ERDERA

The European Rare Diseases Research Alliance.

Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.

[ERDERA @ERDERA_org]

Living with a #RareDisease can pose many challenges. A long wait from symptoms to diagnosis and limited or no appropriate treatment options are common for individuals with rare diseases. #ERDERA is dedicated to changing this 👉 Vist our website for more: https://t.co/Lm3Zcg6ZFk

[ERDERA @ERDERA_org]

🎯 Shaping the new era of rare disease research.
Three days. Six session themes. One #REACTCongress bringing the #RareDisease community together to explore the research and challenges shaping what comes next.
📆 10–12 March 2027 | Budapest
🔗 Register: https://t.co/uY2HQQ2nQE

[ERDERA @ERDERA_org]

📍Yesterday, ERDERA Coordinator Daria Julkowska joined @parlimagevents Health Summit to discuss #RareDiseases as an EU health priority. The message was clear👉 European ambition must be matched by Member States turning shared goals into national action. #EUHealth #PMhealth

[ERDERA @ERDERA_org]

🧬 AI, clinical trials, emerging therapies and the future of rare disease research were all part of the conversation at #WODC2026.
👉 Find out what was discussed and how #ERDERA contributed: https://t.co/RgifC7C44d
#RareDiseases #EUHealth

[ERDERA @ERDERA_org]

⏳ Just 20 days to go! Have you registered yet?
Join ERDERA’s Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases, taking place in Riga & online on 25–26 November.
👉 Explore the agenda, meet the speakers & register: https://t.co/NlhqAyLOHi
#ERDERA #RareDiseases

[ERDERA @ERDERA_org]

👉 EURORDIS-Rare Diseases Europe has launched the European Blueprint for Rare Diseases, setting out priorities for a future EU Action Plan on Rare Diseases. 💫 ERDERA welcomes this important step towards coordinated European action. #RareDiseases #ERDERA #EURORDIS

[ERDERA @ERDERA_org]

🚀 A week ago, the ERDERA General Assembly Meeting set the stage for the partnership’s third year.
👇Discover the key discussions, takeaways and priorities of the 3rd ERDERA General Assembly Meeting 🔗 https://t.co/DBGNrg2t8n
#ERDERA #RareDiseases #RareDiseaseResearch

[ERDERA @ERDERA_org]

Europe already has many of the standards needed to make better use of rare disease data. Now, the challenge is putting them into practice.
👉 The new ERDERA policy brief sets out how: https://t.co/rES8B0nu5Z
#HealthData #ERDERA

[ERDERA @ERDERA_org]

🔴 Live from #WODC2026!
ERDERA’s workshop “AI for Rare Diseases: From Promise to Practice” is exploring where AI can support rare disease research and therapeutic development, and where human expertise remains essential. More to come!
👋Come to booth 321 and meet the ERDERA team

[ERDERA @ERDERA_org]

That’s a wrap on #ERDERA’s 3rd General Assembly Meeting! 🎉
176 participants in Coimbra and 300+ online came together for three days of scientific exchange, strategic discussions and collaboration.
Thank you to everyone who contributed! 🤝
More insights to come! #RareDiseases

[ERDERA @ERDERA_org]

🧬 From individual cases to new treatment pathways.
At the #ERDERA Open Session, European, regulatory & scientific perspectives came together to explore how innovation can reach people living with ultra-rare diseases. 🔎 Read more: https://t.co/BaniNgINbR
#RareDiseases

[ERDERA @ERDERA_org]

📢 The ERDERA #JTC2027 pre-announcement is live!
This year’s call will focus on recently identified rare diseases, helping build the knowledge and evidence needed for future therapeutic development. 🔗 Find out more: https://t.co/CGYd7NmU0o
#RareDiseases

[ERDERA @ERDERA_org]

⏳ One week to go!
Join ERDERA at the @orphan_drugs 2026 in Amsterdam for our interactive workshop, “AI for Rare Diseases: From Promise to Practice”, on 26 October at 10:00 AM to explore how AI can move from promise to meaningful practice.
Learn more: https://t.co/cKZffmXWHG

[ERDERA @ERDERA_org]

👀 What’s on at the #REACTCongress 2027?

The programme and speakers are waiting to be explored! 🧬🎤

Discover what’s on the agenda, who’s taking the stage and start planning your Congress experience. 👉 https://t.co/uY2HQQ1Q16

#RareDiseases #ERDERA

[ERDERA @ERDERA_org]

⏳ Just one week to go!
Join ERDERA’s #OpenSession 2026, a special anniversary event exploring how innovation, collaboration and novel clinical trial approaches are advancing rare disease research.
🔗 Discover the agenda, speakers and register now: https://t.co/OmUJvMFxJn

[EURORDIS-Rare Diseases Europe @eurordis]

That’s a wrap in Barcelona! ✅

Day 2 of our #EURORDISOpenAcademy x @ERDERA_org training explored ethics, informed consent, the #EHDS, AI in clinical practice, and how people living with rare diseases can help shape what comes next!

🤝 https://t.co/RJp6Vyf5VO

[RareBoost @RareDiseasesIBG]

🌟Dr. Sofia Douzgou Houge (Haukeland University Hospital; Norwegian Center for Rare Disorders, Norway) is one of the speakers at the EU-ChromNet Meeting 🌟

👉Join us to hear her talk at EU-ChromNet 2026! Register at https://t.co/Ez8PkpdbyW

@ERDERA_org @ERNIthaca #rarediseases

[ERDERA @ERDERA_org]

💡 Join the ERDERA Knowledge Exchange Meeting on Drug Repurposing for Rare Diseases, and exchange experiences and best practices between underrepresented and high-performing countries.
📅 25-26 November 2026
📍 Riga & online
🔗 Find out more & register: https://t.co/NlhqAyLgRK

[ERDERA @ERDERA_org]

🧬 What ethical challenges arise in ATMP research, and how can resolving them become an advantage?
Join the next #ERDERA Ethics & Regulatory Webinar with Joana Namorado.
📅 2 Nov 2026 | 13:00 CET
💻 Online
🔗 Find out more & register: https://t.co/oKoFlGFRXd
#RareDiseases #ATMPs

[ERDERA @ERDERA_org]

📢 Have you registered yet? On 21 October, ERDERA will host its Annual Open Session, a special #anniversary event exploring how innovation, collaboration and novel trial methodologies are advancing rare disease research.
Register: https://t.co/OmUJvMFxJn

[EURORDIS-Rare Diseases Europe @eurordis]

📢 Registration is open!

Join us in Dublin on 13 Nov to explore how we can turn rare disease research & innovation into better outcomes, with the rare disease community at the heart of progress.

📍 Dublin
👉 https://t.co/GqNDIbbqst
@RareDiseasesIE