FlaminiaRDI

[FlaminiaRDI @FlaminiaRdi]

@LaraBloom Welcome Lola 😍 Love the name ! Congratulations to you both ❤️❤️❤️

[FlaminiaRDI @FlaminiaRdi]

@MyEDF May he Rest in Peace

[FlaminiaRDI @FlaminiaRdi]

@elizabethvroom Rest In Peace

[Giveblood @Giveblood_ie]

URGENT MESSAGE to our A NEG, B NEG & O NEG BLOOD DONORS. Our supplies are very low & we are experiencing high demand from our hospitals. If you are one of these blood groups & receive a text please make every effort to make an appointment to donate ❤️🩸❤️ #WeCountOnYou #ThankYou

[Mary Wang @marywangCM]

being able to code #rarediseases in systems is fundamental to recognising existence of persons living with rare disease. #Visibility #PWLRD

[FlaminiaRDI @FlaminiaRdi]

@LaraBloom Congratulations !!!! 😍😍

[Michel Sidibé @MichelSidibe]

Félicitations au Rwanda d'avoir été choisi pour abriter le siège de l'Agence africaine du médicament. Je suis convaincu que l'AMA sera bientôt opérationnelle sous le leadership du @PaulKagame, avec le soutien de tous les États membres de l'#UA & partenaires-clés @AUC_MoussaFaki

[Michel Sidibé @MichelSidibe]

Warmest congratulations to #Rwanda on its  selection to host the African Medicines Agency (AMA). I am very confident that #AMA will soon be fully operational under the leadership of @PaulKagame, w/ support of all AU @AUC_MoussaFaki member states and key partners.@LMushikiwabo

[FlaminiaRDI @FlaminiaRdi]

@LaraBloom Enjoy being home Dear Lara !

[FlaminiaRDI @FlaminiaRdi]

@Psalmy_Bizzle Saying bye to the @OrphanConf and to great colleagues from around the world. Safe trip back Samuel !

[FlaminiaRDI @FlaminiaRdi]

@marywangCM discussing the Operational Description of Rare Diseases @OrphanConf @rarediseasesint

[FlaminiaRDI @FlaminiaRdi]

RDI has a booth @OrphanConf @marywangCM

[FlaminiaRDI @FlaminiaRdi]

Listening to @nicksireau explaining about the importance of collaboration between Doctors, patients and companies as a model of successful drug development @OrphanConf

[Mary Wang @marywangCM]

#WorldOrphanUSA Advocacy track, @FlaminiaRdi explains the language of #UN Resolution to address challenges of #PLWRD and families. #UHC #HealthForAll

[FlaminiaRDI @FlaminiaRdi]

@Durhane We need Public and Private to recognize the work with and by Patients, so we should talk about PPPP @rarediseasesint @marywangCM @OrphanConf

[Mary Wang @marywangCM]

#WorldOrphanUSA Durhane @Durhane @rarediseasesint calls for #PPPP Patient-Public-Private Partnership during keynote @OrphanConf. Recognize #patient partnership in the ecosystem!

[FlaminiaRDI @FlaminiaRdi]

Build Back Smarter after COVID @rarediseasesint @Durhane

[FlaminiaRDI @FlaminiaRdi]

@LaraBloom @MarfanFdn @OrphanConf @NorrisLab @TheEDSociety Looking forward to seeing you there 😘

[Durhane Wong-Rieger @Durhane]

.@raredisorders and @rarediseasesint stand with the global rare disease community at #HLPF.
I will deliver Key Messages to #rarediseases community at the Formal Side-Event on #gender and #rarediseases

👉 6 July 2022, ONLINE https://t.co/0xYAUlhfO1

[FlaminiaRDI @FlaminiaRdi]

Join us at #HLPF 2022! @UN
👉https://t.co/GC533TTl4P 6 July
I will be closing our Formal Side Event on addressing the Challenges of PLWRD as a #Gender Equality, Human Rights, and #Equity priority
❗PLWRD deserve recognition within the UN Agenda! #SDGs
@FEDER_ONG @ipopi_info @RDI