EuMGA

The European Myasthenia Gravis Association (EuMGA) is an International Organization that acts as a platform for the National MG Associations in Europe

[EuMGA @EuropeanMGA]

On 12 June, @EuropeanMGA & MEP Tomislav Sokol are bringing together patients, policymakers & health experts at the European Parliament to push for real change in how Myasthenia Gravis (MG) is diagnosed, treated & supported across Europe.
https://t.co/KNsMMj4k2O
#MyastheniaGravis

[EuMGA @EuropeanMGA]

“Myasthenia Gravis – Treatment & Quality of Life,” organized by the Icelandic MG Association.

👉 Read the full article on our website at the link!

https://t.co/HAAFt3FszT

[EuMGA @EuropeanMGA]

Grateful to EAMDA for hosting an insightful webinar on Myasthenia Gravis, featuring key updates from Dr. Francesca Cortese and a personal contribution from our secretary Dimitris Zaftis. #MyastheniaGravis #Awareness #EAMDA #eumga

https://t.co/b6uB4ok5Gw

[EuMGA @EuropeanMGA]

We’re excited to share that our association and our president, Lut Allard, have been featured in the latest edition of the Portuguese Journal of Neurology!

#eumga #myasthenia

[EuMGA @EuropeanMGA]

Tania, a 35-year-old athlete with Myasthenia Gravis, is representing Greece at the Paralympics!

🔗 Read her inspiring story on our website:

https://t.co/He1FeCBGYK

#myasthenia #myastheniagravis #raredisease #paraathletes #paralympics #paralympics2024

[EuMGA @EuropeanMGA]

It's wonderful to see the unity and diversity across Europe in raising awareness for myasthenia during June! Discover all the activities we carried out in our latest article. Read here: https://t.co/1FVjN5cizE
#Myastheniagravis
#myasthenia #MGawareness

[EuMGA @EuropeanMGA]

Are you living with a rare disease or caring for someone with a rare disease?
💡EURORDIS - is conducting its new Rare Barometer survey on the opinion of people living with rare diseases in 24 languages

You can access it at:https://t.co/Cnx6LojYYB

[EuMGA @EuropeanMGA]

🎉 Exciting News! Our Association has launched its very first newsletter!

A big thank you to everyone who has already subscribed.

If you haven't signed up yet, Visit our website or click the link below to subscribe today!

🔗 https://t.co/We19Gb8tI7

[EuMGA @EuropeanMGA]

Check out the #Myasthenia Gravis patient journey with the easy-to-follow poster from EURO-NMD. It covers 5 steps, from noticing the first symptoms to getting the right support after diagnosis.
Find out more:

https://t.co/JnbDaCXaSq

[EuMGA @EuropeanMGA]

Are you affected by a neurological condition, or are you a carer for someone who is?
If so, please take EFNA’s survey exploring the invisible issues of neurological conditions:
https://t.co/AXAK2uxsVo

#invisibleillness #Neurology
@EUneurology

[EuMGA @EuropeanMGA]

Join us for a Myasthenia Gravis (MG) webinar on June 25th at 9:30 CET! Get insights from Dr. Francesca Cortese and Dimitris Zaftis of EuMGA. Hosted by EAMDA. #MyastheniaGravis 🔗 Register here: https://t.co/n1tyrBGq53

[EuMGA @EuropeanMGA]

The ENMC has released a lay report from the workshop on “Seronegative #MyastheniaGravis: This workshop gathered top neurologists and patient advocates to share insights and foster collaboration. The report is available in multiple languages.

🔗 https://t.co/eW4QOAnJoR

[EuMGA @EuropeanMGA]

June is Myasthenia Gravis Awareness Month. Let’s spread the word and support those affected by this rare autoimmune disease. #MGAwareness #mgawarenessmonth #myastheniagravis #myasthenia

[EuMGA @EuropeanMGA]

Exciting news from our AGM! Dimitris Zaftis confirmed as Secretary, Lut Allard confirmed as Treasurer and elected as President, and Maya Uccheddu joins us as a new Board Member. As we approach #Myasthenia Gravis Day, we’re more committed than ever to supporting our community.

[EuMGA @EuropeanMGA]

Join MG organizations worldwide on Sunday, June 2nd, to light the world teal for #myasthenia gravis awareness! You can illuminate a landmark or simply turn on a teal (green, or blue) porch light. Share your photos with the hashtag #lighttheglobeformg

Every light counts!

[EuMGA @EuropeanMGA]

Exciting News: EUMGA's New Website!
Explore our new website, the collective voice of MG patient associations across Europe.
Stay Informed: Check out the latest news and updates.

https://t.co/2suDQxAxZb

[Lisa @lisash2507]

Leading cause of disability and illhealth #ms #nurse #neurologynurse

[EuMGA @EuropeanMGA]

Sign the petition ✨✍🏻

[EuMGA @EuropeanMGA]

Show your support for prioritising neurological #health, ensuring innovative treatments and patient-centred care are at the forefront of #EUhealth policy, by signing EFNA’s Call to Action: https://t.co/HpgTpgjv5m
#EUelections

[Richelle Flanagan 💚💚💚💚 @RichelleFlan]

We take facial expression for granted. Without realising it one of my #parkinsons symptoms was possibly #facialmasking as my son remarked the year in which I was diagnosed that “I didn’t smile as much as I used too”. I never noticed. Now I put an extra effort in when I smile 😀