Families Speak Out #EE19

Families Speak Out are a group of parents & Health advocates including Aisling McNiffe, Olive O’Connor & Colleen Worthington who are running in the #EE19

[Families Speak Out #EE19 @FamiliesOut]

Fundraiser by Colleen Worthington : Get Aisling, Olive & Colleen to EU! #IrelandsAOC https://t.co/dvnzyfke27

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

Is it any wonder Carers suffer from mental health issues and depression. I mean you may as well be talking to the wall as to the Govt et al! And if I hear this line...” lessons have been learned...” one more time I’ll 😡🤬😡🤬

[RTÉ News @rtenews]

Very young children living in hotels due to family homelessness struggle to learn to walk or crawl because of a lack of space https://t.co/ZcKuXIVyfA

[Carmel Doyle @CarmelDoyle1]

Thanks @JohnJoedotcom @JackandJillCF founder, Carer advocate and homecare pioneer #CarersWeek #jobfairy

[Families Speak Out #EE19 @FamiliesOut]

@cairotango @McNiffecent So sorry for your unnecessary loss. Tragic.

[Sandra @NiDhubhda]

Crumlin Hospital informed me that a 4 year waiting list exists for dermatology out patients appointment. Advice get your doctor to write a referral for SVUH as patient will be 16 at end of month. Dochreidte

[Virgin Media News @VirginMediaNews]

#WATCH Hospital consultants who are fed up with the length of time patients have to wait to see them are speaking out

Half a million patients are currently waiting for appointments

@TVMichaelRyan #VMNews #CareCantWait @IHCA_IE @Rheum2improve @StephenAMcMahon @INMO_IRL

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

So delighted for all those families who have children with SMA who finally got their life changing & life saving drug Spinraza #Spinraza but sad for the over 18’s who did not. @grace_friends

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

No wonder Carers are sick to the teeth of begging for EVERY DAMN THING when the @HSELive @SimonHarrisTD @LeoVaradkar @FinianMcGrathTD @KZapponeTD @roinnslainte @HSEImm just ignore all correspondence, emails, letters, phonecalls,tweets, letters in newspaper, pleas on the radio/tv!

[Laura Durcan @Rheum2improve]

Standing up for timely patient care. #CareCantWait @IHCA_IE @DrPayEquality @jeanniejampots @PickleQueen77 @davidjvaughan @DrABurke @samejw @mcdennedy @SimonHarrisTD @Paschald

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

So ... it’s Carer’s Week @SimonHarrisTD @FinianMcGrathTD @KZapponeTD @ReginaDo @LeoVaradkar @FineGael @fiannafailparty What are you going to do for Carers? @CarersIreland

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

It’s a two-tier system and people are being forced to pay for the MenB vaccine for their vulnerable children for €300 but some have paid €480! Do you think that’s equitable? For a government who says vaccines save lives yet don’t provide them when they are recommended hmm #MenB

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

You have ignored this for years. You clapped yourselves on the back when you brought in the MenB vaccine for the baby vaccine schedule (which is great) but what about those children with debilitating conditions who are on the at-risk list? Do you think that’s fair? #MenB

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

@SimonHarrisTD when are you making the #MenB vaccine available to the at-risk group of kids for whom it’s recommended by @HSEImm @HSELive @roinnslainte @LeoVaradkar @KZapponeTD @FinianMcGrathTD #VaccinesSavesLives but only if you give them??? This is a v serious issue. @eilishor

[Raymond Shannon @Raymond18161478]

No consultant
No senior psychologist
No child care leader
No clinical nurse manager
These should be in place according to vision for change 2006. That's for a population of 50 000.
Now wex.south pop is now 80,000.
I never give up fighting for CAMHS and the children Wexford

[Dr. Kieran Moore @drkieranmoore]

Well done to Drs Colleran and Durcan / IHCA. This is what we need. Will the government listen? 🤔 What's that sound? A low grumble walrus like at first, rising to the fomenting cackle of cranky geese. Ah yes, disaffected back benchers. An election is on its way. #CareCantWait

[Aisling McNiffe 🇵🇸 🇺🇦 🏳️‍🌈🏳️‍⚧️ @McNiffecent]

Before I forget any word on the MenB vaccine for those kids on the at-risk list for whom it’s recommended by @HSEImm @HSELive @roinnslainte @eilishor ? It’s so rude that nobody ever replies. If a vaccine is recommended it should be supplied free of charge! #MenB @SimonHarrisTD