The FPIES Foundation

A 501c3 dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.

[The FPIES Foundation @FPIESFoundation]

For families living with FPIES, the real challenges often appear in everyday settings — especially school. Guest Blog with Parent Teacher Path: A 3-part blog series- How Parent Teacher Path Supports Families. – The FPIES Foundation

[The FPIES Foundation @FPIESFoundation]

"If you are early in your FPIES journey, know that combining trusted medical care with supportive resources can help you feel informed, empowered, and supported every step of the way".
https://t.co/tSeoVBzieq

[The FPIES Foundation @FPIESFoundation]

Inspired by his son and the challenges families often face in everyday settings, including school, Ken created Parent Teacher Path, read more about it on our guest blog post:
https://t.co/5lw2tkuOwD

[The FPIES Foundation @FPIESFoundation]

https://t.co/nBy5VPyLY7

[The FPIES Foundation @FPIESFoundation]

Find graphics for #RDD on National Organization for Rare Disorders, Inc. (NORD) website- Rare Disease Day (RDD) Resources (link in comments)

[The FPIES Foundation @FPIESFoundation]

Specialized foods and formulas are essential to effective treatment. Tell Congress why the bipartisan Medical Foods & Formulas Access Act (H.R. 5684 / S. 3304) is urgently needed. Take Action Today! #MedicalNutrition https://t.co/0WtR6PW1gf

[The FPIES Foundation @FPIESFoundation]

If you find a need of a feeding tube to support nutrition through your #FPIES diagnosis, know you are not alone. Feeding Tube Awareness Week: Tell Others - Oley Foundation. https://t.co/XUeVIq0r1S

[The FPIES Foundation @FPIESFoundation]

If you or someone you love relies on medical nutrition, your story matters. Tell Congress why the bipartisan Medical Foods & Formulas Access Act (H.R. 5684 / S. 3304) is urgently needed.
Take Action today! https://t.co/yKaZnqBDru

[The FPIES Foundation @FPIESFoundation]

This week is Tube Feeding Awareness week, internationally (next week in the United States). Join in and build awareness! Although having #FPIES does not mean you will need a feeding tube, some may need this medical intervention. #YouAreNotAlone .

[ausEE Inc. @ausEEorg]

It’s Feeding Tube Awareness Week!
Join us in raising awareness, celebrating the tube-feeding community, and sharing support and education.
Get involved this #FTAW2026 👉 resources, #MyTubie stories, #FTAWLightUp landmarks, virtual education and more: https://t.co/oPZLFo2zVo

[The FPIES Foundation @FPIESFoundation]

Medical foods & formulas aren’t a luxury — they are essential. Denying coverage for foods & formulas forces people to choose between health and hardship. Tell lawmakers co-sponsor the Medical Foods & Formulas Access Act and protect families. #S3304 #HR5684 #FPIES

[The FPIES Foundation @FPIESFoundation]

Teal pumpkins, safe treats, 'switch witch', are all ways to help your little ones enjoy the fun, even if it looks a little different. You can start your own traditions! https://t.co/gwAtF6TwCu

[The FPIES Foundation @FPIESFoundation]

Please consider contacting your US Rep in support of The ADINA Act - this Act will require plain-language labeling of all major food allergens and gluten-containing grains in medications! Visit https://t.co/R33jIABiI7 to learn more! #ADINA

[The FPIES Foundation @FPIESFoundation]

@JPGNReports @kfatweets Thank you for sharing!

[The FPIES Foundation @FPIESFoundation]

We love to see more and more research into understanding #FPIES!

[JPGN Reports @JPGNReports]

Could prolonged breaks from eating #egg yolk actually trigger #FPIES? 🥚

A study from suggests consistent, short-interval consumption (e.g., every 1-3 days before 8 months) might be key to prevention! 🤔

🔗 https://t.co/dEX1onrUkV

@FPIESFoundation #IKNOWNOWFPIES @kfatweets

[The FPIES Foundation @FPIESFoundation]

Recognizing our FPIES Allies! Dr. Qian Yuan, FPIES Foundation MAB member, food allergy advocate, Researcher, & Pediatric Gastroenterologist at MGH will be honored as a Champion in Food Allergies by the Asthma and Allergy Foundation of America, New England Chapter Fall Gala!

[The FPIES Foundation @FPIESFoundation]

In honor of #GlobalFPIESDay today, we are giving away a copy of this "I Have FPIES" book- generously donated by the author! Send us a note to our inbox ([email protected]) with what FPIES means to you and you will be placed in a drawing for the book! #FPIES

[The FPIES Foundation @FPIESFoundation]

Global FPIES Day is tomorrow, Tuesday Oct. 14, 2025!
Be sure to check out our website for ways you can learn and share more about FPIES! https://t.co/KkEwEDeeL2

[The FPIES Foundation @FPIESFoundation]

Awareness on a local platform is powerful; awareness on a national and global scale can be life-changing for the entire #FPIES community. #GLobalFPIESDay

[The FPIES Foundation @FPIESFoundation]

Global #FPIES Day is just one week away! A time to come together and focus on ways to enhance our community's understanding of FPIES- through tools such as education, resources and advocacy. Join us! https://t.co/YqFuYR7svx

[The FPIES Foundation @FPIESFoundation]

Dine Allergy Safe Club. We support SB68 – The ADDE Bill; which would require restaurants in California to label the #Top9 food allergens on menus. We’re calling on: California Assemblymembers-vote YES on SB 68; Governor Gavin Newsom (@cagovernor)- sign SB 68 into law #SB68ADDE