Sometimes you just lose hope for inclusion when the door policy #wetherspoons baffles you & they refuse entry during the day for a disabled child & their PA. Teagan was hungry & having seizures but they refused to listen. #NEVERSPOONS#disabilityinclusion
https://t.co/0UwYwZFHcg
Congratulations to Teagan Appleby @ForTeagan who has been nominated for the Positive Role Model Award for Disability: sponsored by @ovoenergy at The National Diversity Awards 2022 in association with @itvnews. To vote please visit https://t.co/As2Ei9UruY #NDA22#VotingNowOpen
Congratulations on your new role as health sec @sajidjavid I'm sure you remember us, the families you gave hope to with the law change on #medicalcannabis you now have the opportunity to finish what you started, close the loop & give NHS access to those who need it #helpforteagan
2 years ago Teagan's epilepsy medication was seized at the airport & @MattHancock tweeted the below as it was returned. He stated he was working hard with government to ensure those who need #MedicalCannabis would get it. What happened Matt? Nothing has changed! #helpforteagan
Today is #PurpleDay when we raise awareness of epilepsy & we once again ask that @MattHancock does the right thing, delivers his promise & grants NHS access to #MedicalCannabis to all those children who so urgently need it. #helpforteagan
Payment made for #MedicalCannabis & another month where @MattHancock fails to deliver his promise. The NHS can prescribe this but won't! But why? Real life evidence is there in abundance & withholding it makes no sense on cost or quality of life. Who is blocking the door?
UK charity @epilepsyaction has joined forces with @End_Our_Pain as the wait for full access to #MedicalCannabis continues.
Two years after the law change, the epilepsy charity says children are running out of time to get their prescriptions.
https://t.co/4HOK1ypQ9Z
The kindness of strangers blows you away, waking this morning to see a flurry of donations to ensure Teagan will have access to #MedicalCannabis for months to come. Kind hearted, wonderful people we will probably never be able to thank in person #freemasonscare#helpforteagan
This Thursday we & @Hanseizuremum be on @thismorning with @EamonnHolmes
& @RuthieeL to discuss the continuing battle to get NHS prescriptions for medical cannabis for our children to treat severe epilepsy. Please tune in. #helpforteagan#SoExcited
https://t.co/8wSSsayFzF
The perfect 11th birthday present for Teagan would be an NHS prescription for medical cannabis, sadly this remains elusive. If you can help with a share, retweet or a donation it will make a huge difference to meeting the monthly costs #helpforteagan
https://t.co/3b05dqruJV
Hi @MattHancock Teagan turns 11 next week, how about you deliver the best birthday present ever & you follow through on your promises to sort out NHS prescriptions for children with severe epilepsy? #helpforteagan#MedicalCannabis
We still wait for an NHS prescription for medical cannabis, despite promises of action from @MattHancock The evidence is there from Teagan & children all over the UK. It is time to put the interests of our children first #helpforteagan https://t.co/2ktvBDFrOq
During #NationalEpilepsyWeek we reflect on the changes #medicalcannabis has made to Teagan's life & juggling strains to prevent resistance, a task made more difficult by broken promises of @MattHancock from 18mths ago, Matt, you can help prevent hospital visits. #helpforteagan
We have 2 prizes to win! Spa day treatment & a supercar driving experience. Both can be used at locations throughout the UK & raffle is £1 per strip. All funds go to Teagan's medication.
https://t.co/baQMwIP0c0
#helpforteagan#Raffle#spaday#supercar#racing#fundraising
NICE guidelines say evidence of benefit of medical cannabis does not exist. We challenge that "guidance" daily, proving it incorrect, daily. Teagan is proof of its benefit, her communication & choice making melts our ❤ it's time for guidance to match the evidence #helpforteagan
One of the greatest challenges in #COVID19 lockdown is fundraising to supplement the monthly cost of Teagan's #MedicalCannabis medication, all usual avenues are now prohibited & we are no closer to an NHS prescription. Any help, donations or RT appreciated https://t.co/z80QRNBEXD
1/ As is documented #MedicalCannabis is often a balance & treatments need changing to prevent building tolerance which is what has happened with the current strain & has seen increase in seizures. We now will try another type oil to try counter this & switch monthly & overcome
Quite a lot has happened in 2019, summarised below in Facebook link. Thank you to everyone who has supported, we will continue to pressure @MattHancock to honour his promises, you see Matthew, unlike you, we keep our promises! #helpforteagan#endourpain
https://t.co/jAlNw90g4f