Project Endo

1st came Endo What?...then premiered Below The Belt, now we continue to mobilize for change as PROJECT ENDO.

[Project Endo @projectendo]

Researchers at Yale and collaborating institutions have published the largest genetic study of endometriosis to date, identifying 80 genomic regions associated with disease risk, including 37 new discoveries.

Full article here-https://t.co/grDfn9nKGC

[Project Endo @projectendo]

A decade of missed moments.
A decade of being told to wait, manage it, push through, or try another pill.
A decade where pain keeps moving forward while answers stand still.

The time for change is now. #thinkendo

Repost from @lilythompstone

[Project Endo @projectendo]

“The Invisible Hell. Endometriosis: The Loneliness of a Pain With No Name” by Marcello Ceccaroni brings that reality into the open.

Available in bookstores June 5, 2026. Pre-order online: https://t.co/AJHxlOpBfo

[Project Endo @projectendo]

Girls learn early that pain is something to work around instead of something that deserves attention. By the time many realize something is wrong, they’ve already spent years hiding it, minimizing it, and performing wellness for everyone around them.

repost @theendogirlsclub

[Project Endo @projectendo]

Me: “I’m okay!”

Meanwhile my body has a 47 point presentation, three specialist updates, and at least one new symptom to report. 😅

Repost from @bloombeyonddiagnosis

[Project Endo @projectendo]

Rutgers University is seeking individuals with endometriosis to participate in an IRB-approved research study. If you would like more information or have questions, please contact the study coordinator, Dr. Allyson Bontempo, at: [email protected].

[Project Endo @projectendo]

When endometriosis tries to break us down, we rise stronger, fiercer, and more resilient than anyone realizes. Warriors in every sense of the word. 💛

Thank you for this inspiration @endowithlau

[Project Endo @projectendo]

The shift to P.M.O.S. (polyendocrine metabolic ovarian syndrome) is more than a name change. It’s an acknowledgment that this condition impacts the entire body and patients deserve a diagnosis that reflects what they’re experiencing.

Full article here- https://t.co/cyLJW3sztn

[Project Endo @projectendo]

For 17 years, Monica Thomas was accused of faking her pain. Today, she’s finally been diagnosed with thoracic endometriosis.

This is what medical misogyny looks like IRL. Delayed care, delayed treatment, and years taken from people who knew something was wrong all along.

@gmb

[Project Endo @projectendo]

Could it be endometriosis?
In this clip, Dr. Iris Orbuch breaks down some of the most common symptoms she sees every day in endometriosis patients. 💛

Repost from @eggwhisperer

#thinkendo #listentous

[Project Endo @projectendo]

Father-daughter rivalry, but make it endometriosis trivia. 😍

Who knows more? Who folds under pressure? And who’s about to get fact checked at the family dinner table? 👀

Thanks so much for sharing! @drliu_endometriosis_surgeon

[Project Endo @projectendo]

Making its international debut at this year's Edinburgh Festival Fringe is the award-winning musical - Endometriosis: The Musical!

Venue: Gilded Balloon Patter House, Downstairs Dates: 5–31 Aug 2026 (not 17, 24)
Tickets: £10 - £13.50
Website: https://t.co/podNGZVeWR

[Project Endo @projectendo]

There is something incredibly powerful about choosing to be seen in moments we’re often taught to hide. Sharing those vulnerable realities can be uncomfortable, but it's within this discomfort that we find connection and support. 💛

Thank you for sharing @growwithendo

[Project Endo @projectendo]

Living with endometriosis sometimes feels like being personally selected for a very specific and deeply unnecessary character-building experience.

Repost from @endometriosisandyap

[Project Endo @projectendo]

The medical pain scale was never designed to measure what it means to live with extraordinary pain every day.

Sometimes the hardest part is not answering “how bad is the pain?”
It’s explaining how much of your life has been built around surviving it.

Repost from @endo_heal

[Project Endo @projectendo]

Anyone living with a dynamic disability knows how quickly needs can change. Symptoms fluctuate, and support needs shift. Adapting to that reality is not “faking it.” It’s responding to a body that doesn’t function the same way every day. 💛

Repost from @endometriosisem

[Project Endo @projectendo]

Sometimes we all need a reminder that we matter, that our pain is valid, that we can still build a life that's ours despite the pain. Grateful to @oliviabrierley for sharing these words of encouragement. 💛

[Project Endo @projectendo]

Endometriosis and cancer share real biological similarities, including invasive growth, inflammation, and the ability to spread beyond their original site.

The signs are there. The attention isn’t.

Repost from @the.endometriosis.coach

[Project Endo @projectendo]

“Women end up getting a PhD in their own condition.”

When answers aren’t clear or don’t come quickly, women often find themselves researching, tracking patterns, asking difficult questions, and trying to make sense of it all on their own.

Repost from @drjolenebrighton

[Project Endo @projectendo]

A study from Oxford University is pointing toward earlier, less invasive diagnosis for endometriosis. Using a SPECT-CT scan, researchers detected most cases later confirmed by surgery.

Read more: https://t.co/vBr8EjBFBR