Eli's Alliance

Since 2011, members of Eli's Alliance have fought for wider access to new treatments. We are a nonprofit that advocates for people with severe disorders.

[Eli's Alliance @ElisAlliance]

@ArrestALSNow @BrainstormCell Like most members of the Alliance, Lisa is a volunteer and has no formal role within our organization. She is a patient facing a life-threatening who is doing what she can to access experimental treatments. I recommend you direct your questions to her.

[Eli's Alliance @ElisAlliance]

@ArrestALSNow @BrainstormCell It appears Lisa is upset because Brainstorm won't allow pALS to try NurOwn outside of clinical trials. I recommend you reach out to her directly for any questions.

[Brian Wallach @bsw5020]

First they told me I had a disease, and I stayed silent out of shock.

Then they told me it was terminal and there were no treatments, and I stayed silent out of fear.

Then I decided to speak out, and so did 1000s of others. We may go into the night, but we will not go silently.

[Dr. Alison Bateman-House @ABatemanHouse]

Federal judge rules #clinicaltrial sponsors must publish a decade’s worth of missing data https://t.co/R4gQHpjDh6 via @statnews

[axeALSFoundation @stevens_nation]

Thank you @pvphs for honoring Eric and over 30,000 Americans suffering from ALS with your Walk for Life fundraiser this year🐾 The students and families at PVPHS raised $43,000 for @projectals and their new promising treatment Prosetin. Together we can #axeALS! 💙⚒👨🏼‍🚒⁣

[Mike McCready @MikeMcCreadyPJ]

I attended an amazing @TEDx event in Big Sky a couple weeks ago and was moved by all of the speakers, but Amanda's story about her husband Eric and other ALS heroes stuck with me. Worth a watch... #AxeALS @stevens_nation

https://t.co/vLjTT8jO7I

[Mary Kay Turner @MaryKayTurner1]

@NurOwnNOW @AbigailAlliance @FinishALS @alsadvocacy This is a threat of violence to want to hang someone. This is dangerous and being reported to the authorities.

[Mary Kay Turner @MaryKayTurner1]

@AbigailAlliance @FinishALS @NurOwnNOW @alsadvocacy We will for certain because these accounts are breaking all kinds of laws. Twitter has assured me they will take all action to stop this!

[Eli's Alliance @ElisAlliance]

@MaryKayTurner1 @FinishALS @NurOwnNOW @alsadvocacy We need to get to the bottom of this.

[Brian Wallach @bsw5020]

We too often focus on the how rather than asking why. Why is what remakes broken systems. Why is what allows us to strive for a better tomorrow.

Why can’t a woman be president?
Why can’t we prevent bankruptcy due to illness?
Why can’t we cure the incurable?

Why not dream big?

[Brian Wallach @bsw5020]

This may sound odd, but I’m grateful to those who attack me or @iamalsorg or peddle in baseless conspiracy theories as you reaffirm for me the need for @iamalsorg and the importance of our mission. We fight for you regardless as we are all in this together. #EndALS

[Brian Wallach @bsw5020]

You ever have one of those days where you pause and say, “I cannot believe that this is happening?” Those days, be the thing good or bad, are amazing because they mean you are doing something impactful. You are living your life, and that’s awesome.

[Eli's Alliance @ElisAlliance]

@PodolskyRony @MaryKayTurner1 @RadicavaJr @MaryKayTurnon @jkatcher74 @LebovitsChaim @FinishALS @als_now 🙌🙌

[Mary Kay Turner @MaryKayTurner1]

@RadicavaJr @MaryKayTurnon @jkatcher74 @LebovitsChaim @AbigailAlliance @FinishALS Please note this account is a parody. It’s very sad when an individual spends their energy mocking those of us trying to change the course of als. Shameful! @FinishALS @als_now

[Eli's Alliance @ElisAlliance]

@FinishALS Except @AmylyxPharma has made clear that they only care about treating people who are eligible for their clinical trial. pALS are nothing more than a data point to them. There is no hope for pre-approval access from a company like that. #RightToTry

[Eli's Alliance @ElisAlliance]

@FinishALS Which company? I'm not aware of any in the ALS space that are forward-thinking on patient access issues. They all tragically ignore the 90% of pALS who are not eligible for clinical trials.

[Kyle Coddington @kylecoddington]

I’m fundraising for the @AbigailAlliance we’re solely donation-funded. Please donate and help us help thousands who need better access to affordable treatment. https://t.co/yUVRXVQpw0

[Kyle Coddington @kylecoddington]

I have the privilege of working alongside the @AbigailAlliance in getting the Freedom of Treatment Act introduced in the Pennsylvania House. Helping terminally ill patients is my goal and I’ll do all I can. https://t.co/DWFRI3vo8m

[Ivy Elkins @ivybelkins]

As a stage IV #lungcancer patient, I never thought this would happen...but I have become eligible for surgery! After 6+ years on targeted therapy, I will have the right upper lobe of my lung removed @UCCancerCenter tomorrow by @jdoningtonmd!So very excited! #lcsm @EGFRResisters