Find a Cure For VWM

It is all about raising awareness for leukodystrophy called vanishing white matter disease (VWM) ~ while searching to find a cure...!

[Find a Cure For VWM @FindaCureforVWM]

If you’re passionate about making a difference, join us by reposting or tagging an influencer who would love to support this effort!
Learn more: https://t.co/wf6SXbwPcj
#HalfAMillionToBeatVWM #VWMResearch #InfluencersForGood
#findacureforvwm

[Find a Cure For VWM @FindaCureforVWM]

⏳ Just days left in 2024! Let’s end the year by making an impact. Support the “Half a Million to Beat VWM”’Every donation brings us closer to life-changing breakthroughs.
Join us now: https://t.co/uY4oPqeVqx 💙
#BeatVWM #EndOfYearGiving #MakeADifference #findacureforvwm

[American Society of Pediatric Neuroradiology @The_ASPNR]

What is the diagnosis?

[Find a Cure For VWM @FindaCureforVWM]

#findacureforvwm https://t.co/uY4oPqeVqx

[Find a Cure For VWM @FindaCureforVWM]

Shoutout to Run for Nash for supporting our fight against Vanishing White Matter (VWM) Disease! Sending a VWM t-shirt to Dr. Bonkowsky as we work toward raising $500K for life-changing research. Every donation matters.
💙 Donate: https://t.co/IBVYlOowHl

[Find a Cure For VWM @FindaCureforVWM]

Running with pediatric neurologists in San Diego to raise $500K to fight Vanishing White Matter (VWM) Disease. Every dollar counts. Join us : https://t.co/IBVYlOowHl #FightVWM #RareDiseaseAwareness
#findacureforvwm #vwmresearch #halfamilliontobeatvwm

[Find a Cure For VWM @FindaCureforVWM]

#halfamillionforvwm see
https://t.co/wf6SXbwPcj

[Find a Cure For VWM @FindaCureforVWM]

Dr. Bonkowsky is running 95 miles (500,000 ft of elevation!) to support VWM research. Every mile counts in the race for a cure. 🏃‍♂️💙 Join us & make a difference: https://t.co/IBVYlOowHl
#EveryMileMatters #VWM
#findacureforvwm
#HalfaMillionforVWMResearch
#VWMFamiliesFoundation

[AcademicTransfer @AcademicTrnsfr]

PhD on the effect of nutrition on children with ADHD https://t.co/lLmfkFHIRw @werkenbijwur

[AcademicTransfer @AcademicTrnsfr]

Inhibiting Acute Episodic Neurological Decline in Vanishing White Matter https://t.co/Ay2xiQbaZa https://t.co/cUG5l3CuoU

[Find a Cure For VWM @FindaCureforVWM]

track : https://t.co/uY4oPqenAZ

[Find a Cure For VWM @FindaCureforVWM]

Dr. Bonkowsky has climbed 438,940 feet of the 500,000-foot goal for VWM research! Help us reach the top—every donation gets us closer to a cure. 💙
➡️ Donate: https://t.co/vm7Yd99c2D
#HalfAMillionToBeatVWM #VWMResearch #DonateForACure
#findacureforvwm

[Find a Cure For VWM @FindaCureforVWM]

“If you want to run far, run together. We are all in this together- let’s help get ourselves to the finish line!
You can help! …share your story with your friends/supporters/influencers…
Every dollar matters!

[Find a Cure For VWM @FindaCureforVWM]

#halfamilliontobeatvwm
#halfamillionforvwmresearch
#findacureforvwm
Every step matters…every foot matters…every dollar brings us closer!
Track https://t.co/uY4oPqenAZ

[Find a Cure For VWM @FindaCureforVWM]

Dr. Josh Bonkowsky, a VWM researcher and clinician, is trying to reach 500,000 feet of running elevation gain by midnight Dec 31,2024
#findacureforvwm
#halfamilliontobeatvwm
#VWMResearch
Learn more: https://t.co/uY4oPqenAZ

[Pearl Freier @PearlF]

FDA's new Operation Warp Speed initiative for rare diseases has accepted San Francisco-based biotech @calico's investigational drug ABBV-CLS-7262 for neuro in partnership w/ AbbVie as 1 of <10 in START pilot. Calico/AbbVie's eIF2B activator fosigotifator https://t.co/6zluHIPzYi

[Find a Cure For VWM @FindaCureforVWM]

If you’re passionate about making a difference, join us by reposting or tagging an influencer who would love to support this effort!
Learn more: https://t.co/wf6SXbwPcj
#HalfAMillionToBeatVWM #VWMResearch #InfluencersForGood
#findacureforvwm

[ULF @UlfUnited]

Shout out to our rockstar doctors, researchers who continue to research and give families HOPE!
Thank you! - ULF Board of Directors Treasurer, Donna Skwirut
#findacureforvwm
VWM Families Foundation

[Alex Cabrero @KSL_AlexCabrero]

Last week we did a story on a missing laptop from the SLC Airport. It had important medical information and the woman desperately needed it back. Yesterday, I got a call from the person who got it by mistake. What a happy ending! @KSL5TV at 5 and 6.
https://t.co/Vkqo2xaj8L

[Find a Cure For VWM @FindaCureforVWM]

@RS_Preprints Thank you!