Lipedema and Dercum's advocates 501c3 improving lives of people affected by adipose tissue disorders thru research, education, advocacy & collaboration.
Dercum’s disease can be emotionally draining and it’s vital to find support. If you or someone you know is living with #Dercums consider joining an online support group.
💛💛 Let's keep building the Dercum's community.💛💛You'll find a few: https://t.co/WwSwN5jtad
While there's no cure for Dercum's, after years of research, there is a drug under study to treat the lipomas in #dercumsdisease. Read more about it in an interview with Dr. Karen Herbst: https://t.co/byJ0BDJmrI
#DercumsAwareness2021#Livingwithdercums
#DercumsAwarenessDay While not as common, YES, men do live with #dercumsdisease. Ray Wood is an advocate, writer, and brings attention to this disease and how it impacts men. In this @TheMightySite article, Wood addresses what doctors don't say to men: https://t.co/AWfTvbvEAS
#DercumsAwareness FDRS will keep bringing attention to #DercumsDisease as for those living with #Dercums, they deal with this chronic disease daily. Help us continue to fund research and raise awareness. Consider a donation: https://t.co/gUhjJg112H #adiposisdolorosa
This time is stressful for everyone. For those living with #fatdisorders like #lipedema and #Dercums disease, reducing stress is key. On this #DercumsAwarenessDay, take a moment for self care and revisit this session from Kathleen Lisson at #FDRS2019 https://t.co/YhvwoES55a
Information on current clinical trials is posted at https://t.co/jJHgmWpmNQ. All studies receiving U.S. government funding, and some supported by private industry, are posted on this government web site. FDRS continues to advocate for fat disorders like #dercumsdisease.
Social distancing should not mean social isolation. FDRS has social media platforms to share resources, network, support and more. Let’s stay connected during these strange days – and throughout the year. https://t.co/6k4g4ExejB
#Livingwithfatdisorders#dercumsdisease#lipedema
#DercumsAwarenessDay There’s no cure for Dercum’s disease, but there are ways to manage pain. Revisit the presentation Integrative Methods of Pain Management from Linda Anne Kahn from #FDRS2019. What do you do to manage the pain of #Dercums disease?
https://t.co/ZKvJ8uNbtM
As we continue featuring our popular #DercumsStories from 2019, we had to repost this piece, one of the most popular posts from last year. Yes, men do live with #DercumsDisease and Ray Wood is a vocal advocate and writes for Rare Disease on The Mighty. https://t.co/r4QEzNIpOv
If you have Medicaid or Medicare for your healthcare, visit this CMS page for fact sheets and information about your coverage should you be impacted by COVID-19. https://t.co/5RErpSniIQ
We are announcing that FDRS 2020: Focus on Fat Disorders is officially canceled. The health and safety of our FDRS community is our priority at this time. For more information about refunds and hotel visit: https://t.co/5IYsudrHDb Stay safe and follow @CDCgov recommendations.
We have an important update about the upcoming #FDRS2020 Conference next month in Cleveland. Read about it and sign up to receive the FDRS email updates: https://t.co/7Js6ImCAZc
For those of us with a #fatdisorder, it is imperative that we move as much as possible. Exercise will not only strengthen muscles, but will improve your body’s blood and lymphatic flow, help to manage stress and boost your mood and confidence. https://t.co/HZo60E8tJB
#FDRS2020