Emily Earle

Mum of 3. Volunteer for CCAA (Kids with Arthritis) supporting families of children with a paediatric rheumatological condition. Views my own!

[The BMJ @bmj_latest]

"She is more than her disease and the best appointments are when you ask her about herself."

This patient author describes attending her child’s frequent medical appointments and how interactions with healthcare professionals evolve over time
https://t.co/LsErFYfgsK

[Dr Lola Solebo 💙👶🏾👁️👩🏾‍💻 @lolaeyedoc]

Children and families asked for more #uveitis research - and we listened (https://t.co/YykM1eWkiT)

So we are looking forward to hearing your voices again - thank you!
https://t.co/shZHUINB2M
Happy holidays!

[Dr Polly Livermore @PollyLivermore]

Calling 16-17 year old's and/or parents of children who have suffered acute pain in England in the last year & needed an ambulance, please share your experiences & sign up to the PANDA study👇https://t.co/hthGMjddMP @CCAA_org @VersusArthritis @GOSHCharity Please share widely

[ClusterConsortium @CLUSTER_Tweet]

🎉Huge congratulations to our CLUSTER researchers on this promising piece of research.

👁️Exploring how genetic information might tell us which patients with childhood arthritis are at higher risk of eye inflammation.

👉https://t.co/NSWEwjWtET

[Amy Wescott @amywesa]

Representing @CCAA_org today at #PReS2024

[Emily Earle @EmilyEarle5]

@amywesa Hope you have a great time!

[Emily Earle @EmilyEarle5]

@amywesa Amazing! Well done and good luck- you’ll be fab! 👏

[Arthritis UK @arthritisukorg]

Sfiyah, 10, has something to say about #JIA.

It's time those in power listen and #TakeArthritisSeriously.

Will you join Sfiyah in speaking up? 👇 https://t.co/RSWL0D6I8t #JuvenileIdiopathicArthritis #arthritis #GeneralElection2024

[UK JIA Biologics Register @BCRD_Study]

🚨New research!

📰Published in Lancet Rheumatology @TheLancetRheum

💊Switching from a TNFi originator to a #biosimilar for #JIA❓

✅We found children do just as well as those who remained on the originator (i.e. didn’t switch)

📹Learn more👇or read: https://t.co/zecqD3hooH

[Emily Earle @EmilyEarle5]

@amywesa Good luck - you’ll be amazing! Look forward to hearing all about it! X

[BSR @RheumatologyUK]

"Identity is a place I always start with when I see people one-to-one, giving the time to find out how they saw themselves pre-diagnosis, and what's changed after diagnosis."

- John Butler, Paediatric Psychologist in #rheumatology

#MentalHealthAwarenessWeek

[Emily Earle @EmilyEarle5]

Really enjoyed volunteering at @theIMPACT_study family workshop on Sat - so many families attended & were keen to share their experiences to help this exciting project. We were finding out what FAQs families have and what has helped them in the past alongside how tech might help!

[Emily Earle @EmilyEarle5]

I had a great time at #BSR24 in Liverpool volunteering for @CCAA_org! Enjoyed catching up with familiar faces & meeting new ones too. If anyone missed my talk 'Starting a JIA journey - what do families worry about...' pls get in touch & we can revisit for your team. #PaedRheum

[Emily Earle @EmilyEarle5]

@Cyclinintherain @CCAA_org Thanks for coming along and supporting Lynne 😊

[YoungArthritisWales @YoungArthritisW]

If you've not yet signed up for our UK wide online bookclubs, now running for ages 11-24, what are you waiting for?
Read all about it here: https://t.co/wLT0NCcUkx
Then sign up via this link: https://t.co/pm09Cc9w7V

[Emily Earle @EmilyEarle5]

Proud to be part of the Cluster Champion team behind this important paper

[ClusterConsortium @CLUSTER_Tweet]

🚨our NEW paper out today! 🚨 Huge thanks to all the CLUSTER Champions for their fantastic insight and call for improvement in trial designs for children and young people with #JIA

[ARMA @WeAreARMA]

Moving MSK services into the community can improve access for those in deprived areas and address #MSKInequalities head-on.

The Act Now report features innovative and inspiring examples of MSK community integration.
👇👇👇
https://t.co/5i86RNwT3J

[ARMA @WeAreARMA]

Proud to introduce the new Act Now report!

Deprivation fuels MSK health inequalities.

Act Now has actionable strategies to ensure equitable MSK care for all.

Let's tackle #MSKInequalities head-on together!

https://t.co/b47y1CNCrJ

[AYPH charity @AYPHcharity]

New report by @WeAreARMA looks at musculoskeletal health inequalities and deprivation, including children and young people with MSK conditions.

[Joel Nelson @joelvsarthritis]

We also have a very special guest joining me at 1pm (GMT) when Glenda Dalton, Vice-chair of CCAA, will be joining me to talk about the important work they do!
https://t.co/vi23aWcZ35