Fabry, Australia

Fabry Australia is an incorporated patient organisation founded in 1994 by patients diagnosed with a rare genetic condition called Fabry Disease.

[Fabry, Australia @FabryAustralia]

@EdwinaFarley Gorgeous!

[Fabry, Australia @FabryAustralia]

Congratulations Prof Ingrid WINSHIP who received an AM 'For distinguished service to medicine, particularly to clinical genetics and research, to cancer prevention, and as a role model and mentor’. Ingrid was a guest speaker at the 2017 Fabry Conference in Melb.

[Fabry, Australia @FabryAustralia]

With the financial year drawing to a close, now is a great time to make a tax deductible donation to a charity like Fabry Australia.

Visit our website https://t.co/qnRqa6hgJp to learn more or make your donation. All those living with Fabry Disease thank you. #fabrydisease

[Fabry, Australia @FabryAustralia]

Wishing all the Mums a wonderful Happy Mothers Day.

We think you're awesome!

#HappyMothersDay

[AVROBIO @avrobio]

Fabry disease can affect the heart in many ways, causing shortness of breath, chest pain and palpitations, among others. People with Fabry often take multiple medications to manage heart-related issues. #Fabry #FabryAwareness

[Fabry, Australia @FabryAustralia]

“Even though I was experiencing symptoms…I did not link it to #Fabry disease because I thought I was just a carrier.” This #FabryAwarenessMonth read how Megan went from acceptance to advocacy to help #raredisease patients: https://t.co/KPHOK0k5lD

[Sanofi Canada @SanofiCanada]

#DYK that #FabryDisease is a rare disease impacting both males and females? Symptoms are progressive and potentially life-threatening. Recognize the symptoms to #GetAnswers #FabryAwarenessMonth​
https://t.co/SPTFxqxlG2

[Idorsia @Idorsia]

Idorsia finishing #FabryAwarenessMonth with more tattoos from @FabryAustralia and @CdnFabry

[Fabry, Australia @FabryAustralia]

#StayHomeSaveLives #Fabryawarenessmonth

[Australasian Society of Genetic Counsellors (ASGC) @GCAustralasia]

April is Fabry Disease awareness month. Visit https://t.co/UPVwXk1Cqy to find out more #fabryawarenessmonth #fabrydisease #ANZGeneticCounsellors #gcchat

[MPS Society UK, here for those with rare diseases @MPSSocietyUK]

@TakedaPharma & @MPSSocietyUK have created a few short films to raise awareness of Fabry disease, these video’s show how Fabry disease affect the individual’s life, both before diagnosis & after. Take a look at Simon’s story: https://t.co/Ix5NqnGvu0 #FabryAwarenessMonth

[Amicus Therapeutics @amicusrx1]

Courtnay battled #FabryDisease symptoms during his walk across the U.S. to raise awareness and collect donations for Fabry. Optimism and determination kept him going. #StoriesofFabry #FabryAwarenessMonth

[MPS Society UK, here for those with rare diseases @MPSSocietyUK]

Super impressed by @SangamoTx for supporting #FabryAwarenessMonth this April! @SangamoTx had employees wear it blue and take their photo which has been complied below. We are absolutely in awe of the support and this beautiful collage of blue! Thank you!💙

[Amicus Therapeutics @amicusrx1]

Creating awareness, community, and support for people living with Fabry disease. #RareDisease #Awareness

[Fabry, Australia @FabryAustralia]

This is an excellent webinar whereby Dr Heather Lau provides an overview of how to manage Fabry disease during the COVID-19 pandemic.

[CheckRare @CheckRare]

Heather Lau, MD at NYU Langone Health provides an overview of how to manage Fabry disease during the COVID-19 pandemic. @nyulangone @FabryOrg @FabryDisease1 National Fabry Disease Foundation (NFDF) NYU Langone Health Fabry Support & Information Group
https://t.co/Ij6M0WZ39O

[Fabry, Australia @FabryAustralia]

It’s been just relentless - thank you for your strong leadership at this time of need.

[Gladys Berejiklian @GladysB]

NSW has had a tough few months – drought, fires and COVID-19. @RFSCommissioner has been a hero during many of those tough days. After 12 yrs of exceptional service as RFS Commissioner, Shane will now head Resilience NSW, a new agency helping us prepare & recover from disasters.

[60 Minutes Australia @60Mins]

Watch 60 Minutes #LIVE now: Reporter Tara Brown gets a coronavirus update from Federal Health Minister Greg Hunt. #60Mins https://t.co/CKT9At6PpW

[Fabry, Australia @FabryAustralia]

#StayHomeSaveLives #Fabryawarenessmonth