@BellaItalia_UK @SPhillips9210@EDSAmanda@ehlersdanlosuk@EDSAmanda we've got that meal @BellaItalia_UK in January so we will definitely be back 😉 plus I love the fact i can swap my @Tesco club card points for rewards. It paid for our meal last month 😉
@EDSAmanda@jvsimmonds01@BensonsForBeds@IKEAUK@Dreams_Beds@CastleComfort It's actually an ikea tylosand bed settee I'm sleeping on. It's not pulled out into the bed but it's got a deep seat and I find the back rest offers support & holds me on my side, compared to lying in bed where you are just lying on the mattress and holding your body in position
@EDSAmanda@DrEReinhold I'm on the settee again with my fleece zebra blanket. The settee seems a bit easier on the back than bed but not so good for the other joints. 😫
The debate on #HypermobilitySyndromes#EDS#HSD can be viewed 4.15 35 ->4.48.00
https://t.co/FE49LzWGHY https://t.co/ue82itFQdR
The transcript:
https://t.co/zNQZZCWENw
Key points from @CWhittakerMP re @hwcalderdale report:1)How pts feel 2)A pathway 3)#SocialCare 4)#Physio issues.
@0ldS0ul_abby @HMSACharity@ehlersdanlosuk @Christina_EDS @chr0nicallycute Five things I love (while living with #EDS)
🦓 Having the chance to help others
🦓 Zebra print everything
🦓 Blankets
🦓 Electric heat pads
🦓 New understanding friends
Five tweeps I'm tagging next @EDSAmanda@bettyflorence23@ACZglinska@HMSawareness @JGjanegreen
@natalie_weetink @WeNurses@WeStudentNurse @StNurseProject Anything and everything. I've spoke about family, spouses, children, jobs, pets, cars, holidays, dreams, regrets. Most of the time you'll find they will steer the conversation in the direction they want. Sometimes they just want company and will be happy sitting in quiet.
@EDSAmanda@DrGetafix@patientsafe3@lisab1998 @JGjanegreen @juliemcgrory1 Had a quick look the ones I looked at are all non-clinical. So I suppose they could argue the infection control as they not coming into direct patient contact.