Solenn TANGO

Militante santé @solenntango.bsky.social Asso @winslow_la 🐘 338ppm ancienne Prof de lycée & université. CL + cardiovasc illness : "in ffp2 we trust"

[Solenn TANGO @Eerrnn]

Heureuse d’épingler 2 éléments auxquels j’ai participé : cet article👇

[Association Winslow Santé Publique @winslow_la]

😷 65 MILLIONS DE COVID LONG ET ÇA CONTINUE ! Parce que le silence tue mais que l'information donne du pouvoir,

@actupparis et @winslow_la
dressent un état des lieux de la pandémie de COVID toujours en cours.

👉 Lire notre texte et nos exigences ici : https://t.co/kPgG9kvQlC

[Solenn TANGO @Eerrnn]

@ZdenekVrozina @threadreaderapp unroll

[Zdenek Vrozina @ZdenekVrozina]

Even if the individual risk looks small, repeated infections across millions of children can become a population-level health problem.
Public health failures in preventing infections, including Omicron era, may leave consequences that do not show up in daily hospital numbers.
They may show up later - in long-term health.

[Zdenek Vrozina @ZdenekVrozina]

And this is where public health matters.
For years, the dominant message was that repeated Omicron infections are mostly trivial for children.
But more and more findings suggest that confidence was badly misplaced.
We are seeing measurable changes after infection - in immunity, autonomic function, the heart, now microcirculation. @szupraha @ZdravkoOnline @adamvojtech86 @adamkova_vera

[Solenn TANGO @Eerrnn]

@AlanLevinovitz @WIRED Can you have a look at radiologic littetature on LC / risks of MACE etc… because brain retraining wouldn’t have saved me from my pulmonary embolisms (LC associated) and doctors are already psychologising patients too much (and empeachs access to adequate treatment) 👇

[Solenn TANGO @Eerrnn]

Countering the psychologization of #LongCOVID: A medical #Imaging thread for sending to "skeptics."
We’ll start with lung MRIs of children with CL. #LungDamage
A & B in blue show ventilation; C & D in green show respiratory function; E & F show perfusion

[Solenn TANGO @Eerrnn]

@leenam20445542 Complètement. Sans même compter le coût de ces techniques, pour des patient•es dejà souvent ruiné•es…

[Solenn TANGO @Eerrnn]

Oublier ses symptômes avec le brain retraining, le genre de pratiques non prouvées qui aurait pu me tuer (faute de recherche du problème pas évident à trouver de coagulation) en tout début de maladie.
Recommandé par l’APHP (suite à la restitution du consortium LC EU project?)

[leenam @leenam20445542]

En France, 6 ans après l’apparition du #covidlong, voici le lien qu’un hôpital public envoi à une patiente en lui notifiant un refus de consultation en médecine interne : https://t.co/SsbBHPAyVP
#apresJ20
Merci l’APHP !

[Solenn TANGO @Eerrnn]

@leenam20445542 Merci !

[Cat (CovidSolidarity) @CovidSolidarit1]

This article is actually about ME(CFS), not Long Covid.

It’s rehashing trash that has been peddled for decades.

It is wrong to say that we don’t know what Long Covid is - there is ample evidence re: SarsCov2 effects as the recent PolyBio symposium demonstrated quite clearly.

[Solenn TANGO @Eerrnn]

@1goodtern It seems that everybody accepts that LC folks without PEM are being supposed to be safe with exercice. Exercice can be very harmful to other patients too.
In LC now, nobody cares about anything else than PEM about patient safety ?

[Themis 😷⭐️Rejoignez-moi sur Bluesky !⭐️😷 @Themislv_vls]

Not a "controversial theory", not even a "theory".

Harmful bullshit sold by charlatans, banks and insurers (who are very interested in your 'mental health').

Now the part that few people understand : this harmful bullshit won't stop with Long Covid.

[Mike Hoerger, PhD MSCR MBA @michael_hoerger]

Brain retraining does not fix blood vessels.

[Dr Elisa Perego @elisaperego78]

The broad range of SARS-CoV-2 infection was already well understood by early 2020, when Covid was called a "rampage through the body" in the top journal Science. This range of pathology is obviously reflected in the sequelae

#LongCovid

https://t.co/dAz3S5MtxD

[Dr Elisa Perego @elisaperego78]

The concept of Long Covid covers a broad range of biological abnormalities not because it's "vague", as some erroneously claim. It does so because SARS-CoV-2 infection can affect the whole body from "head to toe". Multi-system pathology is an hallmark of the disease

[Solenn TANGO @Eerrnn]

@AlterIvan1 @MeganTStevenson @AlanLevinovitz @TaylorLorenz @jewstein3000 @pan_accindex @Themislv_vls @winslow_la In fact he interviewed a lot of people, including patients I think.
But,
You can do this and if you have a strong preconceived opinion, still write bullshit at the end.

[Solenn TANGO @Eerrnn]

@AlterIvan1 @MeganTStevenson @AlanLevinovitz @TaylorLorenz @jewstein3000 @pan_accindex @Themislv_vls @winslow_la (I admit I didn’t look at all the experts quoted but it seems, if I don’t make any mistake, that he had interviewed Todd Davenport, that is a lot (if not all) about PEM, for this article)

[Solenn TANGO @Eerrnn]

@AlterIvan1 @MeganTStevenson @AlanLevinovitz @TaylorLorenz @jewstein3000 @pan_accindex @Themislv_vls @winslow_la I can tell you by experience that being forced to rehab with untreated cardiac LC is not good. And you can die of it, too.

[Solenn TANGO @Eerrnn]

@AlterIvan1 @MeganTStevenson @AlanLevinovitz @TaylorLorenz @jewstein3000 @pan_accindex @Themislv_vls @winslow_la I saw passages about PEM (I think ?) but he was saying this was used to say « no rehab » if I have seen it well.
But you know my opinion : PEM shouldn’t be the only warning about LC, and Îm quite sure there is nothing about cardiac issues (there is never anything about it).

[Solenn TANGO @Eerrnn]

@AlterIvan1 @MeganTStevenson @AlanLevinovitz @TaylorLorenz @jewstein3000 @pan_accindex @Themislv_vls @winslow_la Accusing Ill people of overreaction, while also crossing red lines, like legitimising the push of pseudo science that already targets abandoned patients.

[Solenn TANGO @Eerrnn]

@AlterIvan1 @MeganTStevenson @AlanLevinovitz @TaylorLorenz @jewstein3000 @pan_accindex @Themislv_vls @winslow_la Loss of time here, maybe ?
The guy starts a new religion based on anecdotes, while blaming the patients asking for biomedical science.
Not seen anything in the article about LC organ damage, while also talking in length about the supposed severity of the anecdotic stories.