EhlersDanlosProblems

Ehlers Danlos Syndrome isn't an obstacle, nor is it something you can push aside. It's a way of life. You have no choice, but to follow it's lead.❤

[EhlersDanlosProblems @EhlersDanlosPro]

@rainbowvixx
Just a heads up it's horribly painful, like I want to cry right now

[EhlersDanlosProblems @EhlersDanlosPro]

Radiofrequency ablation today, 40 minutes till kick off, woot woot!

[EhlersDanlosProblems @EhlersDanlosPro]

@colemaria_
It still looks good though!

[EhlersDanlosProblems @EhlersDanlosPro]

“@JennyBchandler: I could write a book called My Life Spent in Waiting Rooms. #atthedrsagain #healthcare @EhlersDanlosPro #bored”
I'd read👏

[EhlersDanlosProblems @EhlersDanlosPro]

@colemaria_
What does it look like now?

[EhlersDanlosProblems @EhlersDanlosPro]

@FrizzyMonsterr
That would make sense, I've been trying not to touch it, I've been so worried about mine scaring

[EhlersDanlosProblems @EhlersDanlosPro]

@FrizzyMonsterr
I hope my doesn't do that, it's been pretty good so far, it's been a week

[EhlersDanlosProblems @EhlersDanlosPro]

@alannnai
I'm overly excited. A lot of people say they can do things they were never able to do before. It's like 70% success rate.

[EhlersDanlosProblems @EhlersDanlosPro]

@alannnai
Basically then burn the nerves around your joints so you can't feel joint pain. There is a lot of good results with it!

[EhlersDanlosProblems @EhlersDanlosPro]

However my doctor did mention if it fixes part of my back we can do the rest, and maybe some other joints, wouldn't that be nice.

[EhlersDanlosProblems @EhlersDanlosPro]

I'm getting ready to try Radiofrequency Ablation, I'm hoping all goes well, but I'm more than nervous.

[EhlersDanlosProblems @EhlersDanlosPro]

For all the EDS'ers who have wondered how their body would react to a tatoo. I'm doing fine with mine.

[EhlersDanlosProblems @EhlersDanlosPro]

Hey guys, I'm sorry I've missed so much, I have been so busy with life, but aren't we all. I guess I have lots of catching up to do.

[Danique✨ @Danii_Visser]

@EhlersDanlosPro Would you place this link on your page? Its for a dutch competiton,about EDS!Writing by me! http://t.co/JN2FQrUFKX thnx! X

[Bi@nc@ @RibiCreations1]

"@Bewithyou93: “@tay_mcintyre: @Ehlersdanlos @me_and_my_EDS @EhlersDanlosPro 😂😂😂 👏#true”"

[EhlersDanlosProblems @EhlersDanlosPro]

“@ambermeisje: This is my beautiful daughter Amber. we wanted to create more awareness for eds, please share?https://t.co/l9DdbZu8rC ….”

[EhlersDanlosProblems @EhlersDanlosPro]

“@Jess_M_Kenny hi I'm having a shoulder fusion in two weeks, need.to.speak to someone who's had the op! Please help.” Advice anyone?

[EhlersDanlosProblems @EhlersDanlosPro]

Lol because this will be so helpful to us EDSers.

[EhlersDanlosProblems @EhlersDanlosPro]

Well I mean it's happened before, but this time really really hurts.