The Spinal Business Management Team has not delivered any change in culture or improved the care our children receive. #scoliosis
In fact, it has centralised and controlled communication, allowing the narrative to be managed by a very select few.
@CarrollJennifer we told you this.
We told you clearly that we have no faith in the SBMT.
It’s time for a root-and-branch clear-out of all those who refuse to act in the best interests of children and families. #JusticeForHarvey @GillSherratt23@Stephen63224725@SBH_PAG
As reported by the Irish Independent 👇
10 children were suspended from @CHI_Ireland spinal surgery waiting list.
The decision was made by 3 administrators and 1 nurse - zero mention of a consultant.
🤷 A deputy CEO with an administrative background raised concerns that some children appeared to be “improperly listed.”
Where was the consultant oversight?
Who authorised the suspension of these children?
Were the 10 families ever told ? @npsoIRL
This is not governance.
This is failure.
This reflects a toxic culture within CHI’s governance. @CarrollJennifer@BernardGloster@CcoHse@IkeOkafor16@SBH_PAG
https://t.co/HC6wYZwbbm
Gaslighting 🙄
Where are the Dixon Report, the Orphan Report, and the open disclosure owed to the children who were in all of this?
The @HSELive, @roinnslainte and the @npsoIRL are busy promoting “Open Disclosure Week” while withholding the reports and denying the affected minors the truth. That’s not openness … it’s deliberate concealment. @SBH_PAG@CarrollJennifer@SimonHarrisTD@MichealMartinTD
Tomorrow the Spinal Taskforce meets - for the first time since 8 May 🤷
In those months, children have continued to wait and suffer. Families have been forced to fight for basic care. And our community has faced the devastating loss of Harvey.
And yet, there is no urgency in this Taskforce. No urgency to act. No urgency to communicate. The minutes from their last meeting are still not published … despite this being the only place parents are told to look for updates.
This silence is not communication. This delay is not accountability. It is an insult to children and families living with the brutal reality of delays in care every single day.
Statutory Inquiry Now @CarrollJennifer@SimonHarrisTD@MichealMartinTD
#JusticeForHarvey #BackUs
@SBH_PAG@Stephen63224725@GillSherratt23
So tomorrow the Dáil finally resumes. To all politicians heading in tomorrow, please keep Harvey at the forefront of your mind. Think of all the children languishing and suffering on the waitlists in @CHI_Ireland . Think of all the children at home in pain because they can’t get their health care needs met, or even the basic equipment they need to support their growing bodies. Think of all the children at home because yet again, we can’t provide the school places they need. The mistreatment of our disabled children needs to finally come to an end. No longer will we be quiet and accept the bare minimum. These children deserve so much better than they have been given. This is something that will absolutely be my red line coming in to the presidential election and it should be yours too.
Imagine a maternity hospital only providing food to breast feeding mothers.
When you are in the most difficult time of you life hours after giving birth with a gravely ill child
@CHI_Ireland provide institutional centred control not child-centred care
📅 It’s SEPTEMBER. The last Paediatric Spinal Taskforce update was APRIL – 5 months ago.
❌ Children like Hannah Keogh who featured in RTE Primetime wait in pain while this so-called Taskforce shows ZERO urgency.
⏰ Parents didn’t take months off – we marched for Harvey, we had to keep fighting, we had to keep speaking out.
🚩 This Farce Force is failing our children. There are zero updates or comms to parents outside of minutes shared. #Scoliosis #Spinabifida @SBH_PAG #BackUs #JusticeForHarvey
@CarrollJennifer listen to the parents.
We have the receipts. @SBH_PAG
When the statutory inquiry is called, we are ready. We will lay bare the evidence of mismanagement, miscommunication & maladministration that inflicted harm on children.
Leadership means accountability.
@HSElive@CHI_Ireland@roinnslainte ignored warnings placed on their desks.
The truth will be told.
#BackUs #JusticeForHarvey
🚨 BREAKING!
Leaked Dublin City Council emails confirm the council is concerned about the "proliferation of Irish flags" on council property.
They're sending workers around Dublin to remove the Irish tricolour!
Not one from @CHI_Ireland, @CarrollJennifer or @SimonHarrisTD was available for comment.
Yet my 14-year-old son, living with Spina Bifida & Scoliosis, spoke out for his peers and why they deserve better.
Too afraid to debate an adult?
#lucynugent
Maybe you’ll debate the children living this reality. They deserve answers
#JusticeForHarvey
This is the reality for Hannah living with Spina Bifida & Scoliosis a short Luas journey leaves her in pain, tears & discomfort.
Behind every child waiting is a family carrying the toll
#JusticeForHarvey