Johnna Fleak

Just a girl who loves Jesus and her S🅾️🅾️NERS! Navigating through life with hEDS, MCAS & Pots

[Rodney Anderson @24RAnderson]

BOOMER😤😤😤

[Kaci Nicole @PennyLane449]

OU fans: This guy organized a drive for OU Children’s Hospital last year when Tenn came to Norman.

It’s time to return the favor!

Go to the UTVolShop website and order some gear, enter the code below at checkout, & it will get taken to the children’s hospital there!

Boomer!

[Johnna Fleak @FleakJohnna]

I cant go to Dallas this year but I need the noise! Where is everyone watching RRR in OKC?

[Johnna Fleak @FleakJohnna]

@Geraldini93 Wouldnt be right not to see this during RRR! Boomer!

[Johnna Fleak @FleakJohnna]

@AuburnMemes Ooof this didnt emd well did it? 😂 Boomer!!!

[Johnna Fleak @FleakJohnna]

@ThePOTSPostman Take my poor doggo on a walk

[Johnna Fleak @FleakJohnna]

@BluesteinLinda After becoming dangerously thin, I was only able to gain weight back when I started Cromolyn. If it lose it altogether I’m back to bland chicken and rice. Scares me that I depend so much on a medication

[Johnna Fleak @FleakJohnna]

@emmiskyten @LossesRealized @BrainInflCollab Thanks! I’ve listened to pretty much everything he’s put out. Hes been on a few great MCAS podcasts like Mast Cell Matters with Tonia Dempsey also

[Johnna Fleak @FleakJohnna]

@Jamies4OU I’m a women’s 11 also if you sell them I want! 😍

[Johnna Fleak @FleakJohnna]

@LossesRealized @BrainInflCollab I was put on Pepcid/Zyrtec 2x day first. We added a DAO, Cromolyn Sodium & Quercetin. Anxiety/Depression/Heavy brain fog=gone. During flares, I do SIGHI diet(low histamine), more vagus nerve stimulation&add 2000mg Vit C, Magnesium & Stinging Nettle.

[Johnna Fleak @FleakJohnna]

@OUFball218 DG!

[Johnna Fleak @FleakJohnna]

@DiaryofaSickGrl hEDS here, I have Adhesive Arachnoiditis of the lumbar spine from an epidural steroid injection gone bad. It could likely paralyze me at the rate it’s going. No cure at this point just mega steroids to control flares.

[Johnna Fleak @FleakJohnna]

@PaulGadsden82 It took about 3 months at my target 4.0 dose to notice major differences. Now, if I go more than a couple days without it, I realize how much it’s actually helping. That being said, it just doesn’t work for some folks unfortunately.

[Johnna Fleak @FleakJohnna]

@OnlyEnnui @Alina_MSN_RN I’m not a Dr so I’m not sure exactly how but it’s a known mast cell stabilizer. My Immunologist said he read several published medical studies about it & it’s been pretty successful with his patients

[Johnna Fleak @FleakJohnna]

@VitallyMelanie Do you think it would do anything for Adhesive Arachnoiditis? It has to cross the BBB

[Johnna Fleak @FleakJohnna]

@BluesteinLinda Thank you & thank you for all you do for our community! 🦓 ♥️

[Johnna Fleak @FleakJohnna]

@BluesteinLinda I was just dx with Adhesive Arachnoiditis today. I have hEDS, pots & mcas. My neurologist thinks it was due to an epidural steroid injection or a lumbar puncture when they were looking for MS years ago before my hEDS dx. New podcast subject? 🫶

[Johnna Fleak @FleakJohnna]

@BluesteinLinda Can’t wait to hear this one so I can have a clap back at any doctor who suggested yoga can cure me lol