Jon Shaw Foundation

Jon Shaw Foundation in memory of Jon “Supporting young people with epilepsy. Improving the mental health of bereaved siblings. Promoting awareness of SUDEP.”

[Jon Shaw Foundation @FoundationJon]

We are absolutely thrilled to be chosen as one of the charity partners for HBL Associates. The return of their Charity 5-a-Side Football Tournament is on July 5th, 2024. If you would like to get involved, contact [email protected] Spread the word
#HBLCharityFootball

[Jon Shaw Foundation @FoundationJon]

Good luck Alice and Christine for your run in the London Marathon today. You’ve trained hard, you’ll smash it!

https://t.co/DyQTbcwt7U

https://t.co/IS2SxwlySl

Running for #epilepsy #bereavement #sudep @FoundationJon

[Jon Shaw Foundation @FoundationJon]

@LairdOfTheManor Johnny

[Jon Shaw Foundation @FoundationJon]

Reaching out to siblings and close friends who have lost a love one and struggling to manage the trauma alone. If the loss was due to an accident, trauma, or suicide, was it sudden or after a long illness it doesn’t matter, we are here. @sandbachnews @CreweNub @nantwichnews

[Jon Shaw Foundation @FoundationJon]

The team at The White Lion are in training for this years mega stomp for JSF, 70 miles over 2 days, Manchester to Crewe, via Runcorn, Frodsham, Chester and Nantwich. They have just opened the just giving page for donations. If you can spare ££ thank you, if not then please share

[Jon Shaw Foundation @FoundationJon]

🔔 Important notice 🔔
Due to a significant increase in demand over recent weeks, applications for funding for medical equipment are closed until 01 August. This will allow us time to process the backlog. Please note that applications for bereavement support remain OPEN.

[Jon Shaw Foundation @FoundationJon]

Great news, schools in the Alexandra Academy Trust are raising funds for JSF. Jon was a pupil at @monkscop so we have a close connection. Thank you to all for choosing us to benefit from your sports days. Have lots of fun. #independenceinepilepsy #epilepsyawareness

[Jon Shaw Foundation @FoundationJon]

Feeling inspired by this year’s marathon? Looking for a new challenge? We are now accepting applications to run for Jon Shaw Foundation at next year’s TCS London Marathon. Download your application from our website here: https://t.co/D93F8qhI64 #awareness #londonmarathon

[Jon Shaw Foundation @FoundationJon]

Reaching out to those who need us but more areas to contact. Help us to spread the word, the word is support. #EpilepsyAwareness #sudepawareness #epilepsysupport @BrainAblaze @EpilepsyAlarms @epilepsy_scot @admodularLTD @CheshireLiveCrw @CreweNub @thecat1079 @Sandbachtownfc

[Jon Shaw Foundation @FoundationJon]

We receive at least 15 applications for support every month which can cost our charity as much as £7500. This fabulous donation from @admodularLTD will ensure that we can continue supporting the many young people who reach out for help. We are all eternally grateful.

[Jon Shaw Foundation @FoundationJon]

Good luck tomorrow Mark

[Mark Bickerdyke @markbickerdyke]

The countdown has started! Tomorrow I'll be doing the @CoalRace fundraising challenge for @FoundationJon There's still time to make a donation if you can via my JustGiving page https://t.co/DOdZAemCrU

[Jon Shaw Foundation @FoundationJon]

Thank you to everyone who has helped us grow and reach hundreds of young people living with epilepsy. @BBCNWT @BBCRadioStoke @GuyWithEpilepsy @RagNBoneMan @EpilepsyAlarms @BrainAblaze @wesstreeting @thecat1079 @CreweNub @crewealexfc @CheshireLiveCrw @admodularLTD

[Mark Bickerdyke @markbickerdyke]

I am running in this years 62nd world coal carrying championship veteran’s race at 11:30am on Easter Monday raising funds for the @FoundationJon who provided a seizure alert watch for our daughter to allow her Independence.

https://t.co/W7QKUhQja8

[Jon Shaw Foundation @FoundationJon]

@markbickerdyke This is fantastic, I grew up in Gawthorpe so the Coal Race is a special race to me. Thank you Mark. Did you have a grandma, great grandma live on Lodge Hill Road, we’re talking 1960s.

[Jon Shaw Foundation @FoundationJon]

@Aizenay95 I’m sorry you have had to suffer the same horrific loss we did. If there’s anything we can do, please shout out

[Jon Shaw Foundation @FoundationJon]

Jon Shaw Foundation was registered in memory of Jon, he should be 25 today but we lost him to SUDEP in June 2019. We should have known about the risk, we didn’t.
#sudep #EpilepsyAwareness @FoundationJon

[Jon Shaw Foundation @FoundationJon]

#independenceinepilepsy #epilepsy #sudep #seizures

JSF helping young people gain the confidence to achieve on their own terms with the reassurance that help will arrive when they need it.

[Jon Shaw Foundation @FoundationJon]

To Jon Shaw Foundation, we extend our deepest gratitude. Your assistance has made a profound difference in our lives, and we are so thankful for your support. As a family, we are committed to continuing this journey with love
Thank you for helping us keep our family safe.

[Jon Shaw Foundation @FoundationJon]

Although Raven and Hunter are now adults, they still require constant care, especially due to the risk of Sudden Unexplained Death in Epilepsy (SUDEP). Jon Shaw Foundation has been incredibly generous, their kindness has helped ease some of our burdens.

[Jon Shaw Foundation @FoundationJon]

This year our theme is inspiring independence in epilepsy to reflect the bedrock of our charity objectives. Keep watching our socials leading up to the 26th for news about what we’re doing, & how you can help. @BBCRadioStoke @CreweNub @CheshireLive @RagNBoneMan @TommyFreemo15

[Jon Shaw Foundation @FoundationJon]

Three of the 18 young people we supported last month #Epilepsy #sudep @GuyWithEpilepsy @PAMEawareness @BrainAblaze @admodularLTD @BBCNWT @GranadaReports