Fibro_Ireland

FibroIreland is a patient organisation for people affected by #Fibromyalgia. We provide general information and support to all those affected by the condition

[SEDSConnective @SEDSConnective]

With #hypermobility we think there are many people with crossovers with autoimmune condtions. Sjogren's is one of them.

[Peter Boyd @fibrofella]

Join myself and @SouzMakri as we host an exceptional #WAD #WorldArthritisDay webinar on the theme of Informed Choices, Better Outcomes.
Three outstanding speakers & an engaged Q&A session

[Chronic Pain Ireland. RCN 20028022 @ChronicPainIRL]

💡 How does sex & gender affect chronic pain? Join our hybrid event exploring the latest research from the PAINDIFF network & its real-world impact.
📌 11/10/24
📍 University College Galway & Online
📲 Register now: https://t.co/GwYUAr7OFT
#ChronicPain #PPIResearch #HealthPolicy

[Kate Sheridan @SherKatie]

Great to see my article on @RTEBrainstorm highlighting the importance of finding the right team of healthcare professionals that support you on your pain journey
@Arthritisie @ChronicPainIRL @Fibro_Ireland @MigraineIreland ht

[EULAR @eular_org]

🚀Join the EULAR debate at #EULAR2024 on intersection of long COVID and fibromyalgia.

📆Friday, 14 June 2024, 15:45 - 17:00 CEST

🗣️Speakers: Prof. Leonard Calabrese, Prof. Xavier Marriette

Learn more here👉https://t.co/Ns6iBjkO58

#EULAR #ScientificSessions #eularCONGRESS

[ME Advocates Ireland @MEAdvocatesIre]

Please sign our community’s Open Letter to the HSE

https://t.co/nuVcL1zm1l

Don’t forget to confirm your signature via the email you will receive after signing.

[Chronic Pain Ireland. RCN 20028022 @ChronicPainIRL]

🌟 World Fibromyalgia Awareness Day 🌟

Today, we stand together to raise awareness about fibromyalgia, a chronic musculoskeletal disorder that affects millions of people worldwide. 💜

#FibromyalgiaAwarenessDay #Fibromyalgia #ChronicPain #InvisibleIllness #12May

[Fibromyalgia Action UK @fmauk]

This Sunday is International Fibromyalgia Awareness Day.
As part of our awareness events we have created a short video that will be the first of may to help increase awareness.

You can watch the video here: https://t.co/GbvMFpBtAV

#MakeFibroVisible

Des

[All On The Board @allontheboard]

Today is Fibromyalgia Awareness Day.
Sending love to everyone affected by this condition.

#FibromyalgiaAwarenessDay #Fibromyalgia

[Hope 4 ME & Fibro NI @hope4mefibroni]

#WorldMEDay launches our #DiscoverME campaign!

We're calling on healthcare professionals to sign up for our 2-part educational programme starting with the viewing of the film below, then they register for and complete our info pack earning 3 CPD hours 👇

https://t.co/77GL6GIaSm

[Fibro_Ireland @Fibro_Ireland]

🦋 MAY 12th FIBROMYALGIA AWARENESS 🦋

There is more than meets the eye when it comes to living with #Fibromyalgia Despite dealing with pain & fatigue we can still tap into our creativity to make the invisible, visible.
#may12th #FibromyalgiaAwarenessMonth

[The Ehlers-Danlos Society @TheEDSociety]

People with persistent fatigue often describe it as a total exhaustion of every muscle in their body &/or ‘brain fog’.

Join us for a virtual event addressing the problem of fatigue, what can cause #Fatigue & what can help. ⁠https://t.co/Uzh9ss1827

[Fibro_Ireland @Fibro_Ireland]

Passionate words from Anoushé Husain-Don’t say I can’t do it-say-I can’t do it yet. Look at the language you use around your body. Is it within the sphere of your control to change this?Celebrate everything, take joy from all the little things, get up & choose love #GLC2023 #EDS

[Fibro_Ireland @Fibro_Ireland]

@SpriggsNutri Migraines are not bad headaches: Practical considerations for managing flares & associated fatigue-from trigger to treatment-log your #migraine pattern-diet remains a crucial, but under explored, component of comprehensive migraine management
#GLC2023 #EDS #HSD

[Fibro_Ireland @Fibro_Ireland]

Lorna Ryan concisely explains integration of holistic nutrition strategies to manage GI symptom flares
3 considerations to keep in mind:
1.Foundations eg chewing
2.Meal modifications eg soft foods
3.Supplements eg digestive enzyme

#EhlersDanlosSyndrome #HSD #EDS
#GLC2023

[Hypermobility MD: Dr Linda Bluestein @BluesteinLinda]

This is definitely a common theme that we have discussed on the #Bendy Bodies podcast! Love @knidac and thrilled to share the stage with him at @TheEDSociety GLC 2023! 🧬🦓💻

#GLC2023 #EhlersDanlosSyndrome #hypermobility #connectivetissue #MedTwitter

[The Ehlers-Danlos Society @TheEDSociety]

.@LipedemaFndn is Collaborating Sponsor for the #GLC2023!

Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms that occurs almost exclusively in women. (A Thread)

[Fibro_Ireland @Fibro_Ireland]

@jdibon gently invited us to consider that sensation is in the way in
1.Invite softness in your skin
2.Can you move in stillness?
3.Find the silence… and it is in the silence the magic happens
Ask yourself…
What is the sensation of silence? #GLC2023 #EDS #hEDS #HSD