Emily Marston

Married 💍💕Early years teacher 🍎NTFC ⚽ Full time auto immune disease warrior 💁🏻‍♀️ Professional tea drinker and napper💛

[Emily Marston @EmilyRootes94]

@Jonomarston #nolanout

[Emily Marston @EmilyRootes94]

Whatever the score, there is never any excuse for this behaviour. 😔

[Northampton Town @ntfc]

CLUB STATEMENT: Racist social media post.

https://t.co/p7dSKkWuXz

#ShoeArmy 👞

[Geo(R)ge NTFC @NtfcGeorge]

this clubs gone down the shitter since boxing day #ntfc

[ThePOTSPostman @ThePOTSPostman]

You’d think the biggest barrier with chronic illness would be the diseases themselves. Nope! Turns out it’s the medical system and the people inside it.

Don’t belive me? Here are actual quotes from self identified medical professionals on Reddit, talking about people like me, and it makes my blood boil 😡

“As a peds rheumatologist… I don’t love the hypermobility/AMPS/POTS referrals… I can usually talk them down from the ledge.”

“POTS is the new chronic fatigue syndrome, which is the new chronic Lyme, which is the new fibromyalgia.”

“It’s the new ‘cool diseases’… some want to wear the POTS/MCAS/EDS badges to draw attention to themselves.”

“There’s a subset of patients who ‘collect’ diagnoses… a lot of these diagnoses (like POTS) are just somatiform disorders.”

“If this were 1800s Victorian era we could simply prescribe them all vibrators.”

“I’ve noticed [hEDS] has become a ‘popular’ (Instagrammable) illness.”

“Now the term hEDS is essentially medically meaningless… seeing it on the record is a harbinger the patient will have multiple nonspecific symptoms.”

“Honestly, I think it’s bullshit… hEDS is not a genetic disease.”

“Said diagnoses invariably come from cash-pay only physicians in solo practice clinics, often in strip malls.”

"These chronic illness communities are just that, community.
Collecting these diagnoses is a competition for them."

"The TikTok quartet MCAS, EDS, POTS , gastroparesis."

These are medical professionals. They turn our suffering into punchlines. They think these are all trends.

We spend years fighting for answers, to be believed, to get even the bare minimum of care.

This isn’t just ignorance, it’s hate.

If you’re a doctor reading this. You don’t have to understand these conditions to treat people with respect.
No one wants to be sick.

But if your first instinct is to mock, dismiss, or run to Reddit to post, you’re not just part of the problem. You are the problem.

[Kick It Out @kickitout]

Thirty minutes into the first Premier League game of the season, and Bournemouth’s Antoine Semenyo is racially abused by someone in the crowd.

Two nights ago, Tottenham’s Mathys Tel was racially abused online. This is a stark reminder of an ugly reality: black players are facing this every week.

We stand in solidarity with Antoine and can’t praise him enough for his courage in calling this out after such a distressing episode before going on to score twice.

Anthony Taylor and his refereeing team also deserve credit for acting swiftly and decisively.

We will keep pushing to kick this disgusting behaviour out of the game through punishments, accountability and education, but football still has a long way to go.

[PoTS UK @UKPoTS]

Our petition closes on 30th July!
We are asking the Government to fund training for all healthcare providers on spotting & dealing with #PoTS and to facilitate the correct form of healthcare!

Please sign today and SHARE FAR AND WIDE: https://t.co/33oSkjolYf

#MECFS #LongCovid

[PoTS UK @UKPoTS]

Our petition closes on 30th July- we need as many signatures as possible!

We are asking the Government to fund training for all healthcare providers on spotting/dealing with #PoTS and facilitate the correct form of healthcare.

Please SHARE FAR AND WIDE: https://t.co/33oSkjolYf

[PoTS UK @UKPoTS]

The https://t.co/vTJm7YnJRV petition regarding #PoTS now stands at 16,426 signatures. We need more for the government to listen!
This topic needs a debate but we need your support.

We only have until 30th July - PLAY YOUR PART in making the change!

https://t.co/gqEnVA68WN

[Emily Marston @EmilyRootes94]

And this is why you should never fall in love with your postman 😂

[Northampton Town @ntfc]

❤️

#ShoeArmy 👞

[Northampton Town @ntfc]

👏 Four brilliant years. Countless memories. A promotion. Thank you.

Mitch, you will always be welcome at Sixfields. ❤️

@Mitchypins11 #ShoeArmy 👞

[Emily Marston @EmilyRootes94]

Is someone cutting onions 🥺 👞⚽️

[Aaron McGowan @AaronMcGowan_]

❤️ @ntfc Thankyou

[Northampton Town @ntfc]

👋 See ya.

#ShoeArmy 👞

[ThePOTSPostman @ThePOTSPostman]

Chronic illness can quietly, but deeply, put a strain on relationships.

Many healthy people don’t realize just how much energy even basic tasks can demand from us. What feels like a small task or routine to you, such as doing the dishes, taking a short trip to the store, or going to a birthday party, can drain us for the rest of the day or longer.

Yet we’re constantly pushing through symptoms like fatigue, pain, brain fog, dizziness… often all at once.

And yet, we still show up as much as we can.

We help around the house.
We attend the graduation, the dinner, the family event.
We smile, make conversation, try to be present.
Because we want to. Because we care.

But some days… we just don’t have it in us.

We might not be able to get out of bed, let alone clean or run errands. Maybe we cancel plans last minute. Maybe we seem distant. Maybe we’re just too exhausted to talk.

To our loved ones, it might seem like we aren’t giving enough, they may think all we did today was laundry, but to us, that was a marathon.

To us, it feels like we’re giving everything we have and still disappointing others. It can also become frustrating because we just want others to understand but we know how hard that can be.

That disconnect can be painful.

If you love someone with a chronic illness, please know, we are trying.

More than you can see.

[Northampton Town @ntfc]

It's Derby Day! 👊

Nene Derby. Sold out away end. Let's go! 💪

#ShoeArmy 👞

[Penrith Cobbler @kevc38]

What a goal #ntfc

[Emily Marston @EmilyRootes94]

@boyzlifeOFCL @BrianMcFadden @officialkeith @Jonomarston I’ve found my birthday present 😉😘

[Emily Marston @EmilyRootes94]

@LNRailway shoutout to the senior conductor on the 9.10am from npton to Birmingham. He’s been so polite and friendly and really helpful with my accessibility needs travelling solo for the first time. Thank you 👏🏻

[s h a b s 🌷 🦚 @sukeve_xo]

I'M SORRY?!? what in the 1991 is happening here