UPDATE: NICE will hold a roundtable next month to discuss #MECFS guideline with an independent chair and representatives from patient organisations & charities, relevant professional societies, NHS England & NHS Improvement, NICE and guideline committee.
https://t.co/qhszslo2tk
The publication of the NICE guidelines on diagnosis and management of ME/CFS has been paused. The updated guidelines were due to be published tomorrow, 18th August 2021.
https://t.co/uh4TKDhoM4
Due to the kind generosity of grateful patients, and their friends and families, FORME continues to fund groundbreaking research into #MECFS and the Perrin Technique - click the link to donate and to find out more about Dr Perrin’s fundraising challenge!
https://t.co/OF6KjEl1sz
It’s #MEAwarenessDay and Dr Ray Perrin is nearly halfway through his fundraising challenge of losing 2 stone in 80 days 👏
Dr Perrin, who has dedicated the past 32 years researching the cause, diagnosis and treatment of #MECFS, has already lost a stone in the first 30 days!
Doing some online Christmas shopping? 🎄Remember that FORME participates in @amazonsmile!
Every item available on Amazon is also available on AmazonSmile at the same price, except a portion of the purchase price is donated to charity 🤩
#MEcfs#PwME
https://t.co/cnpBEeXsfC
If you or someone you know benefits from an osteopathy based therapy such as the #PerrinTechnique then please send your comments to [email protected] where they, together with our response, will be submitted to NICE.
Thank you for the continued support 💪🏼
The #NICEdraftguideline for #MEcfs has been published & I’m sure you will share our disappointment that osteopathy based therapies appear in the “do not offer” section.
We previously submitted scientific research to @NICEComms but unfortunately NICE have chosen to exclude this.
May 12th is nearly here!
Though #MillionsMissing 2020 is virtual
we’d still like as many ppl as possible to support us.
Tell your friends & family how they can show their support using our toolkit! 👇
https://t.co/Adxsoe30eA
#pwME#MyalgicE#COVID19
Holly and her brother Charlie have been involved in fundraising for FORME for many years and will be helping to raise money for research into ME alongside @Wiganphysio at next months @WiganHalf on Sunday 22nd March! 🏃♂️🏃♀️
Holly was asked to draw a bee canvas to the commission of a staggering £1,800, where the money was split between two lucky charities, with £900 going to a charity of Holly’s choice - she requested her donation be made to FORME and we are so grateful 🤩🐝
We’ve got that #FridayFeeling today looking at these incredible bee canvases that were drawn by Holly Capstick, which have continued to raise a fantastic amount of money for various charities!
WHO’’s YOUR FAVOURITE SUPERHERO ? Our Superheroes will be out in force at #Wigan10k -Ice buckets & leg Massages for charity #FORME - please donate https://t.co/sTXBAKauNG also #raffle, #tombola, #luckydips, #facepainting#faceglitter all to keep the little ones entertained.
#OnThisDay two months ago Alex Wilson completed the Barclays Cycle Challenge for the 2nd year in aid of #FORME - 120miles & 9,100ft of climbing cycling! What a star!
Alex had ME for 5 years & thanks the osteopathic technique we help fund research into for changing his life 💪🏼💫
Former M.E. and Perrin Technique patient Alex Wilson is undertaking another incredible challenge to help raise funds for FORME! 🚴🏻♂️⛰
Good luck Alex, and thank you for all your continued support!
#pwME#mecfs
https://t.co/Qzm9Uks0XZ