Endometriosis Foundation of America (EndoFound)

The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, and fund landmark #endometriosis research.

[Endometriosis Foundation of America (EndoFound) @Endofound]

525 students. 21 classroom presentations. One unforgettable day 💛

Last week, the ENPOWR Project reached a milestone at Benjamin Cardozo High School in Queens, NY, educating 525 sophomore health students about #endometriosis in what became our largest single-day school outreach effort to date.

What made the day especially meaningful wasn’t just the numbers, it was the engagement.

Students asked thoughtful questions, shared personal experiences, and stayed after class to continue conversations about symptoms, self-advocacy, and reproductive health.

As Endo Educator Zoë Pribula (@endoafterexcision) shared, “I got to be the person I wish I had 15 years ago.”

That’s exactly why ENPOWR exists: to ensure young people have the information, language, and confidence to recognize symptoms, advocate for themselves and their loved ones.

Thank you to our incredible staff, volunteer Endo Educators, and the students and faculty at Benjamin Cardozo High School for making this record-setting day possible!

#endometriosisawareness

[Endometriosis Foundation of America (EndoFound) @Endofound]

What if changing the future of #endometriosis didn't require one big gesture, but a community of people showing up month after month?

As @lesliemosier shares, small acts, when multiplied by many people over time, can create extraordinary change.
Monthly support helps fuel the work that happens every day, not just during awareness month or moments of urgency, but all year long. It helps us invest in research, education, advocacy, awareness, and support for the millions affected by endometriosis.

No contribution is too small. When we come together, every gift becomes part of something bigger.

💛 Join EndoCircle and help create lasting change, one month at a time: https://t.co/kdMVIKARNO

[Endometriosis Foundation of America (EndoFound) @Endofound]

Share this to help others better understand the realities of living with #endo 💛

[Endometriosis Foundation of America (EndoFound) @Endofound]

Summer is supposed to be carefree.

But for many people with #endometriosis, it's navigating pain during vacations, worrying about flares during long-planned events, dealing with fatigue in the heat, hiding bloating under summer clothes, and wondering if they'll have to cancel yet another outing.

If this feels familiar, you're not alone. And if someone in your life lives with endometriosis, this is a glimpse into what summer can really look like.

[Endometriosis Foundation of America (EndoFound) @Endofound]

New Podcast Ep now Live: @thefolake shares how @DrSeckin’s book validated years of #endometriosis symptoms and struggles—and why that experience was truly life-changing.

🎧 Listen to Part 2 of the EndoTV Podcast wherever you stream podcasts: https://t.co/KHuzbsI1Di

📖 The updated second edition of “The Doctor Will See You Now” is available: https://t.co/onSk2Aa1ct All proceeds benefit EndoFound 💛

@dianafalzone

[Endometriosis Foundation of America (EndoFound) @Endofound]

It’s chronic pelvic pain.
It’s fatigue that doesn’t go away with rest.
It’s back pain, hip pain, leg pain, and nerve pain.
It’s painful sex.
It’s bloating, nausea, and GI symptoms that are often mistaken for something else.

It’s canceled plans.
It’s sleepless nights and heating pads.
It’s missed school, missed work, and missed opportunities.
It’s anxiety about when the next flare will hit.
It’s years spent searching for answers.
It’s being told your symptoms are “normal.”
It’s feeling dismissed, doubted, or misunderstood.
It’s wondering if anyone believes you.

It’s carrying the emotional weight of a disease that so often goes unseen.

Endometriosis is a whole-body disease that affects every aspect of a person's life.

#endometriosisawareness

[Endometriosis Foundation of America (EndoFound) @Endofound]

Ten years can change everything.

In this special two-part EndoTV episode, EndoFound co-founder @DrSeckin joins host @dianafalzone to discuss the newly updated edition of his book “The Doctor Will See You Now” and how our understanding of endometriosis has evolved over the past decade.

From recognizing endometriosis as a whole-body disease to advances in excision surgery, fertility preservation, and the growing awareness of thoracic, sciatic, and neurocentric endometriosis, this conversation explores both how far we’ve come… and how far we still have to go.

Whether you’re a patient, caregiver, advocate, or healthcare professional, this is a conversation you won’t want to miss.

🎧 Stream Part 1 now on Spotify and wherever you get your podcasts: https://t.co/EMeEiT7bJi

#endometriosis #endometriosisawareness #endoresearch #endo #livingwithendometriosis

[Endometriosis Foundation of America (EndoFound) @Endofound]

When you live with #endometriosis, you learn pretty quickly how often it gets minimized, overlooked, or misunderstood.

That's why the work of changing that reality matters so much.

We also know that for many people right now, there isn't a lot of extra room in the budget. A monthly gift may not feel possible for everyone, and that's okay. But for those who are able, even a small contribution can become something much bigger when it's joined by others who care about this community.

A few dollars here and there may not seem like much. But collectively, those gifts help support research, education, advocacy, and awareness efforts that continue pushing endometriosis out of the shadows and into the conversations, doctor's offices, and research labs where it belongs.

EndoCircle was built on the belief that lasting change doesn't come from one person doing something extraordinary. It comes from people showing up, consistently, in whatever way they can.

If Endometriosis has touched your life—or the life of someone you love—we hope you'll consider joining us and making a monthly contribution 💛

Join us here: https://t.co/kdMVIKARNO

[Endometriosis Foundation of America (EndoFound) @Endofound]

Today, on what would have been #MarilynMonroe’s 100th birthday, we’re remembering a part of her story that is often overlooked.

Behind the glamour and iconic image was a woman living with debilitating #endometriosis, a disease that shaped much of her life, career, and dream of becoming a mother.

A century after her birth, Marilyn’s story still resonates because millions continue to face many of the same challenges.

Thank you to Rebecca Kaplan for this thoughtful look at an often-overlooked chapter of Marilyn’s life.

Read more: https://t.co/ErAAwjLrDc

[Endometriosis Foundation of America (EndoFound) @Endofound]

Her full story is deeply honest, heartbreaking in parts, and ultimately hopeful: https://t.co/pnFcVGN69J

[Endometriosis Foundation of America (EndoFound) @Endofound]

“I sat in my car and cried, wondering if I was being dramatic.”

That line stayed with us. Because so many people with endometriosis know exactly what that moment feels like. When pain is minimized long enough that you begin questioning yourself instead.

For six years, @kristennlarose lived with daily pain, exhaustion, anxiety, GI symptoms, inflammation, and the exhausting reality of trying to function while feeling like her body was constantly working against her. She was dismissed, doubted, and told it was “just a bad period.” Even minutes before surgery, she was still being told they likely wouldn’t find #endometriosis.

They did.

Last week, she stood on Capitol Hill advocating for new women’s health legislation, using the same voice she once had to use just to convince doctors something was wrong.

[Endometriosis Foundation of America (EndoFound) @Endofound]

If you’ve ever felt frustrated, isolated, overwhelmed, or like you don’t recognize yourself anymore, you’re not alone. The impact is real, and it deserves to be acknowledged just as much as the physical symptoms💛

[Endometriosis Foundation of America (EndoFound) @Endofound]

Endometriosis doesn’t just affect your body, it can shift your entire world.

The exhaustion that no one sees. The unpredictability of never knowing how you’ll feel from one day to the next. The constant calculations, canceled plans, self-doubt, and questions of “Is it really that bad?”

When pain and symptoms become part of daily life, they can start affecting more than your physical health. And because so much of it is invisible, many people carry that weight quietly.

[Endometriosis Foundation of America (EndoFound) @Endofound]

“Nothing is wrong. Just keep trying.”

For years, that was the answer Bryn kept hearing while enduring five miscarriages, unexplained digestive symptoms, surgeries, injections, and the quiet heartbreak of feeling like her body was failing her.

Then came a four-hour surgery and a diagnosis: stage IV endometriosis “absolutely everywhere.”

What followed wasn’t just answers — it was a completely different future. Two children. Relief from symptoms she had lived with for years. And the realization that so many things she had accepted as “normal” never were.

Sometimes persistence changes everything.

Read her full Endo Story: https://t.co/yj1jTNdcea

[EndoSpecialist @DrSeckin]

10 yrs ago, I wrote “The Doctor Will See You Now” with a message I wanted every patient to hear: your pain is real, you are not imagining it, and there is hope.

The new edition is available now: https://t.co/U8ZwrSEFho

[Endometriosis Foundation of America (EndoFound) @Endofound]

Today at the New York State Capitol, we stood together for a future where no young person suffers for years before learning that their pain may not be normal. Thank you to the incredible #endo warriors, advocates, Miss NY @thelaurennorr and the members of EndoFound’s UpEndo Coalition for showing up, speaking out, and supporting this mission.

Now we need your help.

If you couldn’t join us in person today, you can still make an impact by signing our petition urging the passage of Assembly Bill A7557. This bill would bring education about menstrual disorders, including #endometriosis, directly into New York classrooms helping students recognize symptoms earlier, understand when something may be wrong, and learn how to advocate for themselves.

The average endometriosis diagnosis still takes 7–10 years. Education can help change that.

📣 Sign the petition and tell the NYS Assembly: Pass A7557 📣

Link to the petition: https://t.co/kGWEnKL5t2

[Endometriosis Foundation of America (EndoFound) @Endofound]

🎙️ New episode just dropped: *Living With Endometriosis: The Diet, Fatigue & Flare Reality Nobody Talks About*

“I truly felt like I was dying — and every doctor kept telling me everything was normal.”

This isn’t a conversation about quick fixes or miracle diets. It’s about what life with endometriosis can actually look like… and the tools, understanding, and validation that can help make the journey less isolating.

After a 12-year diagnostic delay, clinical nutritionist and endometriosis patient Savannah Regensberger joins @dianafalzone for an honest conversation about the parts of endometriosis that often happen quietly: debilitating fatigue, brain fog, gut issues, fertility struggles, inflammation, and the unpredictability of flares.

Listen now wherever you stream your podcasts — Spotify, Apple Podcasts, and more. https://t.co/oeCFiKtDND

#endometriosis #lifewithendometriosis #hope

[EndoSpecialist @DrSeckin]

For many in the endo community, hearing the word “#endometriosis” included in a national conversation around women’s health is meaningful.

Progress in this field has never happened overnight.