Elsie-rose Nugent

spinal muscular atrophy type1 / type 2

[Elsie-rose Nugent @FightforSma]

@Ta58kel @MrDDyer @_GarethBarry @gareththomas14 @jack_charlesf @SkySportsNewsl @victoriabeckham @TheGillsFC @Dani_MasDyer @Daniarmstrong88 #SpinrazaChangesLives

[Elsie-rose Nugent @FightforSma]

@DavoodGhadami #SpinrazaChangesLives #sma #smafamily #shareaselfie

[Elsie-rose Nugent @FightforSma]

https://t.co/gl7782dt9f

[Elsie-rose Nugent @FightforSma]

Please can everyone forward this to @edsheeran Kacies 6th birthday on Thursday and she would love a message !!! She’s a superstar!!! #EdSheeran https://t.co/HVPdknMGUR

[Elsie-rose Nugent @FightforSma]

https://t.co/grezpgoZPK

@edsheeran

[Elsie-rose Nugent @FightforSma]

https://t.co/grezpgoZPK

@edsheeran

[Elsie-rose Nugent @FightforSma]

https://t.co/dw1KGppz5B

[Elsie-rose Nugent @FightforSma]

So Elsie-rose went for her 6th #spiranza #eveinjection today... ( #lumbarpuncture )(after last months failed attempts) and she #SMAshed it.!! In and out within 25mins now waiting to go home 💚 #Evelina @EvelinaLondon

[Elsie-rose Nugent @FightforSma]

“Remember to look up at the stars & not down at your feet.Try to make sense of what you see& wonder about what makes the universe exist. However difficult life may seem there is always something you can do & succeed at. It matters that you don’t just give up.” #RIPStephen Hawking

[Gabrielle @GabrielleUk]

Lots of love to you ❤️ https://t.co/776pWLSRKr

[Elsie-rose Nugent @FightforSma]

https://t.co/tDX8qi78Av

[Elsie-rose Nugent @FightforSma]

Mums first race for me.... 💚 #medalsforelsie #poppyrun2017 #poppy5k #ArmisticeDay #sma #runningforelsie

[Luke @LukeDavey3]

Please all retweet and share. I want this post shared everywhere we can get. This little girl and her friends deserve everything. Thankyou https://t.co/3AZ4GPRn98

[Elsie-rose Nugent @FightforSma]

Beautiful morning stroll at @hawkhurstfishfarm

[Elsie-rose Nugent @FightforSma]

After thinking we would never get to see Elsie ride a bike something she has always asked for.!!! This happened !! #theraplay #trike #sma

[Elsie-rose Nugent @FightforSma]

Third dose of #nusinersen #spiranza #loadingdose #sma #spinalmuscularatrophy #elsierose #awareness #smashedit #lumbarpuncture

[Elsie-rose Nugent @FightforSma]

Sat waiting for boss baby before I have my third loading dose of spiranza treatment tomorrow #spiranza #nusinersen #medicinema #sma

[Hastings Observer @HastingsObs]

Hastings family of toddler with life-limiting condition call for specialist drug to be more widely available https://t.co/fVFJaziqv5

[Elsie-rose Nugent @FightforSma]

@Ta58kel 💚💜💚

[Elsie-rose Nugent @FightforSma]

Here for our first dose of spiranza !! We couldn't be more excited for this opportunity #spiranza #nusinersen #smatype1 @EvelinaLondon