Emma

Creative, slow living, flower child🌻[email protected]

[Emma @Emmmasometimes]

Hi @sweatybetty my mum ordered leggings as a gift for me before Xmas but nothing turned up not even an email. We have a screenshot of the order number. Not sure what’s gone wrong can we try to sort this out. I’ve messaged you, please reply.

[Emma @Emmmasometimes]

@tenacious_mumma I really wish sleepy tired wasn’t confused with what people with ME/lyme etc feel. It’s absolutely no where near that kind of tired.

[Emma @Emmmasometimes]

@RoyalMail It took me a year to fill out the form I’ve sent due to chronic illness and it also contains sensitive information and a copy of my ID. Seriously not good enough, it’s not like I sent it with standard post. Thanks for the link.

[Emma @Emmmasometimes]

Hi @RoyalMail I posted a letter on the 11th june first class signed for and it’s not been delivered. As that’s nearly 3 weeks what do I do????

[Emma @Emmmasometimes]

@padpadpadpad I’m always hoping life starts to be far far kinder to Sophia. She is so missed from our online community. Thank you for sharing. 💙💚

[Emma @Emmmasometimes]

@FrickerAlice I hope Alice can get some sleep soon and these stats become more stable. Wonder if it’s worth asking a dr if an oxygen concentrator would be a good idea for this situation? You can buy/hire them. I had one for 6 months due to low tissue oxygen caused by babesia.

[Carly Welton @carlywelton]

Please sign this petition for MCAS to be properly recognised by the NHS

https://t.co/GfooC0dXyI

[Emma @Emmmasometimes]

@tescobankhelp I can’t get through on the phone can you message me please

[Emma @Emmmasometimes]

@burner_cotton @daringshift @TaraFotiPhD As well as Lyme specific bands not counting anymore on the western blot due to the vaccine that isn’t in use. So you could have Lyme bands but it will say negative because they’re not counting them due to the defunct vaccine. You need a Lyme literate dr to read test results.

[Emma @Emmmasometimes]

@burner_cotton @daringshift @TaraFotiPhD No test can 100% rule out Lyme. Specialist labs such as Igenex are better though. The Elisa test is like tossing a coin, the western blot relies on your immune system working & Lyme likes to suppress it.

[Emma @Emmmasometimes]

@daringshift @TaraFotiPhD Thats such a good idea! Will be suggesting that next time a costly retest is suggested! Came here to suggest Lyme too as I find if I forget antibiotics and take my Nattokinase as usual my joins hurt badly and my legs feel drunk/do their own thing when trying to walk.

[Julie Houston @JulesAHouston]

Blown away that Millie's petition already has over 5,500 signatures. Please keep signing & sharing. #VerySevereME
#TeamMillie #NHSProtocol4SevereMENow #DontLetMeDie #MEKills #EndMalnutritioninME #SaveMillie #pwLC #pwME
https://t.co/ZLqCIxS5ba

[38 Degrees @38degrees]

Strip former Post Office CEO, Paula Vennells, of her CBE due to her role in the wrongful prosecution of 550 Post Office staff as part of the Horizon computer scandal.

Join our campaign: https://t.co/sbGENj9EID

#MrBatesVsThePostOffice

[Emma @Emmmasometimes]

@UKLyme Or don’t dispose of it, send it to a lab to be tested for infections instead

[Donna Lugar @Middleagemom]

Worth sharing over and over again. The erythema migrans (EM) Lyme rash doesn’t just look like a bull’s-eye. In fact, the bull’s-eye is only seen in a small % of cases. As well, not everyone gets, or sees, a rash. #Ticks #Tickborne #Erythemamigrans #Lyme #Betickaware #Stopthebite

[Emma @Emmmasometimes]

@mookpixie Why do they keep doing things like this 😩

[Emma @Emmmasometimes]

@mookpixie It’s tempting just to get away from Elon musk updates that I didn’t ask for 😂

[Emma @Emmmasometimes]

@KSchnickelfritz I find it helpful. But start really low and increase slowly.

[Emma @Emmmasometimes]

@DiaryofaSickGrl A cardiologist googled in my appointment to look up POTS on Wikipedia 🙈

[Emma @Emmmasometimes]

@Debbiejaa1 @vinted I’ve had the same problem, all @vinted suggest is asking the seller to split the cost outside of the app. What do we pay “buyers protection” for if not covered when an item is damaged/not as described? No surprise the seller doesn’t care and won’t do that.