne Care Conference 2024.

✨His talk presented the BIND screener: a quick, easy to complete and reliable tool for screening and identifying neurocognitive and neuropsychiatric problems.

Results are published soon.
https://t.co/z66RA4u9da

[World Duchenne Organization @worldduchenne]

🧠 Understanding learning and behavioral challenges is key in Duchenne care.

Dr. Jos Hendriksen will discuss screening methods at the upcoming Duchenne Care Conference, taking place May 27 & 28 online.

📣 Secure your #DuchenneCare2024 spot now: https://t.co/N4HGsv0YSp

[BINDproject @EU_BIND]

🇪🇸 Today, BIND is presented at the @DPPSpain conference.

In the session moderated by Dr Montolio del Olmo, De Miranda presents on the cognitive aspects in DMD/BMD. He is joined by Prof Mercuri, Dr Hendriksen and Prof Skuse.

More info: https://t.co/AvGMADrTAw
#congresodppe2024

[World Duchenne Awareness Day 🎈 @DuchenneDay]

🎈 This year, World Duchenne Awareness Day will be focused on...

Duchenne & Disability Rights

We shine a spotlight on what it's like to live with Duchenne and fighting for disability rights everywhere in the world.

→ Follow our campaign and share the communication contents!

[BINDproject @EU_BIND]

Attention to brain involvement in Duchenne and Becker MD is crucial, and the BIND project is leading the way.

Stay updated with the latest findings and research by subscribing to the newsletter.

✍️ https://t.co/xUwcf7dFL7

[World Duchenne Organization @worldduchenne]

🌟 Registrations for 𝗗𝘂𝗰𝗵𝗲𝗻𝗻𝗲 𝗖𝗮𝗿𝗲 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 𝟮𝟬𝟮𝟰 are now open!

This year’s theme emphasizes mastering foundational care strategies, even in countries where not all modern technologies are present.

👇 Secure your spot now:
https://t.co/N4HGsv0YSp

[BINDproject @EU_BIND]

👇 This educational video sheds light on the challenges people living with Duchenne and Becker MD may face and the importance of understanding brain comorbidities.

Watch the video by @worldduchenne here: https://t.co/Dj7REQSXUk