EmJay

#actuallyautistic All things MH Autism. my Twitter account reflect my personal views and don’t represent NHS or NHSE

[EmJay @EmjayClark]

My daughter's story https://t.co/9OzzCGiF8U

[EmJay @EmjayClark]

3.Lived and learned experience: both should be acknowledged and appreciated, they do not come in neat packages to be exploited.

4.Never, I repeat never tell someone with lived experience they can't use it to make the world better!

#mentalhealth #autism #ADHD #Livedexperience

[EmJay @EmjayClark]

1.Never be the only person not being paid in that room. Reliving trauma comes at a cost on your mental health.

2.Always make sure it's a safe space to share your experience and make sure it's appreciated.

#mentalhealth #autism #ADHD #Livedexperience

[EmJay @EmjayClark]

@KarenAd89081735 Oh just love coraline!

[EmJay @EmjayClark]

All the trouble we've had trying to get EUPD removed from daughter's notes after having full assessment that said she never did have it? We failed, they won't but said we could add a note. GP today couldn't even find the assessment in her notes. So very hidden to cover lies!

[EmJay @EmjayClark]

@KarenAd89081735 Yes and reason why I went to ombudsman who said....nothing to see here. The silent diagnosis that kills autistic girls and women.

[EmJay @EmjayClark]

@KarenAd89081735 Yep but apparently can't be removed as was an opinion. An opinion without full assessment shouldn't be written down as diagnosis then! Sigh...

[EmJay @EmjayClark]

@KarenAd89081735 It appeared after her first phonecall with Amht after transition from Camhs.

[EmJay @EmjayClark]

It was an honour to have worked on Fonagy's review for 8 mnths and to have my LE quotes in this article and thoughout the report with the other amazing LE partners.
We cajoled, influenced, argued and educated!
#prevalencereview #fonagyreport #autism

https://t.co/VediJLLCLf

[EmJay @EmjayClark]

Some autistic people have an internal monologue voice. It can:
Practice conversations in advance, have dialogue with, be music or background noise but can also be critical.

(I used a little bit of AI to adapt my original illustration)

#autism #internalmonologue #neurodivergence

[EmJay @EmjayClark]

When you ask GP surgery for an appointment to see a menopause doctor due to brain fog and hot flushes and you are told they will put you on the waiting list and laugh when you ask how long! Looking like months rather than years. @NHS_ELFT Is this good enough?

[EmJay @EmjayClark]

@purpleabbiie @HelpCenterwz3e Thanks for heads up, I've reported it

[EmJay @EmjayClark]

Oh dear, parcel from @IKEA delivered by @dpd_courierhelp missing my table top and cabinet but did have my fabric boxes covered in footprints with lovely tape saying resealed by DPD!

[EmJay @EmjayClark]

@Favwontmiss Both not very nice numbers! I would never choose 2 or 7. I prefer 3, 6 or 9

[EmJay @EmjayClark]

@RITB_ I agree, we managed to get trust to get another trust consultant to do a full assessment and was found never had PD but was her autistic needs not being met. Yet here we still are.

[EmJay @EmjayClark]

@RITB_ Thanks for sharing. Dx was written on notes after transition to amht without an assessment then lied about it till we found out 6 months later. We asked for second opinion and they said even though didn't meet other criteria as d self harmed then it's a given she has PD!

[EmJay @EmjayClark]

Has anyone had PD removed from diagnosis? Our d had it written on notes on transition to adults and even after having full assessment saying never has had it they won't remove it. Will only allow note to be added from us saying we disagree not clinican. Ombudsman won't help!

[EmJay @EmjayClark]

@Hoarder55 I'm so sorry to hear! Xx

[EmJay @EmjayClark]

If you are or have family members who are NEET (not education, employment or training) what would help you/them? Physically, mentally or around training or employment in UK. #NEET

[EmJay @EmjayClark]

It was an honour to be a lived experience advisor, give a presentation and take part in bringing lived experience voices to the Independent Mental health, autism and ADHD prevalence review summit on Wednesday. It's been a very busy few months!