FA Research Fund

Advancing Research. Supporting Families.

Find us on Facebook & Instagram @fanconianemiaresearchfund

[FA Research Fund @FAresearchfund]

"FA is terrifying but it's also allowed our family to slow down, appreciate our time together and unapologetically love Ryan & one another."

Ryan and her family are trying to raise $1,000 in honor of #FanconiAnemiaMonth! Will you help her reach her goal? https://t.co/9a3yJMOdJS

[FA Research Fund @FAresearchfund]

This is why we fund #headandneckcancer research. Not only does it benefit those with #fanconianemia, but all those touched by head and neck cancers.

[Stand Up To Cancer @SU2C]

SU2C Ambassador #EvanPeters joins #StandUpToCancer to raise awareness for esophageal & head and neck cancers. We Stand Up for Evan’s friend, Tony and others affected by this disease. Together, we will make the impossible possible. Learn more at https://t.co/tNxh7nWw6c.

[FA Research Fund @FAresearchfund]

@LarryMac28 Thank you for sharing about Hayden and #fanconianemia, Larry! We appreciate you!

[FA Research Fund @FAresearchfund]

🔬 Researcher Reminder: Applications for the $3.25 million head and neck cancer grant program are due March 22!
https://t.co/dgAM52ZbTE

[FA Research Fund @FAresearchfund]

Join others in the FA community this March during our #FAConnect free virtual events! Learn more & sign up here: https://t.co/EWTDhuWlZM

[FA Research Fund @FAresearchfund]

Reminder: Today at 5 pm Pacific there is a free workshop for individuals and families whose loved ones with Fanconi anemia have passed away. Click to sign up and connect with others 💙
#FanconiAnemia #FAConnect
https://t.co/WyMebMpg9M

[FA Research Fund @FAresearchfund]

🔬Calling all FA researchers: Applications for the Head & Neck Cancer Grant Program are due March 22. This is a $3.25 million collaborative grant to accelerate the treatment of head and neck cancers that affect people with FA. https://t.co/quQX0UHgxR
#standuptocancer

[FA Research Fund @FAresearchfund]

Are you part of an international FA support organization, or an individual who would like to support the FA community in your country? You may be eligible for a $10,000 grant to support international FA initiatives.
Applications due May 7. Learn more: https://t.co/0WMe8jqPCC

[FA Research Fund @FAresearchfund]

Join us February 18 to talk about living and coping with Fanconi anemia. This event is free to all individuals with FA and their caregivers. Learn more here: https://t.co/AnvKmZBBko
#FanconiAnemia #FAConnect

[FA Research Fund @FAresearchfund]

Looking for a new position with a growing organization? We're looking for a Clinical Science Program Manager to join our team. Could it be you? https://t.co/X4KLeGY8io

[FA Research Fund @FAresearchfund]

In December 2020, two COVID-19 vaccines were approved by the FDA in the United States. What does this mean for people with Fanconi anemia and their families? Click to read.
https://t.co/2PI5srZuAg

[FA Research Fund @FAresearchfund]

People with #FanconiAnemia are 500-700 times more susceptible to head and neck cancers than those in the population. Learn how we're addressing this: https://t.co/jj19EPwFlt
#StandUpToCancer #FanconiAnemia

[National Organization for Rare Disorders (NORD) @RareDiseases]

New webinar announced: #COVID19 Vaccines Update: #FDA and #CDC Leaders Address the #RareDisease Community on 1/15/21! Register now: https://t.co/Wui9bCrT7L

CC: @RareDiseases, @alsassociation, @MDAorg, & @CF_Foundation

[FA Research Fund @FAresearchfund]

The 5th edition of the Fanconi Anemia Clinical Care Guidelines is now available to download! https://t.co/uA3yktUvKt

[FA Research Fund @FAresearchfund]

After much deliberation and feedback from stakeholders across the FA community, we have made the decision to continue hosting virtual events in 2021.
Full Announcement ➡️ https://t.co/tdfRujIIaN
2021 Events Sign-up ➡️ https://t.co/EWTDhuWlZM

[FA Research Fund @FAresearchfund]

#ResearchFunded #FanconiAnemia
https://t.co/lK0xjLHHK6

[FA Research Fund @FAresearchfund]

Read about Fanconi anemia research updates shared this fall covering three main topics: cancer, fertility, and bone marrow failure. What do we know? What does this research mean for people with FA, and what are the next steps?
Find out here ➡️ https://t.co/V4NcUk3Qqg

[FA Research Fund @FAresearchfund]

Wow!! Yesterday on Giving Tuesday, 268 people, like you, gave $68,494 online! And, we're still counting generous gifts made offline! Thank you!

[FA Research Fund @FAresearchfund]

Today, your gift makes TWICE the impact thanks to our generous donors Monique & Roel Harryvan, who will match up to $15,000! Thank you! https://t.co/6aI3bEa1U7

[FA Research Fund @FAresearchfund]

#GivingTuesday is here! We're off to an incredible start raising funds for #Fanconianemia research and families! Give here ➡️ https://t.co/49Nx04jsRC