MPs have called for urgent changes to sickle cell care after inquiry found “serious failings” following vital work by @SickleCellUK https://t.co/DCiNDsZCdd
@Fightsickle Check out this amazing comic book that the members of our STRIVE program, a mentorship program for high school students with sickle cell disease, created!
https://t.co/9OHjUOTEyN…
Doctor's why its MORALLY ACCEPTABLE to WITHHOLD pain meds from an SCD PATIENT, suffering from an hereditary illness that is SCIENTIFICALLY PROVEN to CAUSE EXCRUCIATING PAIN b/c the patient KNOWS the NAME of the MEDICINE NEEDED to END their PAIN.
#STOPSICKLECELLABUSE
Richard Okorogheye, a teenager from London who lives with sickle cell, has gone missing. Please retweet and if you see Richard please, contact 101 and quote 21MIS008134. Our thoughts are with his family at this time.
From all of us at Lupus LA, we want to wish you a very happy #Thanksgiving! Whether you celebrate with family, friends, or doing some solo self-care, we hope you enjoy your holiday. #lupus#selfcare
#Racism against patients is festering on all of our wards and hospitals. #sicklecell patients often feel victimized. Put staff, trainees, colleagues or whoever- in check quickly if you see this happening. The color of your skin shouldn't change the quality of your care.
#Food is an important part of your treatment.
Chinese nutritional therapy has a long history of practice and is a part of Chinese medicine.
#FoodIsMedicine
Anxiety, unfortunately most sickle cell patients feel before attending A&E for treatment of severe pain. Not knowing if your condition will be treated or if you’ll be mistreated. #sicklecell https://t.co/BKF5Ktj6in
#opioidhysteria#spoonies#chronicpain TERRORISM IS THE FEAR OF UNEXPECTED HARM this is why people with painful diseases lay awake at night not only in pain but waiting for the next unknown move of the pill chopping doctors - developing PTSD w sweats & anxiety for next MD visit
"I couldn’t believe what #acupuncture had done for me in a single session – granted the pain wasn’t completely gone but it gave me strength to keep on fighting."
Read this woman's story about her fight against #diabulimia.
https://t.co/eRWkaA6T4Y
#SickleCell disease patients have changed me. They have humbled me. Every pain crisis, every bad outcome is a reminder that we have so much to accomplish. We must not let the momentum weaken. We must continue forward, there is no other option. #WorldSickleCellDay
Nutrigenomics is an exciting field where we can see how nutrition shapes our genes. You are no longer bound by your genetic ‘destiny’. Your epigenome is listening to every bite you take! How do we know? A fascinating example lies with honey bees… https://t.co/VvDPp7E5en
If you live with avascular necrosis, movement is limited and painful. As hard as it maybe, gentle exercise is one of the best ways to manage it. Exercise stimulates osteoblast production, building new bone. #AVN#BoneHealth#SickleCell
Routine tests on newborns to check if they have problems such as #CysticFibrosis or sickle cell disease are often unscientific and can be very inaccurate, a major new review has discovered: https://t.co/H390qR8uzX #SickleCell#Babieshealth
At Nutriseed, we are frequently asked for advice on embarking on a vegan-friendly diet, and wanted to share some of what we’ve learnt with you too. Here are the seven things that most people don’t know about going vegan. https://t.co/sU2feGnvIU