Sarah Fox

A new account because my ME/CFS and Post Covid Syndrome #brainfog has left me locked outof@sarahannfoxy . Managing with pacing, meaningful things and gratitude!

[Sarah Fox @FoxyMEMum]

A crossed out date in my diary,
Because you're no longer due
Dates I will never forget
As I always think of you #waveoflight2025 #WaveOfLight #BabyLossAwarenessWeek2025 #blaw2025

[4Louis @_4Louis]

October begins Baby Loss Awareness Month. 💙💗

We remember every baby gone too soon and hold all families in our thoughts, your love and grief are seen and honoured.

Artwork credit: @Babylemonprints

[Sarah Fox @FoxyMEMum]

Advocating for yourself and others as a disability network member is vital. As a disabled person, it also requires planning, pacing, and lying in the back seat of your car during the lunch break! #MECFS #LongCovid #disabilityempowerment #Disability #hiddendisability

[Sarah Fox @FoxyMEMum]

The last Sunday in August is #InternationalBereavedFathersDay a day no one wants to meet the criteria for! For all the men who were strong and supported their wives/partners through any kind of loss. We see you, we appreciate you, life would have been so much harder without you💔

[Sarah Fox @FoxyMEMum]

People are more than their disability, they have lives, families, life events that just don't allow for the planned and paced approach. This year so far is proving that to me in SO many ways. Stress burns my energy way quicker than anything else! #MECFS #LongCovid #chronicillness

[ME Research UK @MEResearchUK]

A review study has highlighted the complex ‘human responses’ – such as uncertainty, fear, grief, loneliness, and frustration – that many people experience as they navigate life with ME/CFS.

Read more: https://t.co/dk2BmTFjLr

[DecodeME the ME/CFS Study @DecodeMEstudy]

Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. Summary of our results: https://t.co/KFouvOq3sb Check out our full preprint paper: https://t.co/Df9m4jm0fE

[DecodeME the ME/CFS Study @DecodeMEstudy]

(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.

These findings reflect the lived experience of thousands of #pwME.

Thanks to all our participants & supporters who made this possible!

Read a summary of our results:  https://t.co/KFouvOq3sb

[Sarah Fox @FoxyMEMum]

When you KNOW it's not 'all in your head', and theyprove it! https://t.co/ZRRxerCu0I

[Sarah Fox @FoxyMEMum]

Must be a yearly thing, this caae up on my memories! #MECFS #LongCovid #chronicillness https://t.co/Bsoc3aZVfw

[Sarah Fox @FoxyMEMum]

#ChronicIllness life is always exciting. Off to an in-person meeting today, so loaded with electrolyte water prior to stepping out of bed - not today POTS..... 😁 so my body decides PAIN is the major symptom for the day instead... - can anyone recommend nice electrolytes?#MECFS

[Sarah Fox @FoxyMEMum]

I don't know who needs to hear this, but if your partner is stressing about hiding their hairloss tomorrow to leave the house, 'you could always think about a wig' is not the answer!! #alopecia #femalehairloss #autoimmune #chronicillness #MECFS #LongCovid

[Sarah Fox @FoxyMEMum]

@DiaryofaSickGrl Other people's expectations and then them needing to make accommodations/adjustments to their life. It's not just my life it's affecting, it's the ripple effect into everyone elses

[Sarah Fox @FoxyMEMum]

@SouthnPurpleVeg @DiaryofaSickGrl Being given an opportunity, but being too scared or uncertain as to whether or not you can take it

[Sarah Fox @FoxyMEMum]

I've done all of these in the last week.....🤣 #spoonie #spoonielife #MECFS #LONGCOVID #chronicillness

[Sarah Fox @FoxyMEMum]

Chronically ill life-Going to hospital for an unrelated problem, but you can't relax/notstress/just be a patient, because you have to advocate for yourself and protect yourself from paying the price for weeks #MECFS #LongCovid #POTS #chronicillness #spoonielife

[Sarah Fox @FoxyMEMum]

Chronic illness is having linked up with a fellow spoonie 5 YEARS ago, we live local to each other, but we haven't both been well enough at the same time to get out and meet up in that whole time. #MECFS #chronicillness #spoonie #spoonielife

[Sarah Fox @FoxyMEMum]

@thatmaskedgirly What works for me-
be consistent with saying no to things that you know are beyond your limits
If they present a scenario- going out etc- I present an option that would work for me, so work on a compromise
- if they suggest I'm not trying hard enough, I stop the conversation

[Sarah Fox @FoxyMEMum]

My partner thought it was odd that I'd make lists of things I needed to tell him..... now it's a normal part of our routine. Smart speakers in each room mean I can add to and access it from wherever we are #brainfog #MECFS #LongCovid #chronicillness #accessibility

[Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS]

Every colour tells a story. The three hues of the #LongCovid awareness ribbon represent:

🩶 Gray: Loss & grief
🩵 Teal: Hope & support
🖤 Black: Loneliness & isolation

Wear your ribbon proudly & join the movement for change. #LongCovidAwareness

https://t.co/RaQGPFYfPq

[#ThereForME @ThereForME_UK]

@wesstreeting @AshleyDalton_MP @paulwaugh @Paula_JKnight Cross-posting from other social media! 📸