Endo Silence Scotland

📣 A voice for endometriosis warriors in Scotland and beyond / Ending the silence & smashing the taboo #period🩸✉️ [email protected]

[Endo Silence Scotland @EndoSilence]

HAVE YOU SEEN our latest 🎥 interview with Professor Horne @horne_research @ @exppect about pelvic pain and the grey areas? ☁️

WHAT happens if it’s not #endo? FULL video on FB and Instagram TV #endosilence👇

[Endo Silence Scotland @EndoSilence]

Big thank you to Emma for sharing her #EndoStory over on our IG 💛

Our first share of 2021, Emma tells us about her #endometriosis journey so far & her brave decision to have a hysterectomy at 29 💪

https://t.co/kwEFJCoquH

[Monica Lennon @MonicaLennon7]

It takes on average 7.5 years for women to get an Endometriosis diagnosis. We need investment in research and NHS services to end this health injustice.

@EndometriosisUK is a reliable source of advice.

@katyjjo @dionnemcfx @horne_research @EndoSilence @EndoDundee @2013Clairew

[Endo Silence Scotland @EndoSilence]

We’re on this week’s @WeekInTheWeeg podcast chatting endometriosis for #EndometriosisAwarenessMonth 🌟 Listen here! 📱👇

[Week in the Weeg @WeekInTheWeeg]

⚠️ Coming tomorrow on #WITW!

@EndoSilence founder @katyjjo joins us in the studio to discuss all thing #Endometriosis this awareness month!

Stand-by... 💪🏻

[Endo Silence Scotland @EndoSilence]

Today marks the first day of #EndoAwarenessMonth 🌟

This one is mega and it’s important that we all share/post/support each other throughout March! 📆

Who is coming along to @EndomarchG ?🎉

[Endo Silence Scotland @EndoSilence]

Dundonians, here’s a date for your diary! 📆

[Endometriosis UK Dundee Support Group @EndoDundee]

#Endometriosis #Dundee launches next week @NHSTayside @dundeeuni #EndometriosisAwarenessWeek

[Endometriosis UK @EndometriosisUK]

This is the beginning of incredible change. No longer will young people suffer in silence because they believe their pain is normal or because they're too ashamed to speak up. This is what's possible when we raise our voices. 🎗 Pls RT #menstrualwellbeing2020

[Endometriosis UK @EndometriosisUK]

Great news for those in Scotland today! The @scotgovhealth Minister for Public Health has confirmed that the @NICEcomms #endometriosis guidelines are applicable in Scotland. We now look forward to working with the Government to ensure this commitment becomes a reality.

[Endo Silence Scotland @EndoSilence]

Check out this amazing campaign in the @MetroUK all about invisible illness! #YouDontLookSick ! 👏👏👏

[Laura Abernethy @LauraJAbernethy]

I'm launching a new weekly series today for @MetroUK called #YouDontLookSick. It's a look at what it's like living with #invisibleillness or #invisibledisability. First up is Kim, who has chronic lung condition COPD https://t.co/6VEOtq9pJ5

[Hey Girls @HeyGirlsUK]

We had a lovely catch up this afternoon with @dionnemcfx, talking all things #Endometritis Let's work together to #EndEndo @endowestlothian ❣

[Plan International UK @PlanUK]

We are thrilled to announce that we are actually getting a #PeriodEmoji!

It is through your support that we can now celebrate that the @unicode have announced that we will get our first ever #PeriodEmoji in March 2019 🎊

Find out more here ▶https://t.co/dKd4WwEShX

[Endo Silence Scotland @EndoSilence]

Goes without saying, but here’s what we stand for at #endosilenceScotland 👋🏴󠁧󠁢󠁳󠁣󠁴󠁿 NO tolerance for the intolerant here! 🌈 all are welcome and every experience of pelvic pain, endo and gynae issues is valid. 👍

[TOTM @totmorganic]

After being diagnosed with stage 4 #Endometriosis, Katy set up @EndoSilence to raise awareness of this condition and to give a voice to #EndoWarriors. We chat to Katy about Endometriosis myths and what keeps her motivated on tough days: https://t.co/E4Nrp64TIM

[Endo Silence Scotland @EndoSilence]

Looking to host an #endofriendly Y O G A session in Glasgow next month. The session would focus on managing pelvic pain and gentle exercise to build core strength. 🧘‍♀️ Who’s up for it? 🤔

[Endo Silence Scotland @EndoSilence]

@VikTurbine Thank YOU for all of your support! So glad you were able to share your story. I know it will help so many to feel less alone in all of this. 💖

[Aimée @Hairsprayqueen]

@EndoSilence This was one of the moments today that really hit me hard and made me quite emotional. Hearing those words from someone as esteemed as Dr Critchley after so many years of embarrassment, confusion and doctors sweeping it under the rug.

[Endo Silence Scotland @EndoSilence]

“When you’ve got to sleep on three towels, or you’ve got to be the last person to get up off their chair - you start to realise how debilitating heavy bleeding can be” - Dr Hilary Critchley

[Endo Silence Scotland @EndoSilence]

“All we can do with IVF is stimulate those follicles that are ready to be stimulated. We can’t give you new ones. Having a normal AMH is reassuring and there might be other things we can do. Thats when you’d come to see someone like me” - Dr Maya Chetty

[Endo Silence Scotland @EndoSilence]

“The big problem is that we don’t have a test to diagnose endometriosis. We are still reliant on surgery. What we need is a bio marker for endometriosis. A simple test” - Dr Andrew Horne

[Endo Silence Scotland @EndoSilence]

“We forget just how important the menstrual experience is. You may have pain, you may have infertility but you may also have heavy bleeding. Even in the endometriosis community, that gets forgotten about” - Dr Hilary Critchley