Bongo passed in the loving arms of his family this morning. We are absolutely devastated and heartbroken. You were more special than you could have known. Shine on you crazy diamond. We love you so dearly, we will meet again. xxxooo
@azzy_007lfc Please do share your thoughts and experiences. We can learn from each other & try to muddle through as a community. @NEISVoid is also a great community to connect with. SIJD is life changing & it sucks & it’s hard & you’re not alone my friend. 🫂
#BongoUpdate Saw pelvic floor physio today. For now, external exam only. She found huge muscle knot in my lower back left pelvis. She says she can't tell yet if knot causes SI joint pain or if SI joint irritation caused muscles to knot up. Yay, SOMETHING!!! 😸😸😸
@azzy_007lfc Last, my life has been made easier in situations where I’m forced to sit -family wanting to go out to eat for birthday or get together for Christmas lunch -with a Roho cushion. I’m still experimenting what works or might work better for me.
Turns out CatMom had a kidney infection & it wasn’t playing nice w chronic injury from pelvis downwards. No wonder I was cranky & hurting. A&E fixed me up brilliantly -thank you NHS! Forgive me for having not been my usual self with previous post. 😹💜
@AlphaCatPA Hai!!! I’m so glad you’re still here. It felt like Twitter was falling apart for awhile. Some days are better than others, as is to be expected. 🤷♀️ I’m just so glad there are still familiar people around. So good to get a reply from you 🫂😽💕xx
Pain causes “agitation” when you’re in the hospital (for the first time), and the treatment is pain management.
When pain is labeled “chronic,” suddenly pain causes “anxiety,” and the treatment becomes, “Ma’am, I’m gonna need you to calm down.”
How fucked up is that. #NEISvoid
@24shaz So nice to see familiar people still here. Ngl, it’s been a particularly rough winter & things are quite stressful besides. Reading about “soothing system,” lol! I hope you’re staying cozy and doing as well as can be. 🫂😽💕xx
Nick, telling caller Adam this morning, “I know Adam is not your real name,” is a racial microaggression. You owe them an on-air apology. Do better. @LBC@NickFerrariLBC