Fragile X Canada

The Fragile X Research Foundation of Canada is dedicated to raising awareness of and funding research for Fragile X Syndrome.

[Fragile X Canada @FragileXCanada]

Celebrating the many Women in science across Canada who make an impact on individuals living with Fragile X
#womeninscience #fragilex #fragilexsyndrome #STEM #womeninscienceday
THANK YOU!

[Fragile X Canada @FragileXCanada]

Thinking about the new year? Wanting to get things in place and be prepared for the transition from child to adult services?

Join us Sunday December 12, at 12:00pm EST for a conversation around transitioning to adulthood.

Register here: https://t.co/ZkqOSsdcWG

[Fragile X Canada @FragileXCanada]

This presentation is open to ALL individuals who would like to attend. The session will be delivered in a ‘lay terms’ for all to understand.
Helping strengthen the knowledge transfer process between all participants in the care of individuals living with FXS .

[Fragile X Canada @FragileXCanada]

As part of our Fall Fragile X Series we launch our first of 4 sessions. Fragile X Research Across Canada is meant to highlight current research being done in Canada on Fragile X syndrome https://t.co/pNsaHXVBUY

[Fragile X Canada @FragileXCanada]

Have you registered for our Meet & Greet the Board Members yet? Emails have been sent for the log in details. Did not receive one but registered? Please check your junk mail. https://t.co/SE39jSk6C0

[Fragile X Canada @FragileXCanada]

We are excited for our new direction forward. Come meet the Board members of our Foundation. Learn about our upcoming Fall Series, share your ideas, and get involved!

#fragilex #fragilexsyndrome #community #advocacy #support #research #rare #raredisease

[Fragile X Canada @FragileXCanada]

- members of racialized groups, the LGBTQ2 community or an official language minority community
- all Canadians
Key questions for discussion

The survey asks questions about:

financial security
employment
disability-inclusive spaces
a modern approach to disability

[Fragile X Canada @FragileXCanada]

The Government of Canada is consulting ALL Canadians on how to improve the lives of Canadians with disabilities. Your feedback will support the development of the Disability Inclusion Action Plan
⬇️⬇️⬇️ Check out the link below
https://t.co/z18RcYIsPx

[Fragile X Canada @FragileXCanada]

- persons with a disability
- organizations working with persons with a disability
- caregivers or family members of persons with a disability
- persons identifying as First Nations, Inuk (Inuit), Métis or Indigenous
...

[FRAXA Research @FRAXAresearch]

The final honoree this year is Dr. Randi Hagerman who is given the FRAXA Dedication Award which recognizes longstanding, unwavering commitment to #FragileX translational research and to strengthening the Fragile X scientific community.

https://t.co/zzbgJUpqEK

@worldfxday #WFXD

[Fragile X Canada @FragileXCanada]

#YYC will be shining bright as the #CalgaryTower and #ReconciliationBridge will be illuminated in recognition of #fragilexsyndrome #Family #Health #Education #Treatment #Therapy and #Research

[David Mitchell @dmitchellYOW]

Celebrating World Fragile X Day: shining a light on #FragileXSyndrome, raising awareness by illuminating prominent buildings and landmarks around the world — like the #CalgaryTower. #WorldFragileXDay #research #treatments #therapies https://t.co/Zdrk5jPo9m

[Fragile X Canada @FragileXCanada]

The skies will be bright tonight to celebrate @worldfxday Will you be at any of these landmarks across Canada?

We would love for you to tag us in your photos celebrating #FragileX #fragilexsyndrome #fragilexawareness

[Fragile X Canada @FragileXCanada]

Thank you @RBCConvCtreWpg for celebrating @worldfxday

[RBC Convention Centre Wpg @RBCConvCtreWpg]

Lighting teal today for @worldfxday @FragileXCanada

[Fragile X Canada @FragileXCanada]

We are excited to see the illuminations happening around the world tomorrow, July 22nd, to celebrate @worldfxday the #highlevelbridge in #Edmonton #YEG will shine bright for #FragileX
Thank you to our new Board Members @KarenkelmKelm and @dmitchellYOW for the article

[David Mitchell @dmitchellYOW]

World Fragile X Day: a day to raise awareness by shining the light on landmarks and building across Canada and the world, like the #HighLevelBridge in #Edmonton. #WorldFragileXDay #FragileX #research #therapies #treatments #families
https://t.co/7NzZmSrT0L

[Fragile X Canada @FragileXCanada]

@BKW_Pilot @jmills1955 @IngrahamAngle @USAFHealth this is complete BS. Delusion doesn't fix problems, it only kicks it down the road.